Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Celiac Chat Sites

Grissomz

By Grissomz
in Introduce Yourself / Share Stuff

Recommended Posts

Grissomz Newbie
Grissomz
Posted

I've yet to find a full-time Celiac chat site.

I've seen some on a lot of other illnesses, but no go on Celiac.

If anyone know of one, don't hesitate to let me know.

Griss

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac3270 Collaborator
celiac3270
Posted

No, I haven't found a celiac chat room, either. There are many message boards and I've been to a few, but I like this one best--enough information to be useful, but small enough to be personal and for you to actually feel like you know the people here.

I think that in a way, a message board is better than a chat room. If you have AIM, AOL, Yahoo Instant Messenger, MSN something, etc. you can talk to someone or even, with celiac AOL members, create a private chat room. On a message board, though, your topic stays up there forever, so you can get replies hours, days, and weeks later. Additionally, the information is left there for others to see and use....but no, I don't know of any chat rooms on celiac.

Canadian Karen Community Regular
Canadian Karen
Posted

Hi!

I also am not really a fan of chat sites..... but I know of one at

www.delphiforums.com

Click on "Health and Wellness" on the left hand side. The celiac website is at the top of the list in this section..... They have a chat section in there, I don't know what it is like though.....

Have a great day!

Karen

celiac3270 Collaborator
celiac3270
Posted

Oh, wow...I didn't know there was a chat room at Delphi Forums! Never seen that...then again, I don't spend much time there...i'll go check it out, but I still like message boards :D

celiac3270 Collaborator
celiac3270
Posted

Oh, I went to the Delphi site, but I can't get the chat room feature to work...maybe nobody else was on--that might have been my problem. With some chat rooms, they only work if someone is already at the page waiting or something weird like that. I saw the feature, though :)

darlindeb25 Collaborator
darlindeb25
Posted

are you a member of their forum--maybe u have to be a member for it to work--i have gone in there many times when no one else is there--it is very slow--but i have had lots of fun there :lol: deb

lovegrov Collaborator
lovegrov
Posted

The celiac chat room at delphi is rarely in use. I THINK there is a regular time when some people get on but you'd have to ask there.

richard

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flagbabyds Collaborator
flagbabyds
Posted

ON the Yahoo support group sites there is a chat feature, I don't know if many people go there.

celiac3270 Collaborator
celiac3270
Posted

I am a member there, but don't post--you're required to be a member to read the boards, so I joined for that purpose...

Thanks for the information, Richard.

angel-jd1 Community Regular
angel-jd1
Posted

HA HA celiac3270........you post on my board!! I guess I just must be special :)

Even on the yahoo groups it is hard to get a time set aside to "chat" because people live in so many different time zones etc! I own a board there and I have tried getting the chat feature going and it seems to be hard for that reason. I would LOVE to be able to use that more, I think it would be a great resource.

I guess I'll have to try harder!! ;)

-Jessica :rolleyes:

celiac3270 Collaborator
celiac3270
Posted
HA HA celiac3270........you post on my board!! I guess I just must be special

Even on the yahoo groups it is hard to get a time set aside to "chat" because people live in so many different time zones etc! I own a board there and I have tried getting the chat feature going and it seems to be hard for that reason. I would LOVE to be able to use that more, I think it would be a great resource.

LOL... :D

Yes, that's another obstacle...there's a three hour difference between the east coast and the west coast...then there are also people from the UK on many of these boards.....there's a 5 hour difference between the east coast of the US and the UK....etc.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748
    CeceNV
    Newest Member
    CeceNV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Russ H
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Russ H · Posted

      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much more quickly than adults.  I would look at testing all 1st degree relatives - parents, siblings.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Wheatwacked · Posted

      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.