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Aches...........again?


holdthegluten

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holdthegluten Rising Star

I keep on getting these body aches (flu like) off and aroung my hips and lower body. It feels very similar to the flu, but i have no fever and im not exhausted. I get them like evey other week it seems. What would cause these aches to keep coming back (bacteria, viral?)I cant understand it. It is usually accompanied by some stomach discomfort.


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itchygirl Newbie

How are your Vit. D levels? When my D is really low I get the worst leg pains, cramping.... :( also, has your doc checked you for other causes of leg pain (blood flow issues, arthritis, autoimmune disease...)

MDRB Explorer

Hi!

I usually get aches and pains if I have accidentally ingested some gluten. Last time it happened I found out that a product I use regularly (that used to be gluten free) had changed to wheat derived glucose. Manufacturers can change the ingredients at any time. I had just assumed that it was still gluten free and didn't check.

I think your immunity could be low because of some hidden gluten. try checking your toothpaste, other personal care products and any processed foods you eat that might contain gluten. Check the ingredients lists regularly. Also try upping you vitamins with a good gluten free multivitamin.

Good Luck! :)

jitters Apprentice

I'm very interested in hearing everyone's ideas on this topic because the same thing is happening to me. It almost seems to go in a cycle and starts in my wrists, up my arms, shoulders, and down the trunk of my body. Major chills and painful aches and major fatigue. I've been to the doctor and she sent me to a rheumatologist who of course suggested it is depression and said I need antidepressents. Supposedly my vitamins levels are within normal limits. Whatever the problem is I'm pretty much left on my own to figure it out because I'm tired of the "here she comes again" looks. They must think I'm just nuts!

For now I'm thinking that maybe coffee has something to do with it? Do you drink coffee? I know when I give it up it seems to let up. I agree vitamins may help as well, but it takes some time I think for them to really start working.

tom Contributor

Having been a victim of intermittent symptoms for years AFTER being gluten-free, I have to wonder whether both of you also have other food intolerances, which may turn out to be temporary.

A straightforward way to find out is to keep a food/symptom diary.

Sure makes it easy when faced w/ a "dammit I felt crappy in this same way ~2 1/2 wks ago, too!" situation, and being able to look up what foods may be in common in the days prior. (Some ppl find they have 2 or 3 day delays, tho most reactions are 1 day)

An effective food/symptom diary is made easier w/ simpler foods, as opposed to processed foods w/ 20+ ingred.

But regardless of that, it can be invaluable in figuring out what not to eat.

This scenario of additional intolerances seems very common on this forum.

Best of luck to you both :)

Janeti Apprentice

I completely agree with Tom. For me it seems when my body reacts to a food that I have become intolerant to, it effects the weakest of my joints. These are the joints that have deteriorated from years of being calcium and vit D deficient. I finally went to see a ND, and he has been helping me find out what these foods are, and he has put me on vitamins and probiotics. It has made such a big difference.

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    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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