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Advice From Celiacs With Constipation


Wonka

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Wonka Apprentice

I do not get diarrhea (or not very often) but I suffer from chronic constipation (it can be really awful when I travel by air). I do not have hard dry stools. I have normal to soft stools that I can't eliminate (my bowel seems to be sluggish and I don't get enough peristalsis to effectively eliminate). Does this describe the constipation caused by celiac? Will this get better once I can get completely gluten free (I'm working on my kitchen)? Enquiring minds want to know.


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Pyro Enthusiast

I found that it really helped when I incorporated higher amounts of fat into my diet, even though I was on an already high fat diet.

The trick was to get more free standing oil and greases rather than just that found in meat. Ground beef is pretty damn good at it.

YoloGx Rookie
I found that it really helped when I incorporated higher amounts of fat into my diet, even though I was on an already high fat diet.

The trick was to get more free standing oil and greases rather than just that found in meat. Ground beef is pretty damn good at it.

I have found taking magnesium trwice a day (to bowel tolerance--when it causees D and back off) works like a champ against constipation while also helping gout he nerves etc.. Also fresh ground up flax seed with a little apple pectin added to the grind is excellent--with plently of water added.

Yolo

JNBunnie1 Community Regular
I do not get diarrhea (or not very often) but I suffer from chronic constipation (it can be really awful when I travel by air). I do not have hard dry stools. I have normal to soft stools that I can't eliminate (my bowel seems to be sluggish and I don't get enough peristalsis to effectively eliminate). Does this describe the constipation caused by celiac? Will this get better once I can get completely gluten free (I'm working on my kitchen)? Enquiring minds want to know.

That's actually been happening to me lately and I haven't been glutened, so I'd say maybe it is a Celiac thing and maybe it isn't. It's easy to blame everything on Celiac, that's what I usually do. For now, while traveling, try eating more bananas & apples. They're naturally gluten free anyway. And if you like prunes I'd add those too, and as much green food as you can stand. I also eliminate much more effectively and regularly when I am exercising EVERY day. My body is such a bastard, forcing me to exercise like this.......

Lux Explorer

I have suffered from the same problem. Interestingly, grease/fat etc absolutely DOES seem to work like a charm...also, I eat an amazing organic yoghurt which has an amazing effect on my system. The brand is called Cyclops; although it's a New Zealand product, so I don't know as to whether it would be available outside of the country. Anyway, I think it's the pectin it contains (which is so good, as apples don't agree with me AT all)...

JNBunnie1 Community Regular
I have suffered from the same problem. Interestingly, grease/fat etc absolutely DOES seem to work like a charm...also, I eat an amazing organic yoghurt which has an amazing effect on my system. The brand is called Cyclops; although it's a New Zealand product, so I don't know as to whether it would be available outside of the country. Anyway, I think it's the pectin it contains (which is so good, as apples don't agree with me AT all)...

Stonyfield Farm organic yogurt in the US contains pectin, if you'd like to try that, I get big tubs of the plain stuff and add applesauce or frozen fruit.

cloesb Newbie

i had a similar situation and after a couple months of being gluten free it seemed to resolve itself - thankfully. I'm actually pregnant & my constipation has severly acted up again. Milk of Magnesia (2 tbsp) at night seems to be the only thing that does the trick.


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Wonka Apprentice

It sure would be nice if mine corrected eventually. I am a bit reticent to eat high fat as that is a real trigger for my GERD.

Prairie Girl Apprentice

Hemp hearts really help me. I put them in my smoothies for breakfast and into some of the other things I cook. You might want to give them a try :)

JNBunnie1 Community Regular
It sure would be nice if mine corrected eventually. I am a bit reticent to eat high fat as that is a real trigger for my GERD.

I'd stick with the veggie route in that case. Maybe some digestive enzymes?

BRUMI1968 Collaborator

This may sound silly, but what about lightly massing your whole abdomen every day. I once read a very interesting article about IBS (I know, I know) that talked about how the nervous system and its communications with the brain can be in part to blame for elimination problems. I know for a fact that unless I eat 90% raw, I have a FAST top digestion, and a SLOW bottom digestion. My stool is perfectly fine, I only elimate it every other day or so. I recently went on a trip and ate raw the whole time (had to eat in my hotel room and was in California - so had avocados and tomatoes all day long), and within two days I was eliminating every day, even twice a day, and it felt newer. Maybe you know what I mean - when you're pretty sure you're pooping out something you ate a week ago. If you massage the bowel and small intestines and tummy and all that, you can help get them moving. Along with a warm tea or water with lemon, to get paristalsis started.

Secondly, try sitting on the pot every day at the same time, regardless of if you have to go. It helps to put your feet up on a stool so that your body is in a position similar to squatting. I'm not kidding that this has helped me immensely.

Lastly, while you're there, do the massaging thing, including down your lower back.

Hope this helps. Glad to hear the stool itself isn't miserable -- I lived through years of that and am so happy to have nice soft management poop. Yahoo!

RiceGuy Collaborator

I second the magnesium thing. Like some magnesium citrate in orange juice. Start with a teaspoon, maybe even less, and work your way up to the level that works best for you. Expect it to work in a few hours, though I'm sure we all have our own particulars. If you take too much, you'll know - oh boy will you know!! Just make sure you don't have to stray far from a bathroom, 'cause you're gonna need it.

As for other things, I find bananas to NOT work, in fact they are off my list for that reason. Certain types of carbs are off too. It seems each of us are different that way, so you'll probably have to experiment. You can think of it as a different type of "elimination" diet :lol:

ravenwoodglass Mentor

I get severe C when soy manages to sneak in. In addition to the great advice already given what helps me very quickly is a meal of sweet potatoes, I usually cut them up and boil them then when done I stick them in a saute pan and drizzle some honey or sugar over them to coat. Things usually move smoothly the next morning and I get some extra vitamin A.

Sharon Marie Apprentice

OK This was my problem for years. It was nearly imposable to have a bowel movement even though it was not hard stool. It's like I lacked the lubricant to pass it. Every Am I would resort to a small enema of warm soapy water to enable me to have a bowel movement. Otherwise my entire day was spent feeling like I had to go, but couldn't. And of course the day would be spent feeling totally uncomfortable. I used to worry about the side effects of a daily enema but without one I was miserable. And I felt that laxatives were not a good solution either.

Last November I was diagnosed with celiac sprue and started on a gluten free diet. Now each morning I have a bowel movement normally!

Here it is the last day of January and I am still learning so much from everyone here! Not all of my problems have been taken care of yet but it's a good start! ( My legs and feet are still very painful. )

thanks to you all once again

SharonMarie ;)

RiceGuy Collaborator
I get severe C when soy manages to sneak in. In addition to the great advice already given what helps me very quickly is a meal of sweet potatoes, I usually cut them up and boil them then when done I stick them in a saute pan and drizzle some honey or sugar over them to coat. Things usually move smoothly the next morning and I get some extra vitamin A.

Sweet potatoes are a high carb food. I wonder what this indicates? One thing I already know, is that sweet potatoes don't have that effect on me, nor do other carbs. I guess this just proves how individual we all can be.

lizard00 Enthusiast

I tend to go from one extreme to the other, but mostly linger with the big C. I tried the magnesium, and while it made me generally feel much better, didn't help with the C. So last night I drank a 1/4 cup of aloe vera juice. Doesn't taste so great, so I mixed it in with some other juice. But in my book of natural cures, it highly advocates aloe vera juice (as do other people that I know.) Seems to be working :) I've gone twice this AM (TMI, I know...) and I don't have the still full feeling. HOORAY!!!

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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