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Toddler/preschooler Mood/behaviour


Emma's Mom

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Emma's Mom Rookie

Hello again. It's been a while since I've been around...but seems like I keep ending up here. I'm trying an elimination diet with my daughter as my gut keeps telling me that she is likely a Celiac.

I have a question for those of you whose children were diagnosed or made it through the toddler/preschooler years with Celiac disease. I am curious what your child's mood and behaviour was like prior to eliminating gluten from their diet? How would you describe them? In retrospect what sort of things do you now see that were attributed to consuming gluten and just weren't a part of your child's personality or developmental stage?

Thanks so much. I have a feeling I'll be hanging around :)


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Carl's mom Newbie

Interesting question. My son (now age 9) went gluten free at age 8 after years of digestive problems and chronic sinus problems. As a preschooler, he was anxious all the time almost to the point of OCD. Things had to be "just so". When he started kindergarten, he was unable to concentrate on tasks that required fine motor skills (such as writing or tying his shoe laces). I realize that some of his issues may have been developmental, however, in the past year his handwriting has improved tremendously (A's versus D's) and I no longer have teachers telling me he shows signs of ADHD. He's also much more relaxed and no longer runs out of the house in terror when I accidentally set the smoke detector off from taking fried chicken out of the oven :P

Ursa Major Collaborator

My oldest grandson (now 5) used to be extremely emotional. If he'd hurt himself, or you just looked at him the wrong way, he'd be crying and crying, sometimes for hours. He was also clingy and whiny. His mother thought he was a wimp and often ignored him and wouldn't comfort him.

Finally, after years of this, she made her family (herself and five kids, her husband will eat gluten at work) all gluten-free. And what a miraculous change in Ethan! Within a week he stopped being so emotional. Now he'll cry briefly when he hurts himself (like any other normal kid), and get back to happily playing. He is also finally gaining weight, he was frighteningly thin before gluten was eliminated from his diet. Also, he is now having solid bowel movements (he never had any before), and his 'growing pains' stopped.

Worriedtodeath Enthusiast

HI!

WE are still in the process of getting an "offical" dx of Celiac. My daughter is 18 months old and goes for her biopsy next month. That will determine if we proceed as Celiac or Non Celiac gluten senstive (I know same treatment either way. My hubby wants the test) We noticed symptoms around 12 months of age. Around that time, we put her back on the diet that had not caused her any trouble (we thought some kind of food allergy). THe diet was fruit/veggies/ plain meat. The allergist put us onto 3 week food trials and when we got to wheat, her tummy troubles started back around week 2. Around day 30, we discovered the "terrible twos" had come back. Those had started around 12 months. My other two who exhibit Celiac symptoms went thru that stage very early as well. She is irratable. Did I say irratable?? i meant to say her evil twin took her place. She falls to the floor in ear splitting tantrums because I touched her juice cup. We are literally walking on egg shells because you never know what might set her off. She cannot sleep for more than an hour or 2 at a time. (slept thru the night before the wheat challenge) She eats two bites , nibbles, tastes molecules of her food at a time and eats that much around the clock. She also will devour dirt like it is ice cream. <_< She always looks tired and has the attitude to go with it. When she is happy she's HAPPY. When she is mad, she is MAD. I think the difference between "normal" toddler behaviour and Celiac toddler behaviour is it so much more intense and directly relates to how her tummy is. The days we are constantly changing diapers are the worst. the days she only has one or two movements, she is much more easy going. I can't wait until we get the biopsy and can cut out gluten. Of course after hubby was awakened at least 4 times last night by her ear splitting screams, he may be reconsidering going another 21 days this way. We noticed the first time that it took right at a month to clear up the D and smooth out the attitude. I gave him a royal earful last night at 2:00am about keeping her on gluten. :angry: They all want to rule out any other condition (Cya is what I call it)

Anyway...

Stacie

Ps My oldest two who are not dx but who have had tummy aches, tummy troubles, and alternate between C and D, one is very moody, quick to anger, and easily upset - the other is a space cadet who lives in his own world and seems to walk to the beat of a different drum. They are going gluten free as well and we will see if any of that changes.

Emma's Mom Rookie

Thanks so much for your help! I see a lot of my daughter in all of the things you described.

Our journey continues...

shan Contributor

my daughter was the happiest, smilieat, cutest baby - till i introduced her to formula and solids. Then she became major clingy, wouldn't let me out her sight, and basically did her own things. She hardly moved from where i put her down, even after she walked - now i see she didn't have the strength! She did a lot of repetitive things. After being gluten free, her preschool teacher said "please put her back on gluten, she's wrecking everything :D " I said sorry, you have to get used to her, this is how she is!! But, it was like she had pent up energy and that settled and now she is a regular almost three year old!!

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    • cristiana
      Forgot to add...  Quite a lot of 'tapas' are gluten free. Ones to look for:  Tortilla de patata (a thick omelette made with potatoes and onions) should be 'sin gluten', and chorizo cooked in red wine makes a nice dish.  Look out for sobrasada, which is very Mallorcan, a softer type of sausage/pate which you can spread on gluten free crispbread which you should be able to buy for supermarkets.  Until very recently we could not buy it here in the UK but we've managed to find a local source, and Lidl have started to sell it in tubs, too. Here's more info on it: Sobrasada is a soft, spreadable, cured pork sausage from Spain's Balearic Islands (like Mallorca), distinguished by its reddish color from paprika, sweet-spicy flavor, and pâté-like texture, perfect for spreading on toast, cooking into dishes like eggs or pasta, or drizzling with honey. Its unique texture comes from the island's humid climate preventing full drying, resulting in a semi-soft sausage that's gently aged, unlike drier mainland chorizo.
    • hjayne19
      Hi @cristiana   Thank you so much for your reply. This is so helpful. I definitely suffer from anxiety mostly related to health. Brain fog definelty doesn’t help this when it comes. I find my 4 am wake ups are potentially more food related if that’s a possibility (eating enough carbs with protein and fats) and if I eat a small snack before bed to hold throughout the night. I just haven’t been able to help the sudden increase in more days where I can’t fall asleep for hours - it’s those racing thoughts like you describe. I feel like a machine that’s running and can’t shut down.    I will try the epsom salt bath that’s a great suggestion. I think I’m probably working through some other food triggers that may be contributing as well with brain fog.    Anyways sorry to go off. It feels so reassuring finding this community and being able to chat with others. I was definitely feeling a bit crazy until I realized there are many others going through the same thing. 
    • cristiana
      Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about.   I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type.  There seems to be a thought in the UK that if you label something gluten free it will affect flavour etc and will put people off buying it!  However, in the case of Spain, it is almost as if the the Spanish see it as an endorsement of quality and flavour!  There is a supermarket called Mercadona and they label their produce very clearly. Paella should be gluten free so long as the chef use the right stock such as Knorr or a gluten-free homemade stock - you can check.  Most Mallorquins in catering speak English but if not, ask, "Contiene gluten?"  Tumbet is a wonderful dish if you like peppers, tomato, aubergines, garlic and olive oil!  A sort of variation on ratatouille.   Slow roast lamb shank should be safe, and there are endless fish dishes to choose from and salads.  Flan is made with eggs, sugar and caramel, and should be gluten-free.  Lots of gluten-free ice cream and sorbets, they should be clearly labelled. If you want specific restaurant recommendations, feel free to PM me. Cristiana    
    • trents
      One thing to keep in mind is that it's pretty safe to take a B-complex since B vitamins are water soluble. You just pee out any excess. 
    • cristiana
      Hi @hjayne19 It sounds as if your insomnia is closely linked to your anxiety.  I had awful anxiety at diagnosis, and that feeling of doom that you describe.   My other symptoms were racing thoughts, and a tangible sensation of a weight bearing down on my shoulders, even if I was feeling perfectly well and happy - it would just hit me.  I then got a phobia to make things worse, linked to the fact that I had was suffering hypnopompic hallucinations (brief hallucinations on waking).  That was weird but I later learned they aren't all that uncommon, especially with people who suffer from aura migraines.   In fact I felt so unwell that I didn't even recognise it as 'anxiety'.  I remember googling my various symptoms and it was only that that  made me realise I was suffering from anxiety, which was nothing like 'feeling a bit nervous before taking an exam' or , say, making a speech.  This was a whole new ball game. As I came off gluten and healed, the anxiety started to get less and less.  It is not uncommon for coeliacs to have anxiety on diagnosis, so I hope that is reassuring to you.   And deficiencies can make it worse, or cause it, so are definitely worth investigating in further depth if you can.   There is certainly a big difference between 'normal' levels and 'optimum', as @trents says, and this excerpt from a British website and explains how with B12,, for example,  a normal level in one person can represent a deficiency in another: In the UK, normal B12 levels vary slightly by lab but generally, above 200 ng/L is considered sufficient, 100-145 ng/L indicates possible deficiency, and below 100 ng/L suggests likely deficiency, though levels between 146-200 ng/L may still warrant treatment if symptoms are present, as per North Bristol NHS Trust and NICE guidelines In fact, I understand levels are set much higher in other countries, such as Japan.  When I started to supplement B12 with high dose sublinguals I began to feel better, even though at diagnosis my levels were considered 'low normal'.    I too had a lot of muscle twitching which was likely due to deficiencies, but of course if someone has a lot of adrenaline in their system it will only make twitching worse.  I remember reading on this forum one should take magnesium tablets, and it did really help.  As a sportsperson you might like to try throwing a good handful of Epsom salts into a lukewarm bath, and have a soak for 20 mins, as it can be absorbed through the skin.  But be careful as you leave the bath, it can make you woozy! Lastly, to address the anxiety,  I found Dr Steve Llardi's book, albeit on Depression, incredibly helpful.  The Depression Cure: The Six Step Programme to Beat Depression Without Drugs.    Dr Llardi outlines a step-by-step plan for recovery from depression, which focuses on six key lifestyle elements that have largely disappeared in healthy doses from modern life:  physical exercise,  omega-3 fatty acids,  natural sunlight exposure,  restorative sleep,  social connectedness, and meaningful, engaging activity.    The other book (and there is a website) which helped me understand anxiety and recover is Paul David's, At Last a Life, written by a one-time sufferer.  I live in the UK and if I could award a knighthood to anyone in this country, it would be to Paul.  I am so grateful that these books crossed my path.   Anyway, sorry for the length of this post.  I hope something might be of help. Cristiana  
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