Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Gene Is Inherited From Where?


azedazobollis

Recommended Posts

azedazobollis Apprentice

Someone told me that being gluten intolerant is inhereted from the mother's genes? Is this true? My middle daughter is the gluten intolerant one. Hmmm. wondering if I should cut the gluten myself and see if I have any obvious changes? I don't have any health issues since I have lost 70 lbs (weight watchers). What do you think?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator
;) think i did read somewhere that more women have celiacs then men, but that may only be because more women will go to the doctor then men <_< ---as for the gene--i never heard that one--i dont think it matters who carries the gene--while reading this forum--i dont think celiacs is picky about who it takes--men, women, teens, elderly, babies, toddlers--not choosy one little bit :angry: deb
MySuicidalTurtle Enthusiast

At my first support group meeting I met a man with Celiacs. . .he came from a line of men who had it. So, I do not belive there is any truth that women are the gene passers.

lovegrov Collaborator

Not true.

richard

tarnalberry Community Regular

Celiac disease is not a sex-linked condition - the gene can come from either parent (or both).

3kbab Newbie

I was told that it is from European decent, and has nothing to do with male or female. I am the only one as far back as my great grandmother could remember who has had this. No other blood line or records indicate that anyone else has carried this. On both sides of my parents.

I am the only one

Kristy :(

Guest ~wAvE WeT sAnD~

Kristy---

Don't feel bad--I have no clue where my gene came from, either. Someone suggested that I have my grandparents' remains tested (two had Celiac-like symptoms, one being unexplained secondary cancer), but I'm not interested in disturbing graves.

I am the only Celiac in my family.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

My Mother has Celiacs, so I know where I got mine from.

Maggie1956 Rookie
Kristy---

Don't feel bad--I have no clue where my gene came from, either. Someone suggested that I have my grandparents' remains tested (two had Celiac-like symptoms, one being unexplained secondary cancer), but I'm not interested in disturbing graves.

I am the only Celiac in my family.

Yes, it is the same for me too. I'm the only known celiac in my family as well.

I think my Dad was a celiac. He died this past August 2004. There is no way I'd have his body exhumed either. His two brothers, also deceased, had "problems with their swallowing". My Dad and one of these uncles gagged on food a lot while eating.

I reckon that was a symptom of celiac disease. I do the same thing. So, I believe that either sex gets it, and passes it on.

I also noticed that you have limitted caffeine? If I have more than a couple of cups of instant (I'm Australian ;) ) I end up with stomach cramps. :(

lovegrov Collaborator

A couple of points:

If you have a child with celiac and you haven't been tested, you should be. ALL experts recommend that ALL first-degree relatives be tested, even if you don't have symptoms. All mine were and my father was positive. Siblings, parents and children should all be tested.

Unless you have all first-degree relatives tested for the genes, it's impossible to know if you're the only one in the family with it. The vast majority of people with the gene never develop celiac.

richard

pturse Apprentice

I have it and my brother and father do not (or so they say because they have not been tested). They show no signs. My my mother's sister has it.

I heard that lack of breast feeding may play a huge role. That the milk from a mother can help maintain and strengthen a babies intestinal wall. Also, when mothers do not breast feed and use formula, the formula contains a lot of gluten which is too harsh for a babies intestinal wall. They did a study some where and came up with this theory.

It makes sense because my brother was breast fed and does not have it. I was not because my mother had issues and I have it. Unfortunately my mother passed away when I was 16 and will never know if she had symptoms herself.

MySuicidalTurtle Enthusiast

Can you show me this study. To me that theory doesn't make any sense and I'd like to see what they are saying.

You should remind your family that just because they don't have symptoms doesn't mean they don't have it.

pturse Apprentice

I heard it on an NPR radio program in Sacramento.

Here is the link to the web page where you can listen to the program.

Open Original Shared Link

And it makes total sense to me.

And there is no hope telling my Italian father that he can no longer have bread, pasta and beer. He is the healthiest man I know for his age and yeah I know you don't have to have symptoms to know you have the disease. Unfortunately I did have symptoms which is why I got tested. If I could only turn back time . . .

MySuicidalTurtle Enthusiast

I am listening now. . .

celiac3270 Collaborator

Yes, I heard that on the radio a couple weeks ago ;)

MySuicidalTurtle Enthusiast

I finished listening.

When asked what could prevent/delay Celicas the doctor said there was a Swedish epidemic of Celiacs in children and that when the mothers then breast fed and got rid of gluten in the formula the epidimic stopped. . .that makes no sense. . so I looked up things for the research the Swedish did and they said:

"This epidemic pattern is quite unique for a chronic disease of immunological pathogenesis, suggesting that prevention could be possible."

Now, that to me sounds like this was a special case.

Later, he said that children who are breastfed will develop Celiacs when they get older and that it would be milder.

There isn't a real way to do research on Celiacs, unless you have a family line of it, because not everyone develops it. The family lines can be seen. Not everyone who wasn't breastfed develops Celiacs. It is something you were born with, so even if having been breastfed you would have developed it. Remember that correlation is not causation.

MySuicidalTurtle Enthusiast

In 1991 the Sweds then started this study:

Open Original Shared Link

Looks like it says. . .those infants who were breast-fed were at a lower risk for celiac diease. . .some of the ones who were not breast-fed developed it sooner. . .and those who developed it and were breast-fed were diagnosed before the age of 2.

I think the studies being done now, with family lines, will be much more helpful.

pturse Apprentice

I am not saying everyone who wasn't breastfed has celiacs. And I cannot understand how it does not make sense to you. But oh well.

MySuicidalTurtle Enthusiast

I know that's not what you are saying. . .however, it does sound like you think you're not being breast-fed is a contributing factor with you having Celiacs.

It doesn't make sense to me because Celiacs is not something you develop. It is something you are born with. That mean that you would have had it if you were breast-fed or were not.

Being breast-fed can delay the start of symptoms, but not prevent you from having Celiacs.

Guest ~wAvE WeT sAnD~

Maggie1956:

My caffeine tolerance has improved...I can only have a a few ounces (less than the standard cup size) of coffee or I will have a reaction to it. I become emotional and hypersensitive when I drink too much caffeine.

tarnalberry Community Regular

Actually, celiac IS something you develop. Many people who have the genes for it do NOT develop celiac. It's not caused soley by genetics, but an environmental trigger is required as well. There are a lot of theories on what the trigger(s) may be, though no conclusive evidence just yet.

MySuicidalTurtle Enthusiast

"an environmental trigger is required as well"

Just like you said. . .you have the gene and the triggor. . .

That goes along with what I was saying. . .not beaing breast-fed can bring about it faster but it not the reason why you got it.

celiac3270 Collaborator

Right--there's a very good chance the person would've gotten it regardless. I wasn't breastfed and I probably developed celiac around 6-8 years old. Being breastfed might have put it off awhile, but I think I would've eventually triggered it somehow.

I guess it doesn't really matter why I--or anyone--developed celiac. However it came about, we all have it and we can't change anything that happened in the past, but just deal with the disease and the diet--I haven't read the whole thread, so I'm not total up to date on the conversation.......I don't really know what i'm saying anymore...rambling :lol::P:D

Maggie1956 Rookie
Maggie1956:

My caffeine tolerance has improved...I can only have a a few ounces (less than the standard cup size) of coffee or I will have a reaction to it. I become emotional and hypersensitive when I drink too much caffeine.

Jill, that's the way it is for me too. I've cut down to just one mug of instant coffe a day. Thanks for the info. :)

angel-jd1 Community Regular

I ran across an interesting thing earlier. It is coffee made from soy beans instead of coffee beans. The website is here: Open Original Shared Link I have no idea how much it costs, or how it tastes, but might be something to look into if you are having troubles. It says :

But be careful!

Not all Soy Coffees are the same. Only Soyfee is guaranteed to have

No Pesticides

No Insecticides

No Caffeine!

No Artificial flavors, Colors or Preservatives

No Tannic Acids

No Barley

No Carbs

No Sugars or added sweeteners

Accurate nutritional values

Kosher Certification by KO

No glutens

-Jessica :rolleyes:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    2. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    3. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

    4. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    5. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,693
    • Most Online (within 30 mins)
      7,748

    Ali Zaib
    Newest Member
    Ali Zaib
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.