Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Blown Away. Didn't Know This Contains Wheat.


TammyK

Recommended Posts

TammyK Apprentice

This is an exciting day. I just made sense as to why my daughter reacts to MSG in the same way as wheat. (Mild Seizing). Gluten is extracted from the wheat grain for MSG. She had a reaction this morning possibly from McDonald's Fries, a large portion at that from lunch yesterday! I learned that Micky-D's fries have MSG. (this all sounding accurate to you?) It also explains this horrible cranky day of hers.

I knew that MSG is BAD and that reacting neurologically made sense but not because there was gluten in it. Many people react to MSG that don't have any food intolerances or celiac. My mom's esphogus swells shut! She has no food issues that she is aware of atleast. (Anyone know of relationship of MSG and Asthmatics?)

Ok, before I make more mistakes, I will be needing a list of all those ingredients on the labels that contain gluten but don't label themselves wheat, oats. rye or barely.

Also, funny thing... my daughter didn't react to barely after having it over a 3 day period. So very strange! Why is it only the wheat gluten that seems so toxic? It's obvious she shouldn't be eating out until I get my head screwed on straiting anyway. Good thing though is that alteast unintended reactions provide info.

Inch by inch, one day at a time, I'm learning. This forum is a big peice of that puzzle.

TammyK


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac-mommy Collaborator

Are you in the US? I've read in multiple places that in the US, MSG is derived from corn. I know MSG, in general reaks (sp?) havok on my stomach and I'm not Celiac. Also, you might want to look into the small amt of wheat in the McD's fries--long discussed topic on here. They are a no-no in my house, a small amt is too much for us!

Open Original Shared Link

You're right, MSG is BAD!!

celiac-mommy Collaborator

I guess they're not vegetarian either.... :blink:

HAK1031 Enthusiast

Rachelle is right...MSG in the US is fine gluten-wise, although it does make some people (celiac or otherwise) sick. However, McDonald's fries do have wheat, and they may be fried in the same fryer as the chicken nuggets, which is plenty to sicken a celiac.

psawyer Proficient
McDonald's fries...may be fried in the same fryer as the chicken nuggets, which is plenty to sicken a celiac.

This would be a violation of McD rules. I can't rule out some franchisee violating the fryer segregation rule, but nothing except fries and hash browns are allowed in the dedicated fryers at the front of the store. It has nothing to do with keeping gluten out of the fries. The taste of McDonald french fries is what distinguishes them from other fries, and McD wants to make sure nothing like bread, chicken or fish can possibly taint the fries. Potato products are fried at the front by the window crew; everything else is fried in the back by the grill crew.

Despite the similarity in the words gluten and glutamate, they have nothing in common chemically. MSG is controversial, but it is not any worse for celiacs than for others, and it is not a source of gluten.

TammyK Apprentice
Despite the similarity in the words gluten and glutamate, they have nothing in common chemically. MSG is controversial, but it is not any worse for celiacs than for others, and it is not a source of gluten.

Hi All, Yes, I am in the US

Thanks for the clarification but I honestly did read that MSG has gluten in it. Ugh. However, I read alot too about how the public is misinformed to regarding the effects of MSG - that it isnt' really effecting people and that it is perfectly "safe". I watched my daugher arms trembling, she collapse of weakness, turned pale and got clamy and sweaty from the stuff. I laughed at that article. No one can tell me MSG is safe. Too bad the Internet is 100% accurate.

And, I am studying to understand glutamate and I have been confused by how it relates to gluten, thus my research today. . .

I'M VERY THANKFUL TO LEARN OF MCDONALD'S FRIES AND THE WHEAT AND MILK DERIVATIVES THEY CONTAIN. THANKS! Wow, I'm learning so much. It explains this morning's seizure better than the MSG theory. I shall have to research online all the local restaraunts so I know food labels ahead of time.

Thanks Again.

gfpaperdoll Rookie

Tammy did you read my link to Glutamates & MSG? I think I gave it to you on another post, where I talked about all the common food problems. Please be aware of "natural flavoring". It zaps me every time.

I had some Whole Foods 365 brand sweet pickles with "natural flavoring" ate three pickles & I did not time it but I got a severe pain jolt weird sensation in my brain - not pleasant - it was down right scarry. needless to say those pickles got tossed.

A lot of people are misinformed about MSG - things change & they have changed a lot in the last couple of years concerning MSG...

I do not eat anything at McD, for one thing their hands have wheat contamination & even if the fries are in a dedicated frier, they touch the bag etc etc.

I have better luck at places like Taco Cabanna, Pei Wei...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star
I guess they're not vegetarian either.... :blink:

Or dairy free. There's milk in them. :angry:

lovegrov Collaborator

The Internet is a great thing overall but one of the problems is that old or wrong information hangs around for a long, long time. There are many, many ingredients that either used to have hidden gluten or that somebody (too many times the CSA) thought might be a danger that we now know are either safe or will have wheat clearly listed if not safe. It can be hard to sort it all out.

richard

TammyK Apprentice
Tammy did you read my link to Glutamates & MSG? I think I gave it to you on another post, where I talked about all the common food problems. Please be aware of "natural flavoring". It zaps me every time.

I had some Whole Foods 365 brand sweet pickles with "natural flavoring" ate three pickles & I did not time it but I got a severe pain jolt weird sensation in my brain - not pleasant - it was down right scarry. needless to say those pickles got tossed.

A lot of people are misinformed about MSG - things change & they have changed a lot in the last couple of years concerning MSG...

I do not eat anything at McD, for one thing their hands have wheat contamination & even if the fries are in a dedicated frier, they touch the bag etc etc.

I have better luck at places like Taco Cabanna, Pei Wei...

~gfpaperdoll~

I didn't respond to that last post based on what you said but glad to see you back. I would *love* that flourless cookie recipe! (Don't know your personal email either)

Yes, I clicked on the link, copied it and emailed it my husband's work asking for a copy of the whole document. I am experiencing printer difficulties. I find it quiet interesting. I am still trying to figure out the whole, "is it glutamate or is it gluten" thing with what is causing seizures. I know Doctor J says it's glutamate build up in the brain that causes brain disfunction. So how does french fries play into it? I KNOW she is allergic to wheat based on testing and symptoms. The french fries caused a reaction. The whole ordeal has been helpful in teaching my daugher how important it is not to trust any food until labels are read. (Esp. restaurants). She was mad at McD.

I know natural flavoring is a no-no. It was disheartening when my little girl wanted some gum at Walmart. Every single pack had natural flavoring. She cried right there in the store an copt a major attitude. Sometimes it is hard to know how to handle her. Be sympathetic or tell her to toughen up and deal with it.

I just experienced the pain jolt you are talking about. It was strange and scary. Made me more sympathetic to my daughter. It was only in a very small region of my brain. I have food issues too but they don't look anything like my little girl's. I break out in patchy irritated skin on my neck, behind my ears and around my hair line. I used to itch but that has disappeared. Alot of people think I get acne.

Things are winding up though so I may not respond quickly. We are key people in making our county fair happen.

~TK~

VegasCeliacBuckeye Collaborator

For the record, I have never seen a McD's fry their nuggets in the same oil as the french fries.

In fact, McDonald is very poroud of their dedicated fryers for their fries and hash browns.

curlyfries Contributor

Not all natural flavoring is bad. It just means you need to do more research on that product to find out what is actually in THEIR natural flavoring.

As far as gum goes, there are several that are gluten-free. I have heard that fruit flavored Stride is NOT safe. Here is a site that should help:

Open Original Shared Link

lovegrov Collaborator

The vast majority of gums are gluten-free, even if they list natural flavors.

richard

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    3. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

    4. - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

    5. - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.