Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bound To Happen?


Live2BWell

Recommended Posts

Live2BWell Enthusiast

So, today is day 15 of being Gluten-Free; Well, atleast it's 15 days since I went Gluten-Free. I suppose it was bound to happen but I was mistakenly Glutenated more than once (getting the hang of this is certainly not easy.) I was surprised that after having had the gluten-filled foods, some symptoms came back, and others didn't. Most noticibly was the rash on my arms (red bumps) and the GI problems.

Last night, I threw in the towel (I hadn't done that the other two times) after having again mistakenly eaten gluten, and had a very "all or nothing" mentality. Probably not a good thing because now it's after 3am and I haven't been able to sleep, and feeling rather icky :o

I am feeling confused - what does this mean? Does this mean that I've undone the good that being gluten free, began? I know things were going better, I was feeling better - and while I was from from okay, it was atleast a step in the right direction (I have other autoimmune & health issues that are in the process of being sorted out.)

I think right now, I've kind of been tossed off my gluten-free pink cloud, and I'm feeling a bit discouraged and frustrated :blink:

I've haven't been able to meal-plan yet, so that's been difficult because I am caught in situations where I end up setting myself up (either due to lack of choice, or lack of knowlege.)

Any advice or feedback?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Just give yourself a hug. No one is foolproof. Love yourself. Be gentle and kind to yourself and just get back with the program. And continue to heal.

lizard00 Enthusiast
Last night, I threw in the towel (I hadn't done that the other two times) after having again mistakenly eaten gluten, and had a very "all or nothing" mentality. Probably not a good thing because now it's after 3am and I haven't been able to sleep, and feeling rather icky :o

Welcome to the process. I've been there, done that. Then you remember why you are supposed to be gluten-free in the first place. These little bumps come along the way to remind us that 1: we are not perfect and 2: WHY we should avoid gluten like the poison that it is.

In the beginning, I thought being gluten-free was soooo easy. Because I started to feel a little better, it was easy: eliminate a food and get better.

That is much easier said than done. We all find that out at some point. We all get discouraged and fall off the wagon, but the important thing is not to stay there. Just pick yourself up and start again. You're not starting back at zero, so don't beat yourself up about it. It happened and you can't change it. Learn from it and make today a new day. Otherwise, you'll make yourself nuts. Believe me... :huh:

red5050 Newbie

Ugh I hear ya! Yesterday I thought I was slick and could have a sip of my husband's delicious wheat beer (I know...saying that now I realize how dumb I was) and today I feel like I've been hit by a bus. All of my symptoms came back all at once and smacked me into the ground. I guess I'll take this as a lesson learned because believe me I don't want to feel like this again and I can't believe I lived feeling like this for so long.

I've been gluten-free since May 18 and I've been quite happy and successful until today. Things that helped me:

READ - all that you can about living gluten free, I highly recommend Gluten-Free Cooking for Dummies and Living Gluten Free for Dummies. I'm not saying they are the best of what's out there but, they were a nice, comfortable place for me to start.

PLAN - you really need to get yourself a prepared meal plan. What I mean is plan out your grocery shopping based on recipes you're going to try that week. Also plan what snacks and treats you'll have on hand for yourself so you aren't feeling deprived. In the store, READ every single label of anything you put in your cart and try to steer away from the processed foods. Go for fruits and veggies. I would also recommend trying to stay as organic and natural as possible. I try to keep a Larabar (Open Original Shared Link) in my purse for emergencies, they taste excellent!

STAY POSITIVE - no kidding, this is tough and for sure most people simply cannot comprehend what it takes to live gluten free. But, remember how icky you felt (or feel when you accidentally eat it) and think about how empowered you are to be able to take control of those symptoms and hopefully remove them from your day-to-day life.

I'm feeling gross with you today! Hang in there! Drink lots of water and take a nap :D

GFqueen17 Contributor

It's definately hard at first. You have to go shopping and find gluten-free foods that you really enjoy eating. That way you wont feel so deprived and it will be easier. Do you have a Wegmans or health food store near you? Either of those places would have all sorts of tasty gluten-free things.

(I recommend trying to find Pamela's gluten-free brownies. Follow the instructions that make them come out "fudge-like" and top with vanilla ice cream. So delicious you won't miss gluten food at all!)

gfpaperdoll Rookie

Hello, & hugs from me to. Don't sweat it, you will have to just start from today.

Please make your freezer & your lunch kit your best friends. Always take some food with you whenever you go anywhere, even if you do not think that you will need anything. I have an assortment of lunch kits, lunch bags, totes etc. being girls we have it easy that way... If I am going out to eat, I always have a few things with me, just in case, traffic jam, restaurant closed, anything, I at least have something to eat.

Always keep food & desserts in your freezer. If you can eat gluten Free Pantry's Brownie Mix, they freeze beautifully. You can even ice them. Really, all gluten-free desserts freeze well. I also make lemon bars & keep them in the freezer. I really do not eat this stuff much anymore, but I still keep a few things on hand if I decide I want something or for my gluten-free friends.

I do not eat the gluten-free bars, but there are some really good ones like Boomi. I do keep nuts in the freezer & lots of dried fruit, including large dates that still have the seed, so I can throw something together right quick.

A hint to liking yourself, treat yourself like you would your child, or your best friend. If they were glutened accidently, would you on purpose feed them more? So yes, take youself to the spa & get a massage & a pedicure!!!! B)

Amyleigh0007 Enthusiast

Don't give up! When faced with a difficult situation (example - eat gluten vs. don't eat it) I find it helps to talk my way through it. I went back to work yesterday (I am a teacher) and there is always a TON of food at school. Parents are always bringing in treats for us. When I walked into the teacher work room there were lots of goodies and everyone was pigging out. I actually teared up with the realization that I couldn't eat any of it. I grabbed my diet coke and corn tortilla wrap and left. I reminded myself that I will get really ill if I eat gluten and I am not able to take care of my children. My health has improved so much since going gluten free and I don't want to go back to being sick. I also told myself that I need to lose those last few pregnancy pounds and eating cake, pizza, and cookies would not get me closer to fitting into my old clothes, but my healthy, gluten free lunch would. Anyway, when faced with a gluten situation try to talk yourself into being "good". It works for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.