Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Dh Always Have A Rash?


AliB

Recommended Posts

AliB Enthusiast

My daughter who is 29 has been getting little occasional rashes that are sometimes itchy but not always. At the moment she has a very itchy area on her back but there does not yet seem to be any rash. A few months ago she had rashes on both hips although they weren't particularly itchy.

I too have had odd itchy skin areas occasionally over the years - so itchy I have sometimes drawn blood with the scratching! I had a patch on my right hand just before my digestion collapsed in January (I had had IBS for years and finally had a very bad painful stomach for the last 6 months) that was itchy for weeks. There was one small spot in the area, that I thought was just where I had knocked my hand or something. Eventually I suddenly noticed there was a small pimply sandpapery rash that had spread out about 2 inches around the spot. The skin went very dry but after that it started to clear up and stopped itching. By then I had already started gluten-free and dairy free.

I am pretty confident my Mum was Celiac although she died before it could be diagnosed. My blood test came back negative and I was in too much pain to wait for a biopsy so I started gluten-free straight after the blood test. My daughter has had major depression and emotional problems and suffered with things like night terrors as a child and I am wondering whether she (or even we) may have silent Celiac.

I do not know much about DH. Any advice would be helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AliB Enthusiast

Just bumping this up as I would like to know more about DH.

My daughter's itchy area did end up as a rash - it came out the next day.

Can DH start small and occasional and get larger and more regular and problematic over time?

Just out of interest we also have a friend who has had what was diagnosed as Erythema Nodosum. Has anyone ever suffered with that? could it be confused with DH?

Quite a few have looked at the thread but no one has responded. Can I tempt anyone? Please?

trcn Apprentice
Just bumping this up as I would like to know more about DH.

My daughter's itchy area did end up as a rash - it came out the next day.

Can DH start small and occasional and get larger and more regular and problematic over time?

Just out of interest we also have a friend who has had what was diagnosed as Erythema Nodosum. Has anyone ever suffered with that? could it be confused with DH?

Quite a few have looked at the thread but no one has responded. Can I tempt anyone? Please?

Probably not much of a response, but I've asked myself that since I went gluten-free. My only symptoms, I mean really... ONLY symptoms were itchy scalp and arms. That's it. No rash, even. Definitely years of drastic hair loss, but no rash on scalp or arms. Nooo GI stuff at all.

Since going gluten-free I have no itch whatsoever... I had to cut out all beauty products that contain gluten. If I touch shampoo to my head that has wheat protein or some such thing... I dig at my scalp for days.

I have anti gliadin anitbodies but negative for celiac via blood work... go figure. Also, severe Vitamin D deficiency. No other nutrient levels tested, but i can imagine... Who cares, I cut the gluten. Hair is coming back quickly. But now, I really react to glutening. Itchy arms, scalp, and now face and ears and hair shedding for a week. Oh, and i forget to mention pimples... they all cleared up when I went gluten-free.

I have a feeling there is something different for everybody. I haven't found anybody who has my experience, yet I feel we are all the same because our experiences are all so different.

Good luck on your search.

Tracy

Tracy

AliB Enthusiast

Thanks Tracy - it's good to get some feedback and to hear another experience.

I don't think I am Celiac although very GI but I do wonder, in view of the fact that my Mum was Celiac, whether it can skip generations. That happens with diabetes sometimes apparently, and as diabetes and celiac seem to be linked then I would imagine it is possible. Although I may not have it, I may have passed on the gene to my children or grandchildren.

I don't think enough is really known about it yet for any conclusion to be drawn on that but it is still an interesting thought.

missy'smom Collaborator

What you're describing sounds like eczema. My son had it for years and I finally asked for him to be allergy tested. I had read that it can be caused by allergies. He had both blood and skin testing. He reacted to all but one or two out of 40 and had big swollen blisters on several of the dots they put on his back. The allergist said that the fact that he wasn't going crazy and was just calmly standing there showed that he was so used to it. Poor kid. We're going to eliminated the foods sometime and see which one/s are causing the eczema. He had a mild reaction to wheat, soy and tree nuts. We were given some cream that works well to help with the itching but I'm very cautious and use it only sparingly and occasionally.

Here's some info about DH.

Open Original Shared Link

RiceGuy Collaborator

I used to have an incessantly itchy back, but it has gone away since gluten-free. There was never a rash. I have gotten itchy arms a few times, which I determined was from ground celery seed. The whole celery seed doesn't do it, and I read the ground product is not always from the seeds of "table celery".

A sensitivity to things like nightshades can do it also. I'm sure other things can too.

AliB Enthusiast
I used to have an incessantly itchy back, but it has gone away since gluten-free. There was never a rash. I have gotten itchy arms a few times, which I determined was from ground celery seed. The whole celery seed doesn't do it, and I read the ground product is not always from the seeds of "table celery".

A sensitivity to things like nightshades can do it also. I'm sure other things can too.

Funny, you know I hadn't thought about it but for years I have had an area on my back just inside my right shoulder-blade that would get extremely itchy. It would also feel slightly numb. It seems to have been better since I went gluten-free although I think I have had to get the back-scratcher out a couple times - maybe I was reacting to something I'd eaten!

That's interesting about celery. i have wondered if I have a problem with it - I have a couple of herbal bouillon powders that I use in cooking and have found that they leave me with a strange taste in my mouth and a cough - although they don't seem to have any wheat in them I do wonder if it might be the celery. Perhaps they use celery seed as part of the flavour.

Are you ok with fresh celery stalk? I'm not sure about nightshades. I don't usually eat potatoes or tomatos at the moment but I did have a potato fairly recently and I cooked with some tomato paste the other day - I wonder if that is when I had to get the scratcher out??! I will monitor that one! Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.