Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Feller On Board


joopie

Recommended Posts

joopie Newbie

hello,

first let me say i have visited this site before and it seems like a warm croud- so, thanks in advance for sharing your thoughts!

i have had many unexplained health issues for many years- recently switched to a integrated medicine w/ a naturopathic doc- just had some blood work done- doc says celiac disease... i am hoping this might be the answer to my problems - i have adjusted my diet to be gluten free-below are results:

Endomysial Anibody, IgA in a reference range from 40 - 350 result = 330 - negative?

Tissue transglutaminase, IgA w/ negative range <20 result = 37 positive.

Gliadin IgG w/ negative range <20 result = 2 negative

GliadinIgA w/ negative range <20 result = 4 negative


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Hi and welcome. Those are positive results as far as I can see. You have come to a good place for info and support and do feel free to ask any questions you need to. Do feel free to just vent also, we have all been through it and do understand the anger and frustration. There is a lot to be learned at first but you will get the hang of it. I hope you are feeling better soon.

ksymonds84 Enthusiast

Tissue transglutaminase, IgA w/ negative range <20 result = 37 positive.

Hello and Welcome to the board! You've found a great place to learn all you can about celiac. The tissue transglutaminase test is a big one for diagnosing and your being positive sounds like the gluten free diet will make a difference.

joopie Newbie

thank you ravenwoodglass and ksymonds84 fro the response!

i am doing as much research on the gluten subject as i can.

i am also sensitive to sugar- my glucose borders on pre-diabetic... i have always been lean in build so i need to be careful not to go catabolic on the new diet.

this change will prove challenging- but, i am fortunate to have a very supportive wife who has already making some incredible gluten free meals- and a beautiful 5 year old son to keep my spirits up.

thanks again- i look forward to feeling better, learning more and helping others if i can,

B) , joopie.

lizard00 Enthusiast

Welcome to the gluten-free life!!! It's really not so bad! In fact, if you feel better, it's GREAT!

Having a supportive spouse (or other family members) is really essential, I think, to being successful with adapting to your new lifestyle. My husband has been great since the beginning, and I don't have an official diagnosis. I hear other people who's families are downplaying the importance of being gluten-free, and it makes a huge difference. My husband took the time to find a gluten-free cookie recipe to surprise me with. It's not so much the cookies (they were yummy!) but the fact that he made the effort to find the recipe and make them that really make me grateful for his support.

Feel free to ask any question, be angry, whatever. This forum is absolutely wonderful and full of people with a wealth of knowledge.

RiceGuy Collaborator
i am also sensitive to sugar- my glucose borders on pre-diabetic... i have always been lean in build so i need to be careful not to go catabolic on the new diet.

Don't be surprised if you find your weight going up a bit. Malabsorption has a tendency to keep a celiac thin (though not for all of us). Also, I wonder if leaky gut issues could be responsible for blood sugar problems, as it seems to me sugars would more easily and quickly get into the bloodstream. Some have reported that their diabetic symptoms vanish once gluten-free for awhile.

joopie Newbie

lizard-

you are so right about a supportive spouse - very important! she has already put together some things from gluten free recipes- i will have to post some pics of the goodies she is already making.

hey riceguy-

i do hope you are right about the removal of gluten and its possible effects.

-thinking positive and sticking to the plan!

B) , Joopie.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



joopie Newbie

celebrating first week gluten free - accomplished!

chocholate/chocolate chip muffins for everyone- compliments of my wonderful wife!

(gluten free of course)

B) , joopie

my pic won't post? :(

004.webp

psawyer Proficient
my pic won't post? :(

004.webp

The %7Boption%7D tag is not enabled on this board. You can create a link on which people can click using [ url ].

As in click here.

Click the BB Code Help button at the bottom right of the window when composing a post for specifics.

Congratulations on your first week! The muffins look lovely.

joopie Newbie

thanks Peter for the info and congrats!

it really is a big change! my wife is helping me huge! sippin' on some wine right now- normally it might be a micro-brewed beer....

B) , J.

Karli Rookie
thanks Peter for the info and congrats!

it really is a big change! my wife is helping me huge! sippin' on some wine right now- normally it might be a micro-brewed beer....

B) , J.

I am a newbie, too. Good to hear the positive response/feed back you are getting from other members... I am getting positive support of my husband, too. He does a lot of the cooking... and now that he understands the cross contamination issue... he has revamped the kitchen cupboards. He still has his store bought bread and crackers ... but for baking we are convertint to glutin free. My sister got her 'test' after I showed positive for Celiac... small bowel involvement and blood work too... So I have given my cake mixes etc. to her... Fortunately, I had discovered on my own that baked goods tended to bother me... Frankly, I have very few symptoms.... so this all came a shock to me....

As I mentioned, my sister got her test right away.... other family members are dragging their feet... any hints on how to urge them to the doctors office.... (brother, sons) my double cousin is having her blood work done this week.... It seems the women are taking this more seriously...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,615
    • Most Online (within 30 mins)
      7,748

    AliciaBell
    Newest Member
    AliciaBell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • itsdunerie
      Dang......did it again and yeah I should admit I am 63 with clumsy phone thumbs. I started feeling better quickly and a doctor a year later said I had to eat  poison (gluten) every day for a month so he could formally diagnose me and NO FREAKING WAY. I couldn't then and can't imagine putting my body through that crap (no pun intended) on purpose ever again.  Why ingest poison for a month to have some doctor say Hey, All you Have To Do Is Never Eat poison Again.. 
    • itsdunerie
      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.