Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bladder Problems And Celiac Related?

kayavara

Recommended Posts

kayavara Rookie
kayavara
Posted

I have had bladder problems off and on now for years. I started having constant problems in Jan. '08 when all of my bloating,headaches,depression,brain fog etc .started.It felt like a very intense UTI but every time I would go to the doctor,walk in clinic or hospital...they would always say the urine came back negative. I took antibiotics for 2 months with no relief!

I went to every doctor in the book for all of the other symptoms including a urologist. After many painful days of going all day ,leg pain,back aches and more....my doctor ordered diagnostic tests and a scope. He found nothing but minor incontinence. He said I did not have any IC,cancer or any other problem except the going,going,going. He put me on Vesicare which helped a lot.I still would go more than most...but it was much better.I knew nothing of Celiac at that point.Now it has reared it's ugly head again and while it's not as bad as the last round,it's very uncomfortable.Along with the bladder spasms....I noticed bloating,gas,leg pain,irratability,slight burn in my stomach with some reflux and more.

My question is...could bladder problems be connected to Celiac/gluten intolorance? Now that I look back on my main symptoms...bladder spasms were in the picture more than not.Have I been glutened and the spasms are just a part of that?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Yes, I also get bladder problems when eating gluten, but also when I eat foods high in salicylates.

I will get the burning sensations and having to go constantly. Why don't you try going gluten-free for a week to see if your bladder problems get any better? If they do, you will have to go back to eating gluten if you want to get official celiac disease testing done, though. That would be your choice. Or you could just keep eating gluten-free and be happy with feeling better.

Anyway, you have nothing to lose by eliminating gluten for a while to see what will happen. It could definitely be your answer.

Generic Apprentice
Generic
Posted

I peed the bed until I was 6 if I got real cold (like when we went camping). My mom has accidents when she accidentally eats gluten also.

spunky Contributor
spunky
Posted

I have a slight bladder injury from childbirth... acted up my whole life. When I went gluten free, surprisingly, this got a LOT better. I don't go as much, and I'm better at holding it when I need to. Much of what I assumed was injured bladder worsening with age seems to have gotten a lot better off the gluten.

kayavara Rookie
kayavara
Posted
  • Author

I failed to mention that I have been glunten free now for 2 months...sorry about that. What I was thinking is I might have been glutened lately making all of my old symptoms of bloating,reflux,gas,headaches etc retun. I also am having the bladder spasms with my upper part of my legs aching and going going going.I wondered if bladder problems could be associated with celiac. Looks like it can from the posts.

So...maybe I have some hope if I don't get glutened again...I may see some relief because the bladder symptoms left along with the bloating,reflux etc. 2 months ago after I started the diet.I was pumped up thinking it was gone for good.When it came back along with the other digestive symptoms,I wondered could it be gluten related....especially after all the tests (urological)done came out fine with no sign of any real problems.Maybe the problem has been gluten all these years???

ravenwoodglass Mentor
ravenwoodglass
Posted

I also had problems with bladder and bladder control. The peeing constantly and occasional blood turned out to be kidney related due to my bodies reaction to the toxin, gluten. The control issues were related to my nerve damage and started when I was a child about the time I lost reflexes in my legs. I would have accidents even as a child when playing with friends, very traumatic for a middle schooler. After I was at last diagnosed within a few months the frequency was down to normal and although it took a couple of years for the nerves to heal I can now tell when I have to go before I am actually going.

loraleena Contributor
loraleena
Posted

Please look into Intersticial cystitis. A lot of us on here have it. I had the same issues, but no UTI as well. IC is an autoimmune disease that cause damage to the lining of the bladder and can also cause ulcers in the bladder. Check out the IC network for lots of info. The IC diet helps a lot ! There are many foods that can irritate the bladder, so I suggest checking that out as well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
mumseyh Rookie
mumseyh
Posted
Please look into Intersticial cystitis. A lot of us on here have it. I had the same issues, but no UTI as well. IC is an autoimmune disease that cause damage to the lining of the bladder and can also cause ulcers in the bladder. Check out the IC network for lots of info. The IC diet helps a lot ! There are many foods that can irritate the bladder, so I suggest checking that out as well.

Thanks, that was just the info I was looking for. Is the IC network a forum?

loraleena Contributor
loraleena
Posted

There is tons of great info. there and also a forum as well.

  • 5 weeks later...
geokozmo Rookie
geokozmo
Posted
There is tons of great info. there and also a forum as well.

Yes, it is good, but a bit discourageing:it is clear that no hope for longterm recovery exists. In a site I read about tomato better avoided which is quite startling (since it has good antui-inflammation effects if used on sking, like akne). I wonder.

  • 3 weeks later...
littlemermaid56 Newbie
littlemermaid56
Posted

I have IC. I have been gluten free for 4 years now-I did NOT test positve for celiac, but then again I do not have IgA so i am always negative for the blood work and I think its quite possible that my GI doc didnt take biopsy in the right place to find celiac. But regard;ess I cant eat ANY gluten. Had stomach issues for years before i went gluten free and lost a lot of wieght in short time, i feel so much better gluten free. ANYWAY I was dx with IC 1 and a half years ago. Before I was diagnosed I was runing to the bathroom every 5 minutes, I couldnt go anwhere cause I was SO worried about not having a bathroom. once i was dx I was very very srict with the IC diet. Since then I WILL eat tomatoes....I find that organic farm grown tomatoes work much better for me. I can not eat them all the time but now that im in control I can deal with some now and then. I mostly only drink water as everything else is too acidic but i still drink coffee occasionally and deal with consequences-bladder and stomach :) sooo of course it depends on the person but for me IC isnt like the gluten I can SOMETIMES have a little acidic stuff just in moderation

  • 11 months later...
MedicalMystery Newbie
MedicalMystery
Posted

Like you, I've had bladder issues for the last 1 1/2 years: Burning sensation near bladder, when first began was going every 15 or 20 min. (sometimes going to the bathroom 3 times within an HOUR, now with the help of 3 medications, I can go every 2-4 hours in-between), extreme urgency (when it was time I HAD to go!), fear of being at a place where I couldn't find a bathroom, planning my day around using and locating the bathroom, getting up at least two or three times EVERY NIGHT to use the bathroom, etc. I was FINALLY officially diagnosed with IC in December, when I had surgery to hyperextend the bladder (which was NOT successful, by the way). Do you think you should be tested again? Maybe it could be related to Celiac Disease, not sure. I'm new to all of this, since I'm waiting for test results.

  • 1 year later...
overnormal Newbie
overnormal
Posted

I have had bladder problems off and on now for years. I started having constant problems in Jan. '08 when all of my bloating,headaches,depression,brain fog etc .started.It felt like a very intense UTI but every time I would go to the doctor,walk in clinic or hospital...they would always say the urine came back negative. I took antibiotics for 2 months with no relief!

I went to every doctor in the book for all of the other symptoms including a urologist. After many painful days of going all day ,leg pain,back aches and more....my doctor ordered diagnostic tests and a scope. He found nothing but minor incontinence. He said I did not have any IC,cancer or any other problem except the going,going,going. He put me on Vesicare which helped a lot.I still would go more than most...but it was much better.I knew nothing of Celiac at that point.Now it has reared it's ugly head again and while it's not as bad as the last round,it's very uncomfortable.Along with the bladder spasms....I noticed bloating,gas,leg pain,irratability,slight burn in my stomach with some reflux and more.

My question is...could bladder problems be connected to Celiac/gluten intolorance? Now that I look back on my main symptoms...bladder spasms were in the picture more than not.Have I been glutened and the spasms are just a part of that?

Wow! I LOVE this forum. I've been having bladder issues for years. I am a celiac person, but I forgot about salycilates! I've not eaten any gluten, but tomatoes and red apples-alot! Plus other possible irritants. This REALLY helps!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    3. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    4. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    5. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,034
    • Most Online (within 30 mins)
      7,748
    PitbullTeacher
    Newest Member
    PitbullTeacher
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.