Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Inpute Required: Time To Recover

roddi

By roddi
in Coping with Celiac Disease

Recommended Posts

roddi Rookie
roddi
Posted

Hey everyone, I am curious as to your thoughts/knowledge on this.

When you ingest gluten, and you do damage to your intestines... let's say we rate this on a scale of 1-10

10 being you're at your best

1 being horrible feeling

say i ingest gluten, .. and i feel like a #4.. the next few days, i assume i work up from 4 to 5 to 6 to 7 etc?

Meaning.. if i was feeling tip top for 2 weeks, ate gluten... will i feel horrible for days?

I ate this darn Stagg Classic Chili .. it said no gluten.. ive been ill for 3 days off and on.. the week before life was FABULOUS.. so im wondering.. gee, do i have to do that road to recovery again where i slowly take time to heal and get back to normal..

your thoughts...

thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

When I have gluten the worst day for me is usually the 7th day after.

A few weeks ago I by accident had something I thought was ok but turned out not to be. Before I had it I was feeling perfect ...I felt it my body react to the gluten almost instantly so I stopped eating it. The days after I proceeded to get worse. Some people have reactions worse then others.

The longer I am off of gluten the more I notice I have a stronger reaction to it whenever I have it.

I don't know how your body reacts to gluten so it could be different but my experience is I start feeling better after about a week to a week and a half with the 7th day being the worst.

When I have gluten ..the days following are usually on again off again nausea.

Also, do you take enzymes? Enzymes are very good to help your body absorb and digest food. Enzymes can help with nausea and stomach problems to.

Hope you feel better and if I can help you at all I'd be glad to help:)

roddi Rookie
roddi
Posted
  • Author

thanks so much. im baffled how 7 days after eating gluten, that day, the 7th is the worst, i figured the day after would be.. oh well..

im more upset at trying to figure out what i ate..

btw.. do spicy foods generally not work well with you.. curious

thanks for your reply!

rob

KaitiUSA Enthusiast
KaitiUSA
Posted

Spicy food is usually fine with me when I take enzymes to help digest the food. I haven't tried eating anything without the enzymes since I found out how much better I feel after eating with taking them.

Could there have been something that could have been cross contaminated?

Or do you use any shampoos, or something that would have gluten in it? If you do get things like that on your hands then pick up food and eat it you could be getting trace amounts of gluten in your system.

Have you noticed if you get sick after spicy foods or anything else in particular? The best thing to do even if it says gluten-free is to listen to your body.

If you aren't on enzymes I highly recommend them...I know a great gluten-free brand if you need a recommendation.

Again, if I can be of any more help let me know:)

cmom Contributor
cmom
Posted

I would be interested in knowing the brand of enzymes. I have never used them but think they might help. Also, what dosage do you take? Thanks.

KaitiUSA Enthusiast
KaitiUSA
Posted

Enzymatic Therapy is the brand...the have everything they are free of written right on their products(they are gluten-free) I get mine at the Vitamin Shoppe but you can get them at health food stores too I think. I usually take 2 right before I eat. If I get feeling bad at all I usually take 2 extra. You can take them anytime you feel like you need to and with my experience I feel better very quick. There is no limit on how many you can have. They are called Completegest (by enzymatic therapy) and are very small capsules. I have no problem swallowing them and I am not a good pill swallower but these are small and no problem.

Hope this helps for you as it does for me:) If you need more info let me know and I'd be happy to give you more info.

rmmadden Contributor
rmmadden
Posted

Interesting to hear how long it takes to feel well again after ingesting gluten. I am a new celiac disease patient and am frustrated in how long it takes me to feel better. I have started a food log and been reading the labels of everything including my shampoo, deodorant, etc. and It takes me days to get over a gluten attack. I was under the assumption that the recovery time would be a few days after getting "Glutened" so I guess your info tells me that I must be more patient in my expectations

I do take enzymes (Proactazyme Plus from Nature's Sunshine which I double checked with the company to make sure they are gluten-free) and they do help you digest your food better (and absorb the nutrients).

Thanks for your input!

Cleveland Bob :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mela14 Enthusiast
mela14
Posted

I usually start to feel sick right away...within the hour. Then the gut gets progessively worse. About 4 or 5 hours later iit is totally sour, sore and distended...Sometimes the headache and body pains start too. It usually takes about 3-4 days for everything to simmer down.

I haven't started taking enzymes yet so I can't comment on that...althought I did buy them and will start when things simmer down!

Good luck!

gypsy Newbie
gypsy
Posted

I usually start to feel stomach/abdominal pain and bloating within about 3 hours of gluten ingestion. I then have pain, bloating and cramping for about 3 weeks afterward. It's enough to keep me pretty vigilant about avoiding gluten!

gypsy Newbie
gypsy
Posted

Nothing that I know of will stop the reaction until it runs its course in me; however, I have found that taking Pepto Bismol tablets and using a heating pad on my abdomen helps relieve the pain.

I hope you find something that helps you.

Jeap Newbie
Jeap
Posted

I get to feeling bad pretty quickly. Probably within an hour or two. It usually last a few days, say 3 days.

I ate some gluten-free Taco's, mix was gluten-free, Sat a week ago and I was sick until Wed night of that week. I had a gut ache (I stopped calling them stomach aches, it's not my stomach) until Wed night. I did not eat much, only very safe stuff (baked potato) until Wed night and then I was hungry. Needless to say, I do not want any more taco meat any time soon.

I also take pepto bismol, it seems to help some. It may only help my head, but that is often a problem too.

I am interested in the enzymes. Do they have any negative side effects?

Thanks :D

KaitiUSA Enthusiast
KaitiUSA
Posted

I have no known side effects of enzymes. They really do wonders for me. They help your body break down and digest the food and then absorb the food. They really help cut back on nausea and stomach and gut problems. Hope this helps :D

mela14 Enthusiast
mela14
Posted

I started Essential Enzymes last night. they didn't bother me and I think they helped a little. I may have to take 2 with dinner especially if it is something a little heavier. last night I had salmon and should have taken 2.

i did not take Zelnomr yesterday which I have bvenn on for a few months. I am trying to go more natural. If the enzymes do the trick then I won't go back on the zelnorm.

good luck!

Professor Rookie
Professor
Posted

Hi,

I just went online to look up this gluten-free chili, because we have a gluten-free home, and my family complains that they can't find gluten-free chili in the grocery store . . . I "Googled" the chili you mentioned, and the label (link below) says "modified food starch." There's your gluten. Modified food starch can include corn starch modified with wheat, etc -- lots of combinations under that heading. I know because I've called companies asking. You see it in EVERYTHING now, from some brands of yogurt to lunch meats. BEWARE.

I only buy "one-ingredient foods" so I know that there is just one thing (i.e., a piece of chicken, or some ground beef, or a tomato, etc). Then I make my own foods (including chili) from those one-ingredient foods.

Open Original Shared Link

Patty

artmeg55 Newbie
artmeg55
Posted

I've been diagnosed with celaic for 1 1/2 years. It seems like forever w/o real bread and I reaaly miss real desserts. As closely as I watch my diet, every once in a while something triggers my stomach and it's back to the old days of feeling sick all the time. I've had fairly bad symptoms for about 10 years, but tried to hide them. I'd be up half the night with a range of nasty symptoms and still go to work.

But it's REALLY frustrating to get sick now when I work so hard not to. The problem is that some foods take longer than others to get throught your system, so it's easy to blame the wrong item. I've pretty much sworn off anything heavily processed like lunchmeat, ham, bacon, etc. The fresher the better.

celiac3270 Collaborator
celiac3270
Posted

No really bad side effects-- but when I tried enzymes awhile ago (Lipram CR-10), they made me really nauseous and queasy for hours after I took them sometimes for a day or two. I stopped taking them and that stopped. I checked again to make sure and they were gluten-free. If you have bad side effects, you just stop taking them and they go away. But most people extol the power of enzymes :D

  • 4 years later...
Tra cy Newbie
Tra cy
Posted
I've been diagnosed with celaic for 1 1/2 years. It seems like forever w/o real bread and I reaaly miss real desserts. As closely as I watch my diet, every once in a while something triggers my stomach and it's back to the old days of feeling sick all the time. I've had fairly bad symptoms for about 10 years, but tried to hide them. I'd be up half the night with a range of nasty symptoms and still go to work.

But it's REALLY frustrating to get sick now when I work so hard not to. The problem is that some foods take longer than others to get throught your system, so it's easy to blame the wrong item. I've pretty much sworn off anything heavily processed like lunchmeat, ham, bacon, etc. The fresher the better.

Attacks seem worse since eliminating if gluten gets in diet???

Does this have to do with healing? Does it take 2 years to mend???

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,109
    • Most Online (within 30 mins)
      7,748
    Kathy001
    Newest Member
    Kathy001
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • RMJ
      need help understanding testing result for Naked Nutrition Creatine please

      By RMJ · Posted

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      nothing has changed

      By wellthatsfun · Posted

      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.