Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Toddler/preschooler Mood/behaviour


Emma's Mom

Recommended Posts

Emma's Mom Rookie

Hello again. It's been a while since I've been around...but seems like I keep ending up here. I'm trying an elimination diet with my daughter as my gut keeps telling me that she is likely a Celiac.

I have a question for those of you whose children were diagnosed or made it through the toddler/preschooler years with Celiac disease. I am curious what your child's mood and behaviour was like prior to eliminating gluten from their diet? How would you describe them? In retrospect what sort of things do you now see that were attributed to consuming gluten and just weren't a part of your child's personality or developmental stage?

Thanks so much. I have a feeling I'll be hanging around :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carl's mom Newbie

Interesting question. My son (now age 9) went gluten free at age 8 after years of digestive problems and chronic sinus problems. As a preschooler, he was anxious all the time almost to the point of OCD. Things had to be "just so". When he started kindergarten, he was unable to concentrate on tasks that required fine motor skills (such as writing or tying his shoe laces). I realize that some of his issues may have been developmental, however, in the past year his handwriting has improved tremendously (A's versus D's) and I no longer have teachers telling me he shows signs of ADHD. He's also much more relaxed and no longer runs out of the house in terror when I accidentally set the smoke detector off from taking fried chicken out of the oven :P

Ursa Major Collaborator

My oldest grandson (now 5) used to be extremely emotional. If he'd hurt himself, or you just looked at him the wrong way, he'd be crying and crying, sometimes for hours. He was also clingy and whiny. His mother thought he was a wimp and often ignored him and wouldn't comfort him.

Finally, after years of this, she made her family (herself and five kids, her husband will eat gluten at work) all gluten-free. And what a miraculous change in Ethan! Within a week he stopped being so emotional. Now he'll cry briefly when he hurts himself (like any other normal kid), and get back to happily playing. He is also finally gaining weight, he was frighteningly thin before gluten was eliminated from his diet. Also, he is now having solid bowel movements (he never had any before), and his 'growing pains' stopped.

Worriedtodeath Enthusiast

HI!

WE are still in the process of getting an "offical" dx of Celiac. My daughter is 18 months old and goes for her biopsy next month. That will determine if we proceed as Celiac or Non Celiac gluten senstive (I know same treatment either way. My hubby wants the test) We noticed symptoms around 12 months of age. Around that time, we put her back on the diet that had not caused her any trouble (we thought some kind of food allergy). THe diet was fruit/veggies/ plain meat. The allergist put us onto 3 week food trials and when we got to wheat, her tummy troubles started back around week 2. Around day 30, we discovered the "terrible twos" had come back. Those had started around 12 months. My other two who exhibit Celiac symptoms went thru that stage very early as well. She is irratable. Did I say irratable?? i meant to say her evil twin took her place. She falls to the floor in ear splitting tantrums because I touched her juice cup. We are literally walking on egg shells because you never know what might set her off. She cannot sleep for more than an hour or 2 at a time. (slept thru the night before the wheat challenge) She eats two bites , nibbles, tastes molecules of her food at a time and eats that much around the clock. She also will devour dirt like it is ice cream. <_< She always looks tired and has the attitude to go with it. When she is happy she's HAPPY. When she is mad, she is MAD. I think the difference between "normal" toddler behaviour and Celiac toddler behaviour is it so much more intense and directly relates to how her tummy is. The days we are constantly changing diapers are the worst. the days she only has one or two movements, she is much more easy going. I can't wait until we get the biopsy and can cut out gluten. Of course after hubby was awakened at least 4 times last night by her ear splitting screams, he may be reconsidering going another 21 days this way. We noticed the first time that it took right at a month to clear up the D and smooth out the attitude. I gave him a royal earful last night at 2:00am about keeping her on gluten. :angry: They all want to rule out any other condition (Cya is what I call it)

Anyway...

Stacie

Ps My oldest two who are not dx but who have had tummy aches, tummy troubles, and alternate between C and D, one is very moody, quick to anger, and easily upset - the other is a space cadet who lives in his own world and seems to walk to the beat of a different drum. They are going gluten free as well and we will see if any of that changes.

Emma's Mom Rookie

Thanks so much for your help! I see a lot of my daughter in all of the things you described.

Our journey continues...

shan Contributor

my daughter was the happiest, smilieat, cutest baby - till i introduced her to formula and solids. Then she became major clingy, wouldn't let me out her sight, and basically did her own things. She hardly moved from where i put her down, even after she walked - now i see she didn't have the strength! She did a lot of repetitive things. After being gluten free, her preschool teacher said "please put her back on gluten, she's wrecking everything :D " I said sorry, you have to get used to her, this is how she is!! But, it was like she had pent up energy and that settled and now she is a regular almost three year old!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748

    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.