Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accidently Glutening Myself?


mills3280

Recommended Posts

mills3280 Newbie

I


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, a few things I see from your diet description are as follows:

Fries from McDonald's - I've read on this board that they are not gluten-free.

Dairy products - Many who start the gluten-free diet need to avoid dairy, at least until the gut heals. This can take months, but some expect to always be off dairy.

Mixed Nuts - Many on this board have mentioned getting glutened by those.

Also corn, nuts, and nightshades are commonly a problem, especially at first.

I do know Ore-Ida unseasoned frozen fries (like the shoestrings) are gluten-free.

If you have any wooden spoons from before going gluten-free, toss them out. Same goes for cutting boards, non-stick pans, cast iron pans, and toasters/toaster ovens. Basically anything that isn't a smooth surface, like stainless steel, glassware, etc. Things you can easily get squeaky clean.

Oh, and do check your skin/hair are products, dish and laundry soaps, fabric softeners, etc.

I'd also recommend a good methylcobalamin (B12) supplement. The sublingual type is the best, and of course make sure it's gluten-free. Avoid cyanocobalamin, as that one is actually made with cyanide :blink::o

I hope you get it figured out soon!

Welcome to the board!

mills3280 Newbie

Thanks.

I usually try and read the labels on the mixed nuts pretty well.

The dairy thing is interesting. Cause I also have been eating a lot of beans which makes me have gas to say the least. I wonder if that along with the dairy could be making things heal slower in the gut.

Anyone else have any insight into if that could be slowing down the healing process?

Much appreciated.

mills3280 Newbie

P.S. So does that mean I should avoid Lactaid milk along with yogurts/cheeses? Or is Lactaid okay?

Ursa Major Collaborator
P.S. So does that mean I should avoid Lactaid milk along with yogurts/cheeses? Or is Lactaid okay?

In order to be casein free (which is worth a try to see if it helps) you have to eliminate ALL dairy, including lactaid milk and cheeses as well as yogurt.

What I noticed when looking at your menu was, that you are no getting enough fat. In fact, you hardly get any at all!

Our bodies need fat to function. And I mean saturated fat (not hydrogenated fats, though) like fat from meats (lard is one of them as is beef tallow and chicken fat, those are, contrary to popular belief, healthy fats). Another healthy saturated fat is coconut oil. Make sure you get the non-hydrogenated, cold pressed kind if you are going to try it.

You are definitely not getting enough omega 3 fatty acids. Fish oil (cod liver oil if you aren't getting a lot of sun) is the best source.

Every cell in our body needs fat. If you don't get enough fat, your body can't function properly.

Also, unless you are intolerant to them, eggs are very healthy. And again, it is complete nonsense that it is unhealthy to eat more than three eggs a week. You could eat four a day and it wouldn't be too much.

Eggs also are a great source of vitamin B12.

mills3280 Newbie
In order to be casein free (which is worth a try to see if it helps) you have to eliminate ALL dairy, including lactaid milk and cheeses as well as yogurt.

What I noticed when looking at your menu was, that you are no getting enough fat. In fact, you hardly get any at all!

Our bodies need fat to function. And I mean saturated fat (not hydrogenated fats, though) like fat from meats (lard is one of them as is beef tallow and chicken fat, those are, contrary to popular belief, healthy fats). Another healthy saturated fat is coconut oil. Make sure you get the non-hydrogenated, cold pressed kind if you are going to try it.

You are definitely not getting enough omega 3 fatty acids. Fish oil (cod liver oil if you aren't getting a lot of sun) is the best source.

Every cell in our body needs fat. If you don't get enough fat, your body can't function properly.

Also, unless you are intolerant to them, eggs are very healthy. And again, it is complete nonsense that it is unhealthy to eat more than three eggs a week. You could eat four a day and it wouldn't be too much.

Eggs also are a great source of vitamin B12.

Copy that. I have no problem adding eggs to my diet. in fact I'll probably do that for breakfast since i'll be cutting out the yogurt and smoothies.

Are Egg beaters okay or is something bad added to them?

Not a big fish fan. Would fish oil the the vitamin/pill form suffice?

Cherry Tart Apprentice

Hello! I just wanted to add that you really want to watch the instant/powdered mashed potato ingredients too. Manufacturers often add wheat to make the mash smooth and thick. Just a thought ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator
Copy that. I have no problem adding eggs to my diet. in fact I'll probably do that for breakfast since i'll be cutting out the yogurt and smoothies.

Are Egg beaters okay or is something bad added to them?

Not a big fish fan. Would fish oil the the vitamin/pill form suffice?

If you just use normal eggs you KNOW that they are okay! I wouldn't trust egg beaters.

The Carlson's cod liver oil doesn't taste fishy and is the best there is. If you take the pills, you would have to take a lot to get enough. You would only need to take one tablespoonful once a day. Get the lemon flavoured one, truly, it is fine. I have tried other cod liver oils and they were so gross that I couldn't handle taking them more than a few days. But I've been taking the Carlson's oil for over two years now, and I am still taking it.

mills3280 Newbie

Well I'll give the eggs and fish oil a chance.

any thoughts on the beans and mexican food? I dont make it spicy or anything like that, but it still does cause gas, if the gut is still recovering should I ease of that stuff or is it fine?

Ursa Major Collaborator
Well I'll give the eggs and fish oil a chance.

any thoughts on the beans and mexican food? I dont make it spicy or anything like that, but it still does cause gas, if the gut is still recovering should I ease of that stuff or is it fine?

Some people just do terrible with beans. I have never been able to eat them without getting terribly bloated and gassy (much more so than most people).

If you find that something is bothering you, it would be wise to not have it for a while before trying to reintroduce it.

  • 2 weeks later...
mills3280 Newbie

So I've cut out the dairy and have been eating turkey bacon w/ eggs in the morning instead of my smoothie. I couldnt find the fish oil recommended so i've been taking the pills for now.

I feel like ive had a bit more energy and the few aches and shooting pains i was having seem to be gone.

i'll keep updating.

babysteps Contributor
Well I'll give the eggs and fish oil a chance.

any thoughts on the beans and mexican food? I dont make it spicy or anything like that, but it still does cause gas, if the gut is still recovering should I ease of that stuff or is it fine?

I love eggs.

I don't eat that many beans (more a rice person myself), but have read on these forums some find beans easier when they are soaked for at least 24hrs. If using canned, drain & rinse them well. apparently many beans have a coating that can be hard (for some at least) to digest, the soaking and rinsing helps deal with that before it hits your gut. Worth a try!

you may want to go easy on spices until your system really stabilizes. You could try a 3-day holiday from spicy food, then see how your body reacts when you re-introduce it. Some folks find herbs (oregano, basil, anything that was a leaf, not a seed or bark) easier to tolerate but still plenty tasty.

good luck, hope you feel better & better!

loraleena Contributor

Please make sure your turkey bacon is gluten free

  • 5 weeks later...
AshleyRay Newbie

This is my first time on the forum. I was diagnosed with severe celiac a year ago. My docs claimed that I had the worst mal-absorption they had ever seen. It took 12 years for my diagnosis - many doctors, procedures, diagnosis', etc. I finally sought a more "natural" practitioner who caught it.

So... my take. I have not willingly touched gluten since the diagnosis. We do not have gluten in the house and I avoid place with airborne (yes, airborne can get me). Early into the diagnosis I was sick for days with even cross contamination. Along with the gluten problem I have an allergy to casein. Casein is a common "side allergy" to the celiac disease. I have stayed off of casein for a hear as well. In the beginning I was eating rice (plain) and a steamed vegetable. I was miserable and it took almost ten months before I saw an improvement. You have to be strict! You have to find all underlying problems secondary to the celiac. I still can not eat things with "a lot of flavor." The stomach takes a long time to heal and acts like an open wound with other irritants. Keep a diary of all that you eat and the way you feel after meals. Cut your diet down and introduce new (common allergens) foods. Give it time and DO NOT cheat. I have been cross-contaminated several times and suffered for weeks. Also... check your shampoo! I realized (months into the diet) that my favorite shampoo had wheat protein. It has helped the hair loss but not cured the problem.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,965
    • Most Online (within 30 mins)
      7,748

    Cbear
    Newest Member
    Cbear
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.