Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Struggling To Find A Milk Substitute


katifer

Recommended Posts

katifer Apprentice

My son and i were diagnosed in Nov with Celiac --but in the process of elimination we have found we cannot tolerate dairy( casein), soy, beans, yeast, or obviously gluten....we were drinking Rice Dream but still getting stomach aches and they do something with barley though they say there isn't a possiblitiy of gluten in their product... just wondering what others might do in this situation?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confusedks Enthusiast

Rice Dream used to say on the container that it contains a certain percent of barley extract. Apparently Rice Dream then decided to change the packaging saying that it's gluten-free but they never changed the formula.

I use either Almond Milk, Hemp Milk or Trader Joes/Whole Foods brand Rice Milk. Trader joes (if you have one near you) has their own brand of Rice Milk that says "soy free, gluten free, dairy free" and is free of many other things.

It tastes exactly the same as Rice Dream, to me.

jerseyangel Proficient

Rice Dream uses barley in the processing of their rice milks.

I use Pacific Brand Rice and Almond Milks--the plain and vanilla varities of both. They are very good :)

Healthy Girl Explorer

You may want to try Almond Breeze by Blue Diamond. The vanilla unsweetened does not contain sugar also, and is pretty tasty.

I need to avoid wheat,sugar,soy, and many other things and this has been working out well for me. It may be hard to find--I get mine at Whole Foods. Good Luck!!!

:)

RiceGuy Collaborator

If you can have nuts, you can make your own nut milk with a blender or food processor. I suppose rice milk can be made in a similar fashion. For a sweetener, try Stevia, which is natural, zero carbs and zero sugars. Just be sure to get the pure powder.

dbmamaz Explorer

I enjoyed the 360 brand rice milk (cheaper) and the blue diamond almond milk - the vanilla was a treat in my coffee! Now i'm off rice and almonds (grr), and i've started with the vance's darifree potato milk. Its not as good as rice and almond, but its not as strong as soy milk, which i could NOT find a brand I liked. i havent tried hemp milk yet, but i believe its expensive. My sons also liked the rice and almond.

bakingbarb Enthusiast

For a sweetner a lot of people prefer agave nectar. Open Original Shared Link isn't the same across the board, you really have to experiment with it because each product and each batch can be at a different strength.

Open Original Shared Link is very good for you to from what I have read oh and it is supposed to be easier to use.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator
For a sweetner a lot of people prefer agave nectar. Open Original Shared Link isn't the same across the board, you really have to experiment with it because each product and each batch can be at a different strength.

Open Original Shared Link is very good for you to from what I have read oh and it is supposed to be easier to use.

It is true that the cheaper Stevia products vary in quality and taste. I did a lot of research, tested a few brands and types, and settled on the pure powder from Stevita. All the other brands that I've found have an aftertaste, and seem to be made in China :o

Agave is primarily fructose, which some folks obviously need to limit, such as when dealing with candida. While not as bad as sucrose (ordinary sugar), I for one don't care for the idea of a candida regrowth. I haven't looked into any other possible concerns, though I suppose it would be along the same lines as eating a bunch of fruit. But to each his or her own.

mesmerize Apprentice
You may want to try Almond Breeze by Blue Diamond. The vanilla unsweetened does not contain sugar also, and is pretty tasty.

I need to avoid wheat,sugar,soy, and many other things and this has been working out well for me. It may be hard to find--I get mine at Whole Foods. Good Luck!!!

:)

Doesn't Almond Breeze contain soy lecithin? I know the new "reformulated" version of Pacific Foods almond milk has soy lecithin in it too. I don't always go out of my way to avoid lecithin, but I know some people have to...

I switched to Westsoy rice milk a few months ago and I like it sooo much better than almond milk. It is soy-free and has a really good flavor. :)

-Sara-

irish daveyboy Community Regular
My son and i were diagnosed in Nov with Celiac --but in the process of elimination we have found we cannot tolerate dairy( casein), soy, beans, yeast, or obviously gluten....

.

Hi 'Katifer',

I'm surprised nobody suggested 'Darifree' as a substitute it's a potato based milk alternative!

.

Here's a link. Open Original Shared Link

Best Regards,

David

jnclelland Contributor
Doesn't Almond Breeze contain soy lecithin? I know the new "reformulated" version of Pacific Foods almond milk has soy lecithin in it too. I don't always go out of my way to avoid lecithin, but I know some people have to...

Yeah, I was pretty peeved when Pacific added soy lecithin to their almond milk. But their hazelnut milk is still gluten/dairy/soy-free, so I still use that. I also like Living Harvest's vanilla hemp milk, but it's a good deal more expensive than the hazelnut milk.

Jeanne

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.