Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor In Twin Cities


jmn

Recommended Posts

jmn Rookie

Does anyone have a recommendation for a doctor in the Twin Cities area?

I self-diagnosed and have been living gluten- and corn- free since 1989, but have gotten worse in recent years. Now I can't tolerate soy or eggs and am reacting to trace amounts of gluten that didn't used to bother me.

Orignally, I consulted a family doc, an internist and a gastroenterologist all of whom misdiagnosed me. I figured it out on my own in a medical library. (It was pre-Internet.) I recently consulted a nutritionisst who sounded like she understood the issue, but her recommendations just made me worse.

I'd appreciate any help. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WendyG Explorer

Hi,

I see Lucinda Conroy with Minnesota Gastro Interology at the Maplewood location. She is excellent and I love her. My husband has Chron's disease and seen Arnold Caplain at the Plymouth office. Good luck!

Wendy

kbtoyssni Contributor

I go to Dr Ronda Stellar in Shoreview. She's a GP, but she actually knows what celiac is and tests all her women who have infertility issues for celiac. She's a great GP because I'm never going to get the evil "are you sure you have celiac" look from her.

jmn Rookie

Thank you both. I appreciate it.

Chevelle Rookie

Does anyone have any reviews from the GI(s?) at the Mayo Clinic in Rochester?

lrsmetak Newbie

I am also looking for a great GI in the Twin Cities (preferably Minneapolis) to help me figure out how to proceed with all the testing I've had, and all my inconclusive results, and how to tie it all together. Has anyone had a lot of trouble tying together their results and their symptoms and found a great GI who will walk through steps with you, and knows how to explain Celiac's in a personable manner? As you can see by my signature, I'm having a frustrating time of it, and I need a GI who can "hold my hand" while I find out what my footing should be.

Thanks

  • 4 weeks later...
Verditer Newbie
Does anyone have any reviews from the GI(s?) at the Mayo Clinic in Rochester?

Dr. Joseph Murray is fantastic - try to schedule an appointment with him. In any case, make sure you get a GI and not a GP - the GPs at Mayo are hit and miss.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kbtoyssni Contributor

There is a very active ROCK group in the Twin Cities area - I bet they would have some opinions on GIs if you contact them or attend a meeting. I was diagnosed before I moved to the area and therefore know nothing about the GIs here.

https://www.celiac.com/articles/563/1/ROCK-...roup/Page1.html

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,027
    • Most Online (within 30 mins)
      7,748

    EmmaGraceeee
    Newest Member
    EmmaGraceeee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.