Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's A Pain, But Not The End Of The World...


mrsry

Recommended Posts

shayesmom Rookie

Today, I think that I would have responded to those people by looking right at them and then turning to the bakery staffer and asking, "Are you aware of any places that offer classes on social etiquette?". LOL! I guess today I'm feeling a bit more passive-aggressive......

LOL,

Last time I had an insensitive comment from a gluten eater I was having a really really bad day and I threatened to beat the hell out of him with the 2 kg bag of potatoes I was carrying. Perhaps not the most mature response but I'm sure he'll think twice before the next time he decides to pisses of a celiac with PMT.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Panopticism Rookie

I work in customer service, and I get insulted all the time for being too skinny(I weigh 125lbs), too pale(Iron deficiency anemia) and looking tired(...Iron deficiency anemia again, plus all sorts of malabsorption).

It's not just people sharing their opinion, it's people telling me to get some sleep, eat more, get some sun, etc.

I have almost gotten myself into trouble a few times for coming right back at the customer and telling them all about celiac disease and how crappy my diet is (with some attitude). I've also turned around and downright insulted and told off some customers...

On top of that, I eat 3 times more than anyone I know. I'm constantly hungry.

Yeah, customer service isn't really my thing... well, people aren't really my thing.

MDRB Explorer
I work in customer service, and I get insulted all the time for being too skinny(I weigh 125lbs), too pale(Iron deficiency anemia) and looking tired(...Iron deficiency anemia again, plus all sorts of malabsorption).

It's not just people sharing their opinion, it's people telling me to get some sleep, eat more, get some sun, etc.

I have almost gotten myself into trouble a few times for coming right back at the customer and telling them all about celiac disease and how crappy my diet is (with some attitude). I've also turned around and downright insulted and told off some customers...

On top of that, I eat 3 times more than anyone I know. I'm constantly hungry.

Yeah, customer service isn't really my thing... well, people aren't really my thing.

I totally hear that! You and I probably look like twins. The worst for me is the weight thing. Because I'm a woman they just assume I'm anorexic, or if I'm scoffing down a huge meal they think I'm going to throw it up once I'm done. Sometimes it really feels like people are accusing me.

Luckily I'm starting to gain a little with the gluten free diet. I used to be about a hundred pounds (I'm only 5ft 2inches) But I'm up to 110 and starting to look healthy again :)

Panopticism Rookie

I've been gluten free for 8 months-ish. I haven't really started to gain weight yet. I'm like a corpse that won't make eye contact. A real life zombie.

JNBunnie1 Community Regular
I've been gluten free for 8 months-ish. I haven't really started to gain weight yet. I'm like a corpse that won't make eye contact. A real life zombie.

It took me over a year after gluten free to gain weight, so don't lose hope. I'm 5'7" and I was down to 105. I KNOW HOW YOU FEEL. Especially working behind the Front desk of a hotel the way I do. People feel like they're entitled to comment on your appearance. No, I'm not anorexic, No, I don't starve myself, yes, I actually do go out in the sun, If you ask me that again, I'm going to set the computer for half hour-interval wake-up calls all night. Got me? For some reason, a lot of black men felt the need to comment on how 'creamy white' my skin was. Yeah, who's the racist here buddy? Fortunately I've gained 30 lbs since then and look like a real person so I don't get hassled anymore.

The only time I've ever had people comment on my food choices in a store is when a newbie wants advice and sees me picking stuff off the shelf and they go 'help'! I actually enjoy that quite a bit.

MDRB Explorer
I've been gluten free for 8 months-ish. I haven't really started to gain weight yet. I'm like a corpse that won't make eye contact. A real life zombie.

It will come, it just takes some people longer to heal (as I'm sure you know). I guess you could try vitamins, probiotics and resticting your diet a little more which might help you heal quicker.

I'm still looking quite thin, but have lot that zombie look you mentioned.

I hope you don't get too down, I've been there and even though it can take a while, it does get better.

Wonka Apprentice
It took me over a year after gluten free to gain weight, so don't lose hope. I'm 5'7" and I was down to 105. I KNOW HOW YOU FEEL. Especially working behind the Front desk of a hotel the way I do. People feel like they're entitled to comment on your appearance. No, I'm not anorexic, No, I don't starve myself, yes, I actually do go out in the sun, If you ask me that again, I'm going to set the computer for half hour-interval wake-up calls all night. Got me? For some reason, a lot of black men felt the need to comment on how 'creamy white' my skin was. Yeah, who's the racist here buddy? Fortunately I've gained 30 lbs since then and look like a real person so I don't get hassled anymore.

The only time I've ever had people comment on my food choices in a store is when a newbie wants advice and sees me picking stuff off the shelf and they go 'help'! I actually enjoy that quite a bit.

It would never have occurred to me to make comments to a stranger about their appearance. It's just rude.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darcijj Explorer

I think if someone said to me.. "I would just kill myself" .. my response would be:

Oh, that is really sad to want to kill yourself over a piece of cake (or insert gluten food here).. I am glad be be alive and healthy, so it does not matter to me what I cannot eat.

I think it is psad people place sooo much emphasis on food. There are so many more important issues than whether or not I can have a slice of pizza.

:o

kitten37 Newbie

Ignorant people are just that. I'm sorry that it happened like that. I'm Italian so cutting gluten products out of my diet (just started) is VERY difficult for me based on the amount of pasta things I am used to eating. When I first found out what I had to do I think the words "I'm going to die! Everything tasty is being taken away!" But I know there are options and it will take some work and extra planning to cater to my body

Guest hightop girl

I can appreciate this. I have a friend that I can not go to breakfast or dinner with anymore because it makes HER feel unhappy that I can't eat bread, pasta, or a cinnamon roll anymore (at a restaurant). I have tried to explain that even though this is sometimes uncomfortable for me just because I am new to it, I am really trying hard to separate food from fun and friendship, and I am trying to eat to live instead of living to eat. I find it hard when others feel unhappy or uncomfortable because I HAVE to eat healthy food. I think that is just plain weird!

Gemini Experienced
I can appreciate this. I have a friend that I can not go to breakfast or dinner with anymore because it makes HER feel unhappy that I can't eat bread, pasta, or a cinnamon roll anymore (at a restaurant). I have tried to explain that even though this is sometimes uncomfortable for me just because I am new to it, I am really trying hard to separate food from fun and friendship, and I am trying to eat to live instead of living to eat. I find it hard when others feel unhappy or uncomfortable because I HAVE to eat healthy food. I think that is just plain weird!

I think you have hit the nail on the head when it comes to some people's reaction to eating with a Celiac. I thought it was just me and I was beng overly sensitive but I have noticed that my healthy choices when eating out or my ability to disassociate food from fun makes some very uncomfortable and they end up saying stupid or hurtful things. I think they resent the control we have over what we eat and our health and it may serve as a reminder to them that they don't think they could do that. My family are the worst and will make a point sometimes of insulting or making fun of what I eat.....as they sit around and complain about their Celiac like symptoms. I, too, have stopped dining out with certain people who were getting weird about it. It's amazing the control food has over people, isn't it?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,397
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.