Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Chronic Stomach Pain--while Gluten-free

healthynewman

Recommended Posts

healthynewman Newbie
healthynewman
Posted

Hey All,

I was diagnosed with celiac (blood and biopsy test) 2 years ago, and felt great on a gluten-free diet for one year. I then started having stomach pain (like heartburn) and abdominal discomfort the moved around and that came and went daily. I've had scopes, CT scans, and test for H. pylori and all are negative. Doctors ran out of ideas, other than acid blockers which often made symptoms worse.

I tried going on a simple foods diet to eliminate typical allergic foods (soy, dairy, etc.) and nothing seemed to help. Then the symptoms went away, more or less, for a few months. Now syptoms are back, and even more persistent (daily for over a month). I am super strict with my diet (eating non-allergenic food like rice, broccoli, spinach, sweet potatoes, hormone/ antibiotic-free chicken) and getting no relief. Dinner parties are not so fun, as I bring my own food and don't drink any alcohol or coffee.

I've also tried ranitidine for acid with no results. I feel like stress may play a factor in the symptoms, but not sure. Considering acupuncture and herbal remedies.

Thanks for letting me rant--I am really frustrated. I appreciate any advice.

Kurt

diagnosed 9/06 celiac

biopsy/blood

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Kurt, you may have LOW stomach acid, which obviously acid blockers would make only worse. Try eating more protein and fat for a while, along with very low carbohydrate intake.

Your problem may be that you eat too many high-carb gluten-free replacement foods. They will cause me to have acid reflux as well.

Open Original Shared Link

ShayFL Enthusiast
ShayFL
Posted

You could also test with HCL tablets. Take 1 with a protein meal and see if you feel better or no response at all. If you feel better, you can take them for while until your body readjusts. If you get no response, next meal take 2. You will know you have taken too much if your stomach burns a bit and you taste acid. Simply drink some baking soda (1 tsp) in warm water to make that go away.

This happened to me years ago and the HCL was a lifesaver. I had to take 3 with any protein meal. Over time I gradually reduced until I discontinued. No symptoms eating protein.

Do not take with carbohydrate only meals.

ravenwoodglass Mentor
ravenwoodglass
Posted

I have been under a great deal of stress lately and started getting really severe pains mostly right sided pain even when I just drank water. I don't know if it would help you but I went back to my digestive enzymes and it helped with the first dose. I tried some pepto, the thing I usually take for stomach pain and it didn't help at all that is why I did a last ditch clutching at straws trip back to enzymes. I was actually surprised that it helped and don't know if it would help you but thought it worth mentioning.

jaten Enthusiast
jaten
Posted

Healthynewman,

Has your doctor considered performing a capsule endoscopy (pill cam)? Our histories/symptoms are not exact but remarkably similar.

Because of renewed symptoms I had colonoscopy/endoscopy a few weeks ago. The endoscopy biopsy showed sprue damage (villous atrophy) even though I have been strictly gluten free for 2 1/2 years. (Lab work verified that I am successfully gluten free through an absence of antigliadin antibodies at this time.)

Earlier this week, I had a capsule endoscopy so that my dr. could view the 20-25 feet of small intestine that can't be reached with a scope.

Just a thought....

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Not to scare you or anything, but celiacs are at higher risk (especially if undiagnosed for a long period of time) for B-cell lymphoma. Did your doctor already rule that out?

Many people here have issues either on top of celiac, or that cause gluten intolerance, such as Lyme Disease, mercury toxicity, and systemic yeast infections.

The capsule endoscopy sounds like a good idea.

I'm sorry you're not feeling well--hope it gets better soon!

shanluts Apprentice
shanluts
Posted
Hey All,

I was diagnosed with celiac (blood and biopsy test) 2 years ago, and felt great on a gluten-free diet for one year. I then started having stomach pain (like heartburn) and abdominal discomfort the moved around and that came and went daily. I've had scopes, CT scans, and test for H. pylori and all are negative. Doctors ran out of ideas, other than acid blockers which often made symptoms worse.

I tried going on a simple foods diet to eliminate typical allergic foods (soy, dairy, etc.) and nothing seemed to help. Then the symptoms went away, more or less, for a few months. Now syptoms are back, and even more persistent (daily for over a month). I am super strict with my diet (eating non-allergenic food like rice, broccoli, spinach, sweet potatoes, hormone/ antibiotic-free chicken) and getting no relief. Dinner parties are not so fun, as I bring my own food and don't drink any alcohol or coffee.

I've also tried ranitidine for acid with no results. I feel like stress may play a factor in the symptoms, but not sure. Considering acupuncture and herbal remedies.

Thanks for letting me rant--I am really frustrated. I appreciate any advice.

Kurt

diagnosed 9/06 celiac

biopsy/blood

Hey there...any results???

I have been gluten-free for 1.5 years. I have been miserable this past week. Pain, burning, nausea and headache. I have taken Prevacid, Zofran (nauseau) NOTHING helps. I feel weak and fatigued.

I am grasping for straws!

Shannon

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

Shannon...could you have picked up a bug?

  • 4 weeks later...
healthynewman Newbie
healthynewman
Posted
  • Author

Hey Shannon,

I've appreciated all of the feedback from many people. I am going to talk with a naturopath here in Portland today and get some guidance. I have limited my diet down to rice, quinoa, brocolli and a couple other items. No luck though. I am taking probiotics and trying other avenues, but I really don't have a solid game plan yet.

Keep talking with others, and arm yourself with info. And be your own advocate when you see doctors. That's my advice for you today. Good Luck and keep positive,

Kurt

Hey there...any results???

I have been gluten-free for 1.5 years. I have been miserable this past week. Pain, burning, nausea and headache. I have taken Prevacid, Zofran (nauseau) NOTHING helps. I feel weak and fatigued.

I am grasping for straws!

Shannon

Katester Enthusiast
Katester
Posted

I had the exact same problem and still kind of do but it's getting better. My doctor figured out that my body was starving and wasn't getting enough food. My stomach isn't used to having the normal amount of food in it which means whenever I eat anything it has a hard time processing the food. If I eat more than usual, I feel horrible. I don't know if this could be possible for you also but it's just a thought. Ensures have helped a ton. Hope you feel better!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.