Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

1 Week With Gluten And No Symptoms?


betsyabailey

Recommended Posts

betsyabailey Rookie

Hi everyone! I posted last week about lab work and gluten and got some great advice, thanks! My DH decided that he wanted to go ahead and do the labs now AND find a different preschool. So Aidan, my son has been having a pretty significant amount of gluten for about a week now with absolutely no symptoms that we can see. Is it normal for the gastro problems to take awhile when adding gluten back to diet? I figured it would be at least close to immediate, like before. Thanks!

Betsy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

It can take a while for gluten to build up in his system, before he will have symptoms. Or he might not get any obvious symptoms now, like diarrhea, but rather stop growing. In fact, failure to thrive is the most common symptom in babies and toddlers with celiac disease.

Also, since he didn't have gluten since he was a tiny infant, it will likely take years to destroy his villi and make him sick enough to test positive. By then he will probably have stunted growth and be nutritionally deficient.

It is obviously your choice to go ahead with this gluten challenge. But it will likely result in negative tests, even if you keep feeding him gluten for several months. Still, the tests will mean nothing if negative. They are notoriously unreliable in children under six to begin with, and in a child who didn't have gluten for as long as your son they will probably be completely useless.

But the doctor will look at those tests and declare your son 'healed' of celiac disease or gluten intolerance, and will tell you that he can eat gluten now.

Too many people on this forum had that happen to them. Only to get seriously ill in their adult years, and ending up having other autoimmune diseases triggered by the gluten they consumed.

You don't outgrow a gluten intolerance. Your son had severe reactions to gluten as a baby. When removing the offending food, often the symptoms will be different when reintroduced and many times are not recognized as symptoms at all.

ShayFL Enthusiast

I just met a woman at my Celiac support group a few weeks back that was Dx as an infant, but "cured" when she was about 8 or so. Fast forward to 35 and she now has complete numbness in her hands and feet that have not responded to 2 years gluten free, B12, thyroid meds, etc. And she now has auto-immune disease (thyroid) and lost 10 years of her life with severe symptoms (D, pain, bloating,etc.) that doctors couldnt figure out......She is Celiac and has been since a baby. She didnt outgrow it......

purple Community Regular
I just met a woman at my Celiac support group a few weeks back that was Dx as an infant, but "cured" when she was about 8 or so. Fast forward to 35 and she now has complete numbness in her hands and feet that have not responded to 2 years gluten free, B12, thyroid meds, etc. And she now has auto-immune disease (thyroid) and lost 10 years of her life with severe symptoms (D, pain, bloating,etc.) that doctors couldnt figure out......She is Celiac and has been since a baby. She didnt outgrow it......

I am glad you posted this. My friend has many of the symptoms of celiac but has never been tested. Endometriosis, hysterectomy, other stomache troubles, surgeries....lots more...for at least 15 years. Her last surgery was on her thyroid. I can't remember if they removed some of it or what exactly. I keep telling her to get checked. I have been studying it on this forum for only 4 months to learn all the symptoms. About 12 years ago she had multiple surgeries on her gut but they couldn't figure it out. She had to fly to another town to see a specialist. Then they removed something else and now she can eat again. She still has celiac symptoms though. Not one doc has said to check her for celiac..hmmm. Her latest problem is a shooting pain down her leg.

She is only 38. What a terrible thing to go through that doesn't have to happen if only the docs could figure it out. I took my 19 year old to an osteopath and he knew on the first visit.

This forum is such a blessing to everyone!!! Thanks to all for all your input!!!

gfp Enthusiast

What Ursa said ....

and like Shay said ... you can 'lose' lots of good years and get complications ... which is a big risk.

all this vs just not eating gluten ....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    2. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    3. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    4. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    5. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.