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Nutritionist?

LeahKristen

By LeahKristen
in Doctors

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LeahKristen Rookie
LeahKristen
Posted

when first diagnosed with celiac is it beneficial to go to a nutritionist? I'm really afraid of not getting the right nutrition or gaining weight!

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kbtoyssni Contributor
kbtoyssni
Posted

IF you can find a nutritionist who knows celiac, it may be helpful. Most here have found the nutritionist they went to see knows less than they do - they'd hand you a printout of what not to eat that you can get on this site and tell you to eat rice crispies with malt and good luck! I have found that this site is far more valuable than what you can get from most nutritionists. If you're worried about making sure you're getting enough protein, fat, carbs, vitamins then seeing a nutritionist may be worth your time, but if you want to post what you eat here, we'd be happy to make suggestions!

Salty Newbie
Salty
Posted

I think it is very helpful to find a nutritionist who specializes in Celiac Disease. There have been and will continue to be changes in food labeling laws and a nutritionist who is up to date on everything celiac will know how to help you. This site has been extremely helpful for me, HOWEVER, I think it is important to remember that no one chatting here is a doctor and there are many people who will swear that you can not go anywhere near food that have been proven to not have gluten. So be careful what you listen to and do your research, but this site is an incredible resource.

  • 3 weeks later...
marilyn Apprentice
marilyn
Posted

The Dietitian Community has made many efforts over the past several years to update their members - throw out what we were told 20 years ago and get educated. There is not a certification for Registered Dietitians for celiac disease so, by asking questions and hearing what they have to offer you can determine if they can be helpful to you.

There is a strong family history of celiac disease which has motivated me to become as knowledgable as possible and I began a celiac disease Support Group and I learn a ton from them also. I am fortunate that I can visit this website to learn as much as possible to pass on the the members and all of the outpatient and the public that are unaware and still suffering.

An RD can be extremely helpful with weight management issues and pediatric problems such as failure to thrive with our youngsters suffering from celiac disease.

Marilyn McCall, RD.LD

Iowa

Glutina Rookie
Glutina
Posted

Hi---

I am switching careers and becoming a registered holistic nutritionist---at least you guys can know there wil be at least ONE nutritionist out there who knows all about celiac!!

:)

-Glutina

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    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

      By knitty kitty · Posted

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      My TMJ ended when I lost a middle lower molar.  I had an amalgam filling from youth (1960s) that failed and the tooth broke.  I had what was left pulled and did not bother to replace it.  My bite shifted and the TMJ went away.  I just had to be careful eating M&M Peanuts because they would get stuck in the hole.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point to other health issues, some of them potentially serious, or it can mean nothing. But it doesn't look like you have celiac disease.
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