Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Officially Diagnosed, But The Symptoms Fit

lucy lou

Recommended Posts

lucy lou Newbie
lucy lou
Posted

I'm a newbie and not a computer queen so please bear with me. Was wondering if anyone out there has heard of someone developing gluten and lactose intolerance later in life brought on in part by stress? Also, is it possible since my one test was negative it was a false negative as I had already cut out most all gluten and dairy. Thought I was on the right track, but seem to have a relapse since a month of major stress at work again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ivanna44 Apprentice
Ivanna44
Posted
I'm a newbie and not a computer queen so please bear with me. Was wondering if anyone out there has heard of someone developing gluten and lactose intolerance later in life brought on in part by stress? Also, is it possible since my one test was negative it was a false negative as I had already cut out most all gluten and dairy. Thought I was on the right track, but seem to have a relapse since a month of major stress at work again.

Hi Lucy Lou,

First off, Welcome to the forum boards. :)

I, myself am 44 years old, and just finished this year, going through what was probably one of my more stressful times. I am just 2 months in now, into the gluten-free lifestyle, by doctor's orders. I don't have an official celiac diagnoses, but through blood work tests and dietary responses, my family doctor, feels 98% sure that I am gluten intolerant. She wants me to continue the gluten-free diet for another 2 months, then retest the blood work to see if some factor #s go down.

I don't think anyone "truly" wants to be gluten intolerant or lactose intolerant for that matter. It's extermely hard at times to deal with the "no more" for life factor. Especially as they (gluten and lactose) seem to be in so much food/ and everyday items. Gluten is also found in things like shampoos, lotions, makeup etc. But, you may already be aware of that. :)

There have been a quite a few people whom are lactose intolerant in addition to the gluten intolerant or celiac, something to do with the lactose intreferring with the "healing" that happens when the gluten is removed. I've seen some postings that state, that some people have to remove lactose too, they are able in most cases (I think) to add it back in later on, after a few months of being gluten-free . However I am by far, no, medical expert on it. I'm just a lady, whom is dealing with being newly diagnosed as needing to be on the gluten-free diet. As for the false negatives, there seems to be a # of people here, whom either show negative results, or simply can't get their doctors to "even" test for the possiblity of celiac or gluten intolerance. :angry: I think you need to simply ask yourself. Do you physically and or mentally, feel better? It's your body, you would know if gluten or lactose affects it and makes you ill.

I hope some of the "stress" factors in your life, deminish, none of us wants stress.

hugs.

  • 2 weeks later...
pele Rookie
pele
Posted

Hi Lucy

I'm surprised therre haven't been more replies to your questions. Are you still checking in and reading this?

Yes, you can develop celiac later in life. There is a great one hour video on youtube.com that says the most common demographic being diagnosed are women in their 40s and 50s. If you go to You Tube and search celiac disease you will find this video from U of Calif. It is well worth watching. I also recommend the book Celiac Disease, A Hidden Epidemic by Dr. Peter Green, and check out Dr. Kenneth Fine's enterolab website. By the time you have read through the book and website two or three times, you might know more than you doctor about gluten intolerance and celiac disease.

Dr. Fine says the best diagnostic tool is seeing improvement on a gluten-free diet.

Good luck and write again.

lucy lou Newbie
lucy lou
Posted
  • Author

Thanks so much for the great information, pele! I have been sort of discouraged, but still read as much as I can on the forum page even though I've heard only from a couple people. I've continued the quest for more education on the subject and have certainly learned alot at this site. I sure appreciate your response.

Welda Johnson Newbie
Welda Johnson
Posted

Hi Lucy Lou,

I'm a 63 year old female who has had symptoms of Celiac since age 8. In the 1960s I had asthma so bad the doctors said I would probably be bedridden by the age of 25, so I had scratch tests for allergies and shots for the next 3 years. Little improvement. In the 1970s I finally started doing my own elimination tests of foods, since I had spent so much money already on doctors and specialists. I breathed easier when I cut out all grains, and all milk and dairy products, but I always went back to eating those foods again, and I usually was sick (many hospitalizations followed). In the 1980s I tried to stick to the diet, but kept going back to forbidden foods. I got a breathing machine and took Prednisone and lots of asthma medication each day. By the 1990s I was sticking to the diet better and feeling better. In 2001 I had a colonoscopy (my father died of colon cancer) and the nurse told me the name for my food allergies = Celiac. I got on this site and my life changed drastically.

I learned about casein, whey, maltodextrin, modified food starch, etc. and eventually even cut out eating meats, since I seems to be sensitive to grain-fed animal products. In 2003 I became primary daycare provider for my newly-born grandson and learned all about how to keep children on the diet. I put together a booklet called, "Grandma, Can I Eat this?" and a recipe booklet for Celiacs. I gave my sister, brother, and three grown children Enterolab test kits and learned my sister has it, my brother doesn't, and my kids didn't take the tests. I bought the full-spectrum test kit for my grandson and learned he is intolerant of all grains and all milk and dairy. That test was about $400 but the tests for gluten intolerance only were about $100 each.

I wish you well on this new journey, and want to tell you to please email me at welda@att.net if you'd like more information or have questions. I have been blessed to have this disease, and feel better than ever. Welda Lou

lucy lou Newbie
lucy lou
Posted
  • Author
Hi Lucy Lou,

I'm a 63 year old female who has had symptoms of Celiac since age 8. In the 1960s I had asthma so bad the doctors said I would probably be bedridden by the age of 25, so I had scratch tests for allergies and shots for the next 3 years. Little improvement. In the 1970s I finally started doing my own elimination tests of foods, since I had spent so much money already on doctors and specialists. I breathed easier when I cut out all grains, and all milk and dairy products, but I always went back to eating those foods again, and I usually was sick (many hospitalizations followed). In the 1980s I tried to stick to the diet, but kept going back to forbidden foods. I got a breathing machine and took Prednisone and lots of asthma medication each day. By the 1990s I was sticking to the diet better and feeling better. In 2001 I had a colonoscopy (my father died of colon cancer) and the nurse told me the name for my food allergies = Celiac. I got on this site and my life changed drastically.

I learned about casein, whey, maltodextrin, modified food starch, etc. and eventually even cut out eating meats, since I seems to be sensitive to grain-fed animal products. In 2003 I became primary daycare provider for my newly-born grandson and learned all about how to keep children on the diet. I put together a booklet called, "Grandma, Can I Eat this?" and a recipe booklet for Celiacs. I gave my sister, brother, and three grown children Enterolab test kits and learned my sister has it, my brother doesn't, and my kids didn't take the tests. I bought the full-spectrum test kit for my grandson and learned he is intolerant of all grains and all milk and dairy. That test was about $400 but the tests for gluten intolerance only were about $100 each.

I wish you well on this new journey, and want to tell you to please email me at welda@att.net if you'd like more information or have questions. I have been blessed to have this disease, and feel better than ever. Welda Lou

lucy lou Newbie
lucy lou
Posted
  • Author

Thanks so much for the info Welda. I have been trying myself to stay gluten free and feel better than before, but still am set off by something at least once a week and not sure what. Maybe I need to look into maltodextrin and some of the other things you mentioned. I am very interested in that Entero lab test and will e-mail you with my additional questions. Thanks again!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.