Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Surreptitious gluten-free Dining


Voix

Recommended Posts

Voix Rookie

I was diagnosed a few months ago and am still developing my finesse with this illness and lifestyle.

My original goal was to make the transition at home to gluten-free dining, and then find several restaurants/dishes around town that are safe, and then finally to know enough so that I don't have to explain myself and my requirements to the waiter every time and in front of my companion.

Is that ultimate goal realistic? I am beginning to think that I will have to explain every time I order something in a restaurant.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Basically your plan is good and realistic but unfortunately you will have to bring it up, at the very least so that they can avoid cross-contamination. You really need to advocate for yourself everytime. Dining cards can help as can going through the manager. You can talk with the manager away from the table if you need a little more privacy.

kenlove Rising Star

You really do have to explain each time, Even on airplanes. One flight attendant felt sorry for me and stuck a bagel on top of my "gluten free salad" which rendered it inedible. Even in health food stores with cafe's, they often don't understand and the risk for cross contamination is very high.

Good luck

ken

I was diagnosed a few months ago and am still developing my finesse with this illness and lifestyle.

My original goal was to make the transition at home to gluten-free dining, and then find several restaurants/dishes around town that are safe, and then finally to know enough so that I don't have to explain myself and my requirements to the waiter every time and in front of my companion.

Is that ultimate goal realistic? I am beginning to think that I will have to explain every time I order something in a restaurant.

wockandwoll Newbie

I agree. I went to Applebee's for my birthday (a place my town has where the manager is actually aware of Celiac) and they were VERY accomodating. I ordered the Fiesta Chicken (no tortilla strips) and they brought everything out separate just to be safe. Sauce in a separate bowl, cheese separate, pico de gallo, rice, etc. My waiter did, however, put croutons on my salad, thereby rendering it inedible. He fixed it once he realized what I did, but waitstaff can get busy and fall into habit (like putting croutons on a salad), so regardless, I would always say something.

lovegrov Collaborator

Same opinion, you really MUST tell your server every time. And ask that the server pass it along to the kitchen.

richard

samcarter Contributor

Well, I admit that I am not very good at this yet. :ph34r: We only go to one particular restaurant, once a week, for brunch. I have looked at the menu online and so far have ordered an entree that had no outward signs of gluten in it (no bread, croutons, pasta, et cetera). Last time I had a delicious salad and felt great all day. Still, the mashed potatoes the week before could have had gluten in them. The shoestring potatoes on my salad could have been fried in oil used for breaded items. Although we go there as soon as the restaurant is open for brunch, and the kitchen would be *in theory* cleaned and new, I know I'm risking cross-contamination.

As I work my way towards a definitive diagnosis, I will take dining cards with me and talk to the server, OR call the day ahead of time to speak to the manager or chefs so I know exactly what I can and can't have. Right now I'm not sensitive to tiny amounts, but I will be as I become more gluten free.

I would say, do as others say, not as I'm doing right now! talk to your servers, call the restaurants.

missy'smom Collaborator
Well, I admit that I am not very good at this yet. :ph34r: We only go to one particular restaurant, once a week, for brunch. I have looked at the menu online and so far have ordered an entree that had no outward signs of gluten in it (no bread, croutons, pasta, et cetera). Last time I had a delicious salad and felt great all day. Still, the mashed potatoes the week before could have had gluten in them. The shoestring potatoes on my salad could have been fried in oil used for breaded items. Although we go there as soon as the restaurant is open for brunch, and the kitchen would be *in theory* cleaned and new, I know I'm risking cross-contamination.

As I work my way towards a definitive diagnosis, I will take dining cards with me and talk to the server, OR call the day ahead of time to speak to the manager or chefs so I know exactly what I can and can't have. Right now I'm not sensitive to tiny amounts, but I will be as I become more gluten free.

I would say, do as others say, not as I'm doing right now! talk to your servers, call the restaurants.

I can't say what standard policy is for most places but I worked in a grocery store deli in high school and those fryers are a real pain to clean and drain. Ours were drained and new oil added only once a week I think and I don't know when they were really cleaned. I can't imagine that anywhere cleans and drains them everyday. Even if they were cleaned, they can't get rid of all traces of gluten.

You can sometimes e-mail places in advance too. I recently did this because I plan to travel to another nearby community(that I'm unfamiliar with) once a week and was looking for places to get a safe meal. I looked up restaurants on mapquest and some had websites and menus posted so I picked out places and things that I thought might work and emailed them(the local location-not corporate in this case) with my questions. I figure that way they could have a little time to research things a bit and get back to me. It went well. And if it works out I'll be a regular patron, along with my family,so our efforts benefit us both and I let them know that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Voix Rookie

How do you handle it when you are eating out in a work context, on a date or with someone new, or with family, friend, or acquaintance that is skeptical or judgmental?

(I feel like I know how to handle the skeptic, but curious how others handle it.)

laurelfla Enthusiast

Hi, there!

I pretty much only go to places with gluten free menus, if I can help it. When the topic comes up i just explain briefly what I have to avoid. If the other person downplays it, or says that they know of someone with a similar allergy, I just say that it goes way beyond an allergy and that if I did not follow the diet, in the short run, I would have flu-like symptoms, and in the long run, my risk for cancer would go up. Then I try to change the topic. I find that having the gluten free menu to show someone who's not familiar with the diet is helpful in explaining.

The annoying part is feeling like you can't ever eat out without dealing with this topic! Inevitably, even with people who know, it comes up. :rolleyes:

missy'smom Collaborator
How do you handle it when you are eating out in a work context, on a date or with someone new, or with family, friend, or acquaintance that is skeptical or judgmental?

(I feel like I know how to handle the skeptic, but curious how others handle it.)

These are the situations that I find myself in where food is served/shared: tea time after church,bible study meals, church potlucks, institutional holiday meals with a senior parent, lunches out with friends/ church members who are hosting a visitor. In all these situations I brought my own food or if I had time, I brought something or more than one dish to share. It's not the only way to handle it but that's what I chose. In the restaurants, they were places that I was unfamiliar with and run by people who were not native English speakers so communication would have been difficult and the whole group of about 10 people was ordering so I didn't feel bad. Being with the group was more important than what we ate. I simply told the waitress that I had multiple food allergies.

I did this once in an American restaurant too when I was traveling with my two family members. Now I know how to plan ahead, am more familiar with the diet, know the pitfalls of eating out and am confident in advocating for myself.

At the holiday meal, I got a few looks, especially because my sister was visiting and we both brought plates, but didn't explain as we weren't asked. I made similar food to what was served. We used Rubbermaid divided plates with lids. The time spent with the family member was more important than the food. In some cases you can work with the caterer but not in this case for me.

For the most part, I don't explain unless I'm asked. Most people aren't interested and don't get it. Sometimes the more we say or bring attention to it the more defensive others get( I have a relative that's this way)It doesn't matter what others think, having a safe meal is what matters. I used to feel more embarrased but, I really don't care anymore. I have to do what I have to do to take care of myself. I've found that people get used to it in time. It may take a year of seeing you bring your own stuff. After a year of seeing me bring my own snacks for after church tea(I used to bring things to share but I've been busy), one lady has started bringing fruit often and once brought some chips that she specifically chose because she figured out on her own that they were safe, and luckily they were! In one of the groups situations in the restaurant, one of the ladies, who was new to the group, let out a big laugh and made a comment when she saw that I brought my own food. I gently said that I had a disease(in her language) and without explanation, and that was the end of it. No hard feelings. She just couldn't imagine why anyone would bring their own food and I understand that.

Voix Rookie

Thanks for the information. That helps. I guess I do all that already. I don't want to call attention to it, but it looks like when eating out I will have to, unless I can bring my own meals, which isn't all that fun, but I will get used to it.

babysteps Contributor
How do you handle it when you are eating out in a work context, on a date or with someone new, or with family, friend, or acquaintance that is skeptical or judgmental?

(I feel like I know how to handle the skeptic, but curious how others handle it.)

With skeptics I go for a combination of education and sovereignty (as in "it's my body and this is what I know it requires"). Education as in clarifying that celiac is a disease, not a diet. Firm but unemotional tone helps. Acknowledge it takes effort to be gluten-free but isn't it wonderful that no drugs are required, and that with time the effort becomes second nature.

I think most skeptics are people who would challenge their friends/relatives on a wide range of topics, some are new to celiac but most would launch into judgment on any topic (example: "you're going where on vacation?, I heard it's just awful there").

Voix Rookie

Perceptive.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,393
    • Most Online (within 30 mins)
      7,748

    HeckelCrazy
    Newest Member
    HeckelCrazy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
    • Aretaeus Cappadocia
      I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to see if they can get you the gluten-free version (they are tasty) > This past week I bought "Sliced Raw Almonds, Baking Nuts, 5 lbs Item 1495072 Best if used by Jun-10-26 W-261-6-L1A 12:47" at Costco. The package has the standard warning that it was made on machinery that <may> have processed wheat. Based on that alone, I would not eat these. However, I contacted customer service and asked them "are Costco's Sliced Almonds gluten free?" Within a day I got this response:  "This is [xyz] with the Costco Member Service Resolutions Team. I am happy to let you know we got a reply back from our Kirkland Signature team. Here is their response:  This item does not have a risk of cross contamination with gluten, barley or rye." Based on this, I will eat them. Based on experience, I believe they will be fine. Sometimes, for other products, the answer has been "they really do have cross-contamination risk" (eg, Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs Item 1195303). When they give me that answer I return them for cash. You might reasonably ask, "Why would Costco use that label if they actually are safe?" I can't speak for Costco but I've worked in Corporate America and I've seen this kind of thing first hand and up close. (1) This kind of regulatory label represents risk/cost to the company. What if they are mistaken? In one direction, the cost is loss of maybe 1% of sales (if celiacs don't buy when they would have). In the other direction, the risk is reputational damage and open-ended litigation (bad reviews and celiacs suing them). Expect them to play it safe. (2) There is a team tasked with getting each product out to market quickly and cheaply, and there is also a committee tasked with reviewing the packaging before it is released. If the team chooses the simplest, safest, pre-approved label, this becomes a quick check box. On the other hand, if they choose something else, it has to be carefully scrutinized through a long process. It's more efficient for the team to say there <could> be risk. (3) There is probably some plug and play in production. Some lots of the very same product could be made in a safe facility while others are made in an unsafe facility. Uniform packaging (saying there is risk) for all packages regardless of gluten risk is easier, cheaper, and safer (for Costco). Everything I wrote here is about my Costco experience, but the principles will be true at other vendors, particularly if they have extensive quality control infrastructure. The first hurdle of gluten-free diet is to remove/replace all the labeled gluten ingredients. The second, more difficult hurdle is to remove/replace all the hidden gluten. Each of us have to assess gray zones and make judgement calls knowing there is a penalty for being wrong. One penalty would be getting glutened but the other penalty could be eating an unnecessarily boring or malnourishing diet.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.