Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Make You Spacy?


munkee41182

Recommended Posts

munkee41182 Explorer

I've noticed that I've been spacey (very spacey) lately....almost where at times I feel like a real idiot. I know it's not nice to say things like that about yourself....but since I just started going back on the diet....I'm kind of thinking....was me being a "space cadet" linked to going off my diet???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Gluten can absolutely make someone who has celiac disease or intolerant spacey. We often call it brain fog. I was aware of it to some extent in myself but saw it even more clearly when I had started to get well and my head cleared up. I could see it in my sister when I was trying to encourage her to get tested. She was really incapable of making rational decisions sometimes. I rarely see her in person and could really tell the difference as she healed when I talked with her over the phone. I could tell that she was thinking more clearly. It is caused not only by the effects of gluten itself but also can stem from the nutritional deficiencies that come with a damaged intestinal tract.

elonwy Enthusiast

I describe it as "gluten makes me dumb". I'm normally a sharp, smart person. On gluten, I've got the IQ and attention span of a puppy. One of the most frustrating parts of the disease for me, in all honesty.

munkee41182 Explorer

Could explain why my fiance looks at me weird when i say something....probably because I said it about 5 times already. There's been times when I haven't had a drink of alcohol and he's though I was drunk as a skunk talking to him about something.

kbtoyssni Contributor

This is the worst part for me, too. I'm usually very sharp and on top of things, but when I get glutened, I sometimes forget names of people I've known for ages and can't follow a conversation. It's embarrassing.

jerseyangel Proficient

I refer to it as "gluten stupid" :D

I get clumsy, foggy-headed and sometimes words don't come out of my mouth right...kinda like my tongue is too big. Definately embarassing.

munkee41182 Explorer

Yes I definitly hear you on the embarrassing part....sometimes I got so frustrated that I would stomp my feet and make a loud noise and just walk away from the conversation I had with my fiance....then he'd think that he did something wrong. Poor guy. Not only does he think hormones are a crock....he's going to think that this new revelation is a crock too. lol


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice

Jami, I just read your other thread, about denial.... doesn't it scare you at all that this kind of thing happens to your ability to think? :o You can add a third symptom to your list! :)

My main motivation in staying strictly gluten free is the number gluten does on my head. I could live with the digestive symptoms, but I hate the way I feel if I accidentally get gluten, spacy, unable to concentrate, forgetting words, depressed...

Send your fianc

munkee41182 Explorer

He now thinks my new revelation (gluten stupid revelation) is legit. Depression....never though about that. We went out for breakfast two-three weeks ago, I had some bread and all I wanted to do when I got home was go to bed. 10pm last night he wanted me to call my primary to find a new GI doc. I moved 3 hours away from my old GI doc (love him to bits, but not so much where I'll drive 3 hours to see him). Hopefully I won't need a biopsy again....i can just send my old files up to the new doc, run some blood work and call it a day (oh if it was just that easy). He though celiac was just the stomach lining being "eaten away" he had no clue about nutrients. I'll definately send him this way...we can all be hormonal on him :D:blink:

Off to a bridal shower with my boxed lunch in hand :-)

Daxin Explorer
I've noticed that I've been spacey (very spacey) lately....almost where at times I feel like a real idiot. I know it's not nice to say things like that about yourself....but since I just started going back on the diet....I'm kind of thinking....was me being a "space cadet" linked to going off my diet???

I have the same problem. As soon as I get some gluten in my system, we can tell right away. It's almost like most of my higher reasoning is switched off. Drives my wife crazy, but we get through.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.