Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Re-curring Symptoms Why?

Glutenfreekatie

Recommended Posts

Glutenfreekatie Newbie
Glutenfreekatie
Posted

Before I was diagnosed I had terrible heartburn and acid reflux. Once I started a gluten free diet I felt much better and didn't need to take my Aciphex anymore for the HB etc. I was diagnosed this past March. Now since last sunday I have had terrible heartburn and nothing will help. I can't think of anything that could have caused it. Tried to take my medication and that doesn't even help. The only thing that has really changed is that recently I have been eating more raw vegetables and salads. What could be causing this????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Celiac or a gluten sensitivity has a very loud voice. When you deal with that and that voice gets quiet, sometimes you can hear other voices.

After I went gluten free, I found that I had some issues with dairy. I stopped and it went away. I was able to add it back in a few months.

Try a food journal.

Now, I find that chocolate can give me reflux, but I chance it from time to time. ;)

newceliac Enthusiast
newceliac
Posted

I feel your pain....I have been so frustrated lately. I have been gluten free since 9/07. Felt better, for the most part, after going gluten free. But it wasn't long until some of the symptoms started recurring. I was tested for dairy and found that I have casein intolerance. I have now been cfgf. I have periods where I feel really good and then all of a sudden I take a downward turn. I have been very careful about being gluten free and don't cheat and read labels, etc. With the casein intolerance, I am not always quite as diligent, but I do not intentionally eat casein products. Lately, I have been very gassy, crampy, constipated and nauseous and I am really not sure why. I am really at my wits end with all of this. It is aggravating to work so hard to avoid the foods I can't tolerate....only to continue to feel bad and constantly wrack my brain trying to figure what it is.

I am sure that I really need to keep a food diary but that just seems so difficult and time consuming. It would seem that after 10 months, I would not be developing another food intolerance.

MELINE Enthusiast
MELINE
Posted

hello

I have IBS and that gives me the symptoms you are describing, especially the heart burn feeling. Doc said I should cook all my vegetables and fruits, and that was the solution to my problem. I even cook bananas (they are already soft I mean, but even they trigger my Ibs if I eat them raw)

Meline

ravenwoodglass Mentor
ravenwoodglass
Posted

What kind of dressing are you using on your salads? While many of us are fine with gluten grain distilled vinagers many of us are not. You may want to experiment with salads with a for sure, you made it dressing using wine vinegar instead of the distilled vinagers that are in many prepared dressings. Also many if not most use soy oil now in the premade dressings. The soy oil can also be a problem for some folks.

Glutenfreekatie Newbie
Glutenfreekatie
Posted
  • Author

The dressing I used was Newman's Own Ceaser. It does contain distilled vinegar. So I will definitely eliminate that. Would you suggest eliminating the raw vegetables too or just one thing at a time?

Thanks everyone for your replies. It is nice to have somewhere to talk with people who have the same experiences. I am very frustrated with how I feel and just want to get back to feeling good again.

MyMississippi Enthusiast
MyMississippi
Posted

Do not assume that every gut issue you have is because of Celiac or gluten. The bowels are important, living, organs that can be aggravated by a host of things---- not just gluten----

How much sugar are you consuming??? How many refined carbs ?? Junk food ??? sodas ???? Are your food portions too large--- do you eat too often???? Are you eating enough natural fiber????etc. etc. etc.

Are your intestines stressed from Celiac and taking awhile to "get healthy" again ?????

There are so many variables--------- :) Your body is telling you something---- but it may take awhile to figure out just what it's saying. :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

That's right. My D went away with gluten-free, but learned that xylitol gives me D. So not gluten related at all as the xylitol is a gluten free product. I checked. Ditto for the gluten free gum with xylitol. Even small amounts give me D.

eastsidegal Newbie
eastsidegal
Posted
Before I was diagnosed I had terrible heartburn and acid reflux. Once I started a gluten free diet I felt much better and didn't need to take my Aciphex anymore for the HB etc. I was diagnosed this past March. Now since last sunday I have had terrible heartburn and nothing will help. I can't think of anything that could have caused it. Tried to take my medication and that doesn't even help. The only thing that has really changed is that recently I have been eating more raw vegetables and salads. What could be causing this????

Hi, you might stop drinking coffee and soda. See if it helps, ??

eastsidegal Newbie
eastsidegal
Posted
Before I was diagnosed I had terrible heartburn and acid reflux. Once I started a gluten free diet I felt much better and didn't need to take my Aciphex anymore for the HB etc. I was diagnosed this past March. Now since last sunday I have had terrible heartburn and nothing will help. I can't think of anything that could have caused it. Tried to take my medication and that doesn't even help. The only thing that has really changed is that recently I have been eating more raw vegetables and salads. What could be causing this????

Hi, you might stop drinking coffee and soda. See if it helps, ??

Glutenfreekatie Newbie
Glutenfreekatie
Posted
  • Author

I have really cut down on coffee and don't usually drink soda anyway. The only junk food I really eat is corn chips sometimes. Plain ones. It is feeling a little bit better today, but it is early. Usually escalates during the day. Only eating hommade stuff that I can be sure has no gluten. I did have one cup of coffee this morning. Otherwise I get a terrible headache. Plus I have an hour drive to work!

TestyTommy Rookie
TestyTommy
Posted

Hi Katie,

What kind of corn chips are you eating? A few months ago, I realized I was reacting to Lays plain potato chips and plain corn chips -- something I never would have expected. There are threads in the food sections about chips -- there seem to be CC issues with many brands of chips, incl. Lays.

SEAliac Rookie
SEAliac
Posted
The dressing I used was Newman's Own Ceaser. It does contain distilled vinegar. So I will definitely eliminate that. Would you suggest eliminating the raw vegetables too or just one thing at a time?

Thanks everyone for your replies. It is nice to have somewhere to talk with people who have the same experiences. I am very frustrated with how I feel and just want to get back to feeling good again.

Hi! I'm new to this forum, but your question about eliminating raw vegetables resonates with me. I'm gluten-free only for about 4 1/2 months now, but maybe my experience in the last few months will help you. I cannot tolerate raw vegetables except for tomatoes that have had the skins peeled and seeds removed. Salad leaves me in agony. Canned and frozen veggies I can handle in very small quantities (an ounce or two in a day). Strained cooked sweet potatoes and butternut squash make very good soups that I can tolerate. Fresh fruits don't seem to be causing me much trouble. At this early stage in my healing, I do best with a very low fat, low fiber, dairy-free diet. I'm worried about my nutrient intake by not eating many veggies, but I prefer a more normally functioning GI tract right now. Over time I'll find more veggies that I can eat.

Good luck to you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    2. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
    4. Colleen H
      - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines? Did it work ?? Thank you !!
    5. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748
    Peta Dunn
    Newest Member
    Peta Dunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Methylprednisone treatment for inflammation?

      By Colleen H · Posted

      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.