Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Maltodextrin In Hlc Mindlinx


Nanjkay

Recommended Posts

Nanjkay Apprentice

Hello all-

So, I have been having symptoms again...like I have been eating gluten...I get dizzy and woozy and a whole bunch of other symptoms. The only new things I have added to my diet/regimen are Wobenzym N and HLC Mindlinx by Pharmax. Now I searched and searched and asked questions and they both state that they are gluten free. And, besides, why would a product like HLC Mindlinx have gluten in it, when its main objective is to help gluten intolerant people re-populate the gut with the bacteria to break down gluten?

I did more research (it is maddening) and the ingredient "apricot powder" listed on the bottle is dried by being sprayed with maltodextrin. Now neither maltodexrin or its derivative are even listed on the bottle, I had to dig for that and other ingredients, by the way that were not on the label (I guess UK's labeling laws are different).

I did more research and learned that in the UK one can assume that maltodextrin is derived from WHEAT!!!

I do not know how to contact Pharmax in the UK. Does anyone have any info to help me?

I can't take this hidden gluten mine field much longer. :huh::angry::(

Thanks for ANY HELP about anything in this post.

Nancy

  • 3 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



homeboy212 Newbie

Hello all-

So, I have been having symptoms again...like I have been eating gluten...I get dizzy and woozy and a whole bunch of other symptoms. The only new things I have added to my diet/regimen are Wobenzym N and HLC Mindlinx by Pharmax. Now I searched and searched and asked questions and they both state that they are gluten free. And, besides, why would a product like HLC Mindlinx have gluten in it, when its main objective is to help gluten intolerant people re-populate the gut with the bacteria to break down gluten?

I did more research (it is maddening) and the ingredient "apricot powder" listed on the bottle is dried by being sprayed with maltodextrin. Now neither maltodexrin or its derivative are even listed on the bottle, I had to dig for that and other ingredients, by the way that were not on the label (I guess UK's labeling laws are different).

I did more research and learned that in the UK one can assume that maltodextrin is derived from WHEAT!!!

I do not know how to contact Pharmax in the UK. Does anyone have any info to help me?

I can't take this hidden gluten mine field much longer. :huh::angry::(

Thanks for ANY HELP about anything in this post.

Nancy

Nancy-

have you had any luck with info from from pharmax? i was researching the probiotic and came across your post. i can't believe this product would contain gluten(actually i can). if it does, well, that's criminal. the uk's gluten free guidelines are stricter than what we have in place, in the u.s. even gluten free products manufactured in facilities that produce wheat/rye or barley have to be labeled as containing gluten. anyway, i have had problems trusting probiotics in the past and have recently had a gripe with the makers of vsl#3. another probiotic from the u.k and now being manufactured here. they claim that it is gluten free(flavored and unflavored. i used the unflavored powder) but i have developed symptoms caused by gluten exposure twice within a few days of taking it. i say twice because i stopped taking it for two weeks and tried it again just to see if i could have had a reaction to something else. however, the same symptoms resurfaced after a few days. there is a lab in florida that can test for gluten in products if you send them a sample. i can give you the info. they can test down to less than 10ppm for $150. i plan on sending a few things for verification. in the meantime the probiotics i have had good luck with have been flora-q, culturella and florastor. culturella has actually made a real difference in a short period of time. flora-q has similar strains to vsl(strains proven to destroy gliadin in vitro) but in far less amounts. however, still an effective blend. i will look into other probiotics which contain the strains in mindlinx because those strains could be very valuable in protecting from cross contamination if you do ever eat out.

best,

chris

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.