Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those Who Are Soy Free


MyMississippi

Recommended Posts

MyMississippi Enthusiast

I have decided to go soy free in an attempt to resolve my neuro symptoms.( I know in 1995 I had a class 2 positive blood test (Ige) to soy---)

However, the allergist did not think I needed to avoid the class 2's.

Anyway, I want to know how many of you got rid of your neuro symptoms going soy free---

ANd soy lecithen (sp?) is in all the chewing gum, and chocolates--- which gum do you chew? What chocolate can you eat??

Thanks for your help----


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rmmadden Contributor

I don't really suffer from neuro symptoms but, I did eliminate soy from my diet as I tested-out severly sensitive to soy. I don't eat chocolate but I do chew wrigley's spearmint and/or peppermint gum when I'm not feeling the greatest and It ususally helps me. In general I try to avoid all soy but I have been known to eat things that have soy lecthin in it. I feel as if I can eliminate soy for the most part and limit the soy emulsifier items to few and far between then I generally (knock-on-wood) feel okay. I certainly feel a lot better than before I cut soy out of my diet that's for sure!

Best of Luck,

Cleveland Bob B)

jnclelland Contributor

Chocolate is very tricky, but I know I've seen a few (VERY few) brands that use some other kind of lecithin (sunflower maybe?) as an emulsifier. There's also Enjoy Life chocolate chips, which are quite good and don't contain any lecithin at all. Since I have problems with sugar, I tend to get my chocolate fix from chocolate-raspberry Clif nectar bars; they're not exactly the same as a chocolate bar, but they're yummy!

Jeanne

AndrewNYC Explorer

There are very very few chocolate soy free items around. If you live near a major city go to a health food store there and you might find something that works. Otherwise look on the web. Just forget about gum. It has so many strange additives you should not be chomping on it anyways if you have neuro trouble.

I have decided to go soy free in an attempt to resolve my neuro symptoms.( I know in 1995 I had a class 2 positive blood test (Ige) to soy---)

However, the allergist did not think I needed to avoid the class 2's.

Anyway, I want to know how many of you got rid of your neuro symptoms going soy free---

ANd soy lecithen (sp?) is in all the chewing gum, and chocolates--- which gum do you chew? What chocolate can you eat??

Thanks for your help----

  • 1 month later...
fierce-mink-2000 Newbie

Hi! I'm new here. My son is the one who is gluten free. He's also soy-free. I'm wondering what neuro-symptoms are. Is it the kind of thing you can tell is going on in someone else? He's 4.5 and taking him off of soy and milk recently seems to have improved his behavior (as well as his more obvious symptoms, like eczema). He was quite the difficult child before, and while we've had ups and downs, I'm pretty sure we've never had an up this good since he was born. Could this be like what you're talking about?

I just recently discovered Bazooka gum is soy free. It's not sugar-free, though, which is annoying, but it's the only one I've found.

ravenwoodglass Mentor
Hi! I'm new here. My son is the one who is gluten free. He's also soy-free. I'm wondering what neuro-symptoms are. Is it the kind of thing you can tell is going on in someone else? He's 4.5 and taking him off of soy and milk recently seems to have improved his behavior (as well as his more obvious symptoms, like eczema). He was quite the difficult child before, and while we've had ups and downs, I'm pretty sure we've never had an up this good since he was born. Could this be like what you're talking about?

I just recently discovered Bazooka gum is soy free. It's not sugar-free, though, which is annoying, but it's the only one I've found.

Yes the improvements you are seeing would be included with neurological symptoms. Some of us will have issues with mood such as temper, anxiety depression, some with learning (we call it brain fog :) ) some will have issues with balance, ataxia, some can have paraesthesias develop which is tingling and pain in the extremities, loss of reflexes. Any of these and more could be considered neuro effects.

hawaiimama Apprentice

I don't eat soy, and haven't for ages but I don't avoid lecithin. I seem to be able to deal with it in small doses.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



powerbraid Rookie

Alter Eco brand chocolate is THE BEST EVER! It also has no soy lecithin in it and says gluten-free right on the package!!!! :)

glutenfreewithease Rookie
I have decided to go soy free in an attempt to resolve my neuro symptoms.( I know in 1995 I had a class 2 positive blood test (Ige) to soy---)

However, the allergist did not think I needed to avoid the class 2's.

Anyway, I want to know how many of you got rid of your neuro symptoms going soy free---

ANd soy lecithen (sp?) is in all the chewing gum, and chocolates--- which gum do you chew? What chocolate can you eat??

Thanks for your help----

I am soy free and I have neuro symptoms. I went soy and gluten free at the same time in '06 and my health improved dramatically. I still have misc symptoms like muscle movement and spasms in the face, tingling in the hands, feet and legs and vision problems. However, the improvement is so much better than where I was at. These symptoms are minor now - of course it is all relative as we all know.

I don't chew gum or eat chocalate. :( I do know and have not tried the Enjoy Life Foods chocolate pieces are okay. My two girls have just been diagnosed and are going gluten free so I am finding foods that I didn't use before!

I wish you the best and hope your neuro symptoms improve. What are your neuro symptoms?

AndrewNYC Explorer

Enjoy Life Boom Choco Boom chocolate bars. I have not seen much else in the way of soy free chocolate, other than a brand of organic hot cocoa, and I have been searching for years.

RiceGuy Collaborator

Many who can't eat whole soy have found soy lecithin to be well tolerated. It is generally fairly pure, but obviously you'll need to determine how you do with it for yourself.

A number of nutrient deficiencies have been linked to neurological problems, so you many want to try some of the more likely ones. For instance, a methylcobalamin (vitamin B12) supplement, along with magnesium can be incredibly helpful, so I always recommend those. Zinc can also help quite a lot.

Here's just one of a myriad links I got from a Google search: Open Original Shared Link

sickchick Community Regular

I don't chew gum. I am totally soy-free even soy lecithin I have a couple bags of Enjoy Life Choco Chips in freezer in case of chocolate emergency :):lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    2. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    3. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    4. - KathyR37 posted a topic in Coping with Celiac Disease
      2

      New here

    5. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Celiac attack confusion and anxiety


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,811
    • Most Online (within 30 mins)
      7,748

    Taraceliacmama
    Newest Member
    Taraceliacmama
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.