Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Toddler/preschooler Mood/behaviour


Emma's Mom

Recommended Posts

Emma's Mom Rookie

Hello again. It's been a while since I've been around...but seems like I keep ending up here. I'm trying an elimination diet with my daughter as my gut keeps telling me that she is likely a Celiac.

I have a question for those of you whose children were diagnosed or made it through the toddler/preschooler years with Celiac disease. I am curious what your child's mood and behaviour was like prior to eliminating gluten from their diet? How would you describe them? In retrospect what sort of things do you now see that were attributed to consuming gluten and just weren't a part of your child's personality or developmental stage?

Thanks so much. I have a feeling I'll be hanging around :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carl's mom Newbie

Interesting question. My son (now age 9) went gluten free at age 8 after years of digestive problems and chronic sinus problems. As a preschooler, he was anxious all the time almost to the point of OCD. Things had to be "just so". When he started kindergarten, he was unable to concentrate on tasks that required fine motor skills (such as writing or tying his shoe laces). I realize that some of his issues may have been developmental, however, in the past year his handwriting has improved tremendously (A's versus D's) and I no longer have teachers telling me he shows signs of ADHD. He's also much more relaxed and no longer runs out of the house in terror when I accidentally set the smoke detector off from taking fried chicken out of the oven :P

Ursa Major Collaborator

My oldest grandson (now 5) used to be extremely emotional. If he'd hurt himself, or you just looked at him the wrong way, he'd be crying and crying, sometimes for hours. He was also clingy and whiny. His mother thought he was a wimp and often ignored him and wouldn't comfort him.

Finally, after years of this, she made her family (herself and five kids, her husband will eat gluten at work) all gluten-free. And what a miraculous change in Ethan! Within a week he stopped being so emotional. Now he'll cry briefly when he hurts himself (like any other normal kid), and get back to happily playing. He is also finally gaining weight, he was frighteningly thin before gluten was eliminated from his diet. Also, he is now having solid bowel movements (he never had any before), and his 'growing pains' stopped.

Worriedtodeath Enthusiast

HI!

WE are still in the process of getting an "offical" dx of Celiac. My daughter is 18 months old and goes for her biopsy next month. That will determine if we proceed as Celiac or Non Celiac gluten senstive (I know same treatment either way. My hubby wants the test) We noticed symptoms around 12 months of age. Around that time, we put her back on the diet that had not caused her any trouble (we thought some kind of food allergy). THe diet was fruit/veggies/ plain meat. The allergist put us onto 3 week food trials and when we got to wheat, her tummy troubles started back around week 2. Around day 30, we discovered the "terrible twos" had come back. Those had started around 12 months. My other two who exhibit Celiac symptoms went thru that stage very early as well. She is irratable. Did I say irratable?? i meant to say her evil twin took her place. She falls to the floor in ear splitting tantrums because I touched her juice cup. We are literally walking on egg shells because you never know what might set her off. She cannot sleep for more than an hour or 2 at a time. (slept thru the night before the wheat challenge) She eats two bites , nibbles, tastes molecules of her food at a time and eats that much around the clock. She also will devour dirt like it is ice cream. <_< She always looks tired and has the attitude to go with it. When she is happy she's HAPPY. When she is mad, she is MAD. I think the difference between "normal" toddler behaviour and Celiac toddler behaviour is it so much more intense and directly relates to how her tummy is. The days we are constantly changing diapers are the worst. the days she only has one or two movements, she is much more easy going. I can't wait until we get the biopsy and can cut out gluten. Of course after hubby was awakened at least 4 times last night by her ear splitting screams, he may be reconsidering going another 21 days this way. We noticed the first time that it took right at a month to clear up the D and smooth out the attitude. I gave him a royal earful last night at 2:00am about keeping her on gluten. :angry: They all want to rule out any other condition (Cya is what I call it)

Anyway...

Stacie

Ps My oldest two who are not dx but who have had tummy aches, tummy troubles, and alternate between C and D, one is very moody, quick to anger, and easily upset - the other is a space cadet who lives in his own world and seems to walk to the beat of a different drum. They are going gluten free as well and we will see if any of that changes.

Emma's Mom Rookie

Thanks so much for your help! I see a lot of my daughter in all of the things you described.

Our journey continues...

shan Contributor

my daughter was the happiest, smilieat, cutest baby - till i introduced her to formula and solids. Then she became major clingy, wouldn't let me out her sight, and basically did her own things. She hardly moved from where i put her down, even after she walked - now i see she didn't have the strength! She did a lot of repetitive things. After being gluten free, her preschool teacher said "please put her back on gluten, she's wrecking everything :D " I said sorry, you have to get used to her, this is how she is!! But, it was like she had pent up energy and that settled and now she is a regular almost three year old!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    2. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.