Defeated...

[pewpewlasers]

I went to the doc last week to ask for celiac tests and what the doc's opinion was.

She said my symptoms sound like celiac-sprue and ordered blood work and an ultrasound of my abdomen. I'm paying everything out of pocket for this so I decided to wait on the ultrasound until my blood work came back.

They call me a couple days later saying I have mono and to drink plenty of fluids and get rest.

Mono?

I asked to be tested for Celiac, which they didn't. So that was a waste of $350.

The doctor was left a note to call me back, which she still hasn't done.

I have another appointment next week with the same doctor and I don't know if I should even see her again.

Where would they think to test for mono when I told them I've been having syptoms for years and for the past 14 months I've had the worst fatigue of my life and have been getting migranes and other terrible symptoms after I eat.

I'm not a doctor but I don't think that if I am sick from mono and have been on a gluten free diet for a couple weeks, have been feeling better, and accidentally ate something with gluten in it and suddenly got sick, had a migrane, felt nauseous, and couldn't get out of bed the next day.

Should I go to another doctor or just go to my next appointment and tell them to stop wasting my money and test me for celiac?

I want to know what it wrong with me.

I am tired of seeing doctors for years who try to bandaid things.

She offered me medicine for my migranes and said they would make me sleepy....

ummmm HELLOOOOOO!!!! I don't need to be anymore tired then I already am. I already feel like a zombie half the time and half the reason I know I'm still alive most of the time is because my head is throbbing even after popping tylenol all day.

Sigh...

I am so frustrated.

I would say screw it all and stay on my gluten free diet and stop getting frustrated with doctors but I want to rule out Crohn's and other things because it all runs in my family. I am 24 years old and would like to catch it now and make myself healthy NOW. I've seen the problems Celiac has caused after years and years of being left untreated in my Mother and I don't want those problems.

[ShayFL]

Sorry you are having such a hard time with Doctors.

You ALWAYS have options nowadays.

I use either diectlabs.com or healthcheckusa for my labs.

You can also get genetic tests through Enterolab or Kimball.

YOU DO NOT NEED A DOCTOR FOR THESE.

Or you can just stay gluten-free and live your life. BUT if you want answers, you can get tests on your own so you dont waste anymore of your money.