Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Lost It

shan

By shan
in Related Issues & Disorders

Recommended Posts

shan Contributor
shan
Posted

Just found out that there is no heartbeat, and i am going to lose my baby... do you think, even though i got a negative on the celiac blood work, that it is possible i am still a celiac? I know i am clutching at straws, but i guess i just need answers... I was gluten light for 7 weeks and then went back fully on gluten and lost it, or rather it stopped developing at 8 and half weeks. :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Electra Enthusiast
Electra
Posted

Oh I'm so very sorry. I don't even know what to say. Nothing can make up for what has just happened to you.

Blood tests will generally not show a positive if you were just eating gluten lightly.

Were you previously diagnosed with Celiac?

Ursa Major Collaborator
Ursa Major
Posted

Oh Shan, I am so sorry. I had eight miscarriages and had no clue what gluten was at the time. Yes, miscarriages are one common symptom of celiac disease. Your blood test result could well have been a false negative (those blood tests are not very accurate and yield false negatives all the time). I understand how sad you must be right now.

Please, before you try again, be on the gluten-free diet for at least six months beforehand to make sure your intestine can heal enough to actually absorb essential nutrients. Because miscarriages happen with women with celiac disease because they don't absorb the nutrients needed to support themselves and a baby at the same time.

kbtoyssni Contributor
kbtoyssni
Posted

I'm so sorry to hear about your loss. You are in my thoughts.

confusedks Enthusiast
confusedks
Posted

I'm so sorry you are going through this. I agree with Ursa about gluten/pregnancy.

horsegirl Enthusiast
horsegirl
Posted

I hope you don't mind me saying a prayer for you today.

I'm very sorry for what you're going through, & hope you take care of yourself in the days

& weeks to come.

My understanding is that gluten intolerance/celiac are often implicated in miscarriage or infertility.

I also know that tests can be falsely negative, as all of my blood tests were negative even though

I had been eating gluten heavily every day for over 6 weeks (after being gluten free for 4 months).

Good luck to you & your family.

Horsegirl

Offthegrid Explorer
Offthegrid
Posted

I'm so very sorry.

For your information, my brother's blood work and endoscopy came back normal. But if he eats gluten, he gets quite sick. I'd trust your body's response far more than I would a test. And you can't just go gluten light -- you have to be completely gluten-free at *LEAST* 3 weeks before you may notice a change. It took me 2 weeks initially to feel better, and then by 3 weeks it was a big change.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shan Contributor
shan
Posted
  • Author

Thanks for your replies, i did actually go gluten free, and didn't see any change, and when i tried gluten again it didn't bother me, but when i had (less than a whiskey shot of) wine, that is when i knew what it was ;) I knew it was the alcohol that was bothering me and not gluten, so i just went back on gluten, just slowly, coz i actually liked the gluten free diet :)

Should i ask the gi for a biopsy, or is it not worth it and i am just overreacting coz of what is happening to my body?!

confusedks Enthusiast
confusedks
Posted

Everyone has different opinions about this, if you want to have a "real" diagnosis, you may want to get a biopsy. All people who have miscarriages aren't necessarily Celiac, BUT if you noticed a reaction to gluten, then you may want to try to get diagnosed. It's up to you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,947
    • Most Online (within 30 mins)
      7,748
    Sinch23
    Newest Member
    Sinch23
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.