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Just Returned From Endoscopy Biopsy


Dolcenotte

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Dolcenotte Contributor

Hi again everyone. The doctor told me that right away he saw that my stomach was very inflamed all over. He said that my villi are depleted and not even there and i actually have ulcerations on my intestines, but my esophagus was fine. He said he would classify this as a moderate to severe case. he prescribed me with Prilosec to help my intestines heal. I forgot to ask him what foods/drinks to avoid? The obvious would be orange juice, tomato sauce...any others? Has anyone else gotten a report like this? I'm very scared because ulcerations like that can lead to cancer. Also, my father died at 57 from lung cancer but also suffered from diabetes, kidney failure, heart disease and the exact same stomach issues most of his life like mine and he went undiagnosed his whole life. They could never figure out his bloating/gas issues. I hope its not too late to change things. I'm starting the gluten free diet this weekend when I get a chance to do some heavy shopping.


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fedora Enthusiast

HI, good luck. I would suggest eating basic, whole foods. Avoid processed foods as much as possible for awhile. Also damaged villi have a very difficult time digesting dairy, so that should be avoided for several months. Happy healing.

constantly questioning Newbie
Hi again everyone. The doctor told me that right away he saw that my stomach was very inflamed all over. He said that my villi are depleted and not even there and i actually have ulcerations on my intestines, but my esophagus was fine. He said he would classify this as a moderate to severe case. he prescribed me with Prilosec to help my intestines heal. I forgot to ask him what foods/drinks to avoid? The obvious would be orange juice, tomato sauce...any others? Has anyone else gotten a report like this? I'm very scared because ulcerations like that can lead to cancer. Also, my father died at 57 from lung cancer but also suffered from diabetes, kidney failure, heart disease and the exact same stomach issues most of his life like mine and he went undiagnosed his whole life. They could never figure out his bloating/gas issues. I hope its not too late to change things. I'm starting the gluten free diet this weekend when I get a chance to do some heavy shopping.

I am new to this website and not sure I am even navigating it right. However, I can say this...I have done so much research on stomach issues and hands down--the research all points to a gluten free diet. When I first switched to gluten free, I thought it was the end of the world. (I love pasta and pizza). Let me tell you it is not. There are so many substitutions. Everything has a substitute...yes, even pizza. Some brands are better than others, and believe it or not...some...you can't tell the difference. Really, try it. Most importantly, don't give up. Find an alternative eating store. A doctor recently told me that the minute I eat gluten again, it will erase most of the good I have done. So good luck. Don't forget, gluten free diets are used for many health issues.

nora-n Rookie

I would avoid milk at this stage too.

nora

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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