Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Get Sick From Wine?

RunnerGirl4

Recommended Posts

RunnerGirl4 Newbie
RunnerGirl4
Posted

My doctor put me on a gluten-free diet 2 weeks ago. Last night I ate out at a restaurant with co-workers and I had fish, veggies and other non-gluten foods. I also had wine (2 glasses - which is normal for me). I've been sick all day today. I don't think there is any food left in me. I felt nauseas, couldn't focus or concentrate and was so tired I left work early to come home and sleep. I really did my best to stay away from the gluten foods at dinner. Do you think I am experiencing cc or do you think it could be the wine? I know wine is gluten-free, but I read in the book "Dangerous Grains" that you should avoid alcohol when your gut is healing. Does anyone have any experience with this? I'm new to this and would love to read your thoughts. Thanks in advance!! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaw Community Regular
mamaw
Posted

It could be the sulfates used to kill the bacteria in the wine processing. I can't drink any wine that has been processed in that manner. There are three or four wines Organic that does not use that process... Could be alot more that I don't know about.hth

gfp Enthusiast
gfp
Posted

Since 2 glasses is normal for you I wold very strongly suspect that you got cross contaminated.

Indeed with or without the wine this is an ever present risk when we eat out.

darlindeb25 Collaborator
darlindeb25
Posted

Could have been either! I can't drink wine, or any alcohol, for that matter. Did you check to see if the restuarant knew what they were doing when cooking gluten free? If they are well known for gluten free food, then it probably was not the food, if you are just thinking you ordered something that should be gluten free, then probably you are dealing with a cross contamination issue. Many celiac's can not drink wine though.

Leslie C. Newbie
Leslie C.
Posted

My doctor told me to stay away from wine for at least a year. This is how long it will probably take for my gut to heal. He also told me to try to avoid peanuts, dairy, and soy. Even though they don't contain gluten, they can aggrevate the gut.

RunnerGirl4 Newbie
RunnerGirl4
Posted
  • Author

Thank you so much for your thoughts. I think I need to let waiters know I'm on a gluten-free diet. I didn't want to make a big deal out of it because I was with co-workers.

Ugh...this is hard and I don't like feeling socially "odd" and restricted because of this diet!

I'm avoiding wine for the next several months at least too...and I'll look for the organic wines if I go back to drinking it. I really appreciate your help!

babysteps Contributor
babysteps
Posted
Thank you so much for your thoughts. I think I need to let waiters know I'm on a gluten-free diet. I didn't want to make a big deal out of it because I was with co-workers.

Ugh...this is hard and I don't like feeling socially "odd" and restricted because of this diet!

I'm avoiding wine for the next several months at least too...and I'll look for the organic wines if I go back to drinking it. I really appreciate your help!

I am getting used to giving 'the speech' - to the waiter. Check Open Original Shared Link for a helpful 'restricted diner' protocol.

I admit I don't usually contact the chef, but I do note that I'm gluten-free when making reservations, or if someone else has made the reservation I call separately to say "one of the diners on the Jones reservation Thursday 7:30pm for 6 people is gluten-free". Opentable for reservations works well, you can include a note about gluten-free and it seems to get to the server more reliably than when noted by phone.

Gluten can be anywhere, so if the restaurant doesn't know you're gluten-free, even if you think you're ordering just meat and veggies, you can almost guarantee being glutened.

I usually say something like "I must eat gluten-free, that means no wheat or flour, no barley, and no rye or any related products, like soy sauce and miso" (yes, there are some gluten-free soy sauces and perhaps even gluten-free miso, but if the kitchen is that aware they'll let me know!). I also let the server know that I am open to substitution and that it's okay if it takes some time to double check via back-and-forth with the kitchen.

Don't worry, it *is* possible to eat out & not be glutened! After the first few times you won't even feel self conscious giving your 'speech' in front of a group :)

You will also get good at 'guessing' which menu items are most likely to be gluten-free or at least easily adjusted to be gluten-free. And you'll know that when the server says the meatballs are gluten-free because no gluten ingredients are in the menu description, that the server is probably wrong and please could they check with the kitchen! If you like to sample others' dishes, you will have to ask whether they are gluten-free or not (easiest done after the dishes are brought to the table, unless the other diners want gluten-free too).

On wine, it may or may not have been the culprit, but if you are in early stages of healing it could have exacerbated the reaction. If it is easy to give up for 6 months, go for it. If you really enjoy wine with your meals, you can always try testing every couple months or so...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


katebuggie28 Apprentice
katebuggie28
Posted

I tried the wine route when I had to give up the beer. I was soo sick all day and night. It was terrible.

gfp Enthusiast
gfp
Posted
Don't worry, it *is* possible to eat out & not be glutened! After the first few times you won't even feel self conscious giving your 'speech' in front of a group :)

It is possible but its always pot luck! We make our own luck.. as you describe but it still involves a lot of luck not to get glutened if you eat out regularly.

Sorry it's tough but ...

Bucsfan11 Rookie
Bucsfan11
Posted
My doctor put me on a gluten-free diet 2 weeks ago. Last night I ate out at a restaurant with co-workers and I had fish, veggies and other non-gluten foods. I also had wine (2 glasses - which is normal for me). I've been sick all day today. I don't think there is any food left in me. I felt nauseas, couldn't focus or concentrate and was so tired I left work early to come home and sleep. I really did my best to stay away from the gluten foods at dinner. Do you think I am experiencing cc or do you think it could be the wine? I know wine is gluten-free, but I read in the book "Dangerous Grains" that you should avoid alcohol when your gut is healing. Does anyone have any experience with this? I'm new to this and would love to read your thoughts. Thanks in advance!! :)

Hey! I too experience symptoms like that when I drink wine, or any alcoholic beverage for that matter. I usually would drink a glass or two of wine with dinner time to time, and when I started the gluten free thing I could not handle wine anymore, not even one glass. I am also having problems with gluten free beer(I have a post I started about that topic on this forum). I am not sure if its because as celiac's our guts cannot handle the alcohol or what, but I get sick nonetheless from it. Also, it might be CC because eating out can be dangerous, even if you order a gluten free meal, such as fish and veggies because the fish could have been cooked in the some place as something that was breaded etc. I hope you find out what is wrong and good luck! My best wishes, Sean.

ShayFL Enthusiast
ShayFL
Posted

Hey RunnerGirl....your signature could be mine.

I cannot tolerate wine. It gives me ocular migraines. Scary. I avoid at all costs.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. GlorietaKaro
      - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Thanks to both of you for your responses! Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In t...
    2. trents
      - trents replied to GlorietaKaro's topic in Super Sensitive People
      3

      Am I nuts?

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference...
    3. lalan45
      - lalan45 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      29

      My journey is it gluten or fiber?

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things ...
    4. Russ H
      - Russ H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Anti-endomysial Antibody (EMA) Testing

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled...
    5. Scott Adams
      - Scott Adams replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Just diagnosed today

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,806
    • Most Online (within 30 mins)
      7,748
    IleneG
    Newest Member
    IleneG
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      My journey is it gluten or fiber?

      By lalan45 · Posted

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      Anti-endomysial Antibody (EMA) Testing

      By Russ H · Posted

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      Just diagnosed today

      By Scott Adams · Posted

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.