Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

Shouldn't Celiac3270 Be Back On Line By Now?

Canadian Karen

By Canadian Karen
in Coping with Celiac Disease

Recommended Posts

Canadian Karen Community Regular
Canadian Karen
Posted

I thought for sure celiac3270 would have visited here to give us an update. I am kinda worried now.

I am sending more prayers his way that everything is okay.....

Hugs,

Karen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

I think he said wednesday or thursday. I wish I had some kind of update. I hope everything went well. Hopefully he'll be back here soon :D

mela14 Enthusiast
mela14
Posted

I was thinking the same thing too..........hope all went well.

Guest barbara3675
Guest barbara3675
Posted

Was on vacation for a week, what's up with celiac3270--what type of surgery is he experiencing? I sure will keep him in my good thoughts and look forward to his return.

Barbara

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Hey, I was gone for a few days, too. And I was wondering, if he's already back. Hm, it might have taken a little longer than everybody expected. I hope, he's fine.

Stef

flagbabyds Collaborator
flagbabyds
Posted

he said that he would be in the hospital for like a week so he should be back sometime soon

celiac3270 Collaborator
celiac3270
Posted

I'm back! I can't give a complete update, but I just wanted to inform you :). In the next hour I hope to get back here and I'll give you the full story.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mela14 Enthusiast
mela14
Posted

welcome back,

let us know how you are just as soon as you can.

hope you are on the road to wellness now!

celiac3270 Collaborator
celiac3270
Posted

Monday -- Surgery Day -- The doctor told me I was very lucky to have gone 14 years without a serious problem. Any one of the hundreds of times I've been sick, my intestines could have coiled around a vein cutting off the blood supply and essentially killing an organ. I had to sit around in the waiting room all day until about 4:00 in the afternoon (since they were squeezing me in on an "emergency basis." In the procedure, they made three incisions--one in the bellybutton, one about halfway between my belly button and the left-most part of my abdominal area, one on the right. The incisions were small--maybe three centimeters each. They stretched out my intestines (side to side) as much as possible in the "LADS Procedure". They also took out my appendix since it's in the wrong spot as a result of all this and as a result of this, if I ever got appendicitis they would never find it--too dangerous so they took it out since it doesn't do much for me anyway. When I woke up I had a tube that went from my stomach through my throat and up into my nose and out into a container. They had suction on it so it was removing a greenish liquid from my stomach. The doctors said that since they had to touch the bowels and intestines so much, they sort of froze up. My throat and nostril got really sore from the tube over the next few days. I also had an IV of course, and some oxygen since I wasn't breathing as deeply as they wanted. The oxygen tube was removed a day later. I was in a room with a little child and I couldn't sleep much because to ladies on the other side of the curtain had loud childs music playing all night and were talking in Spanish extraordinarily loud--the way I might yell, or at least raise my voice--plus the child cried a lot. I got moved to a private room the next day by the nurses who felt sorry for me :):lol: .

Tuesday, Wednesday -- Recovery -- They took the oxygen tube out, but the other tube hurt so much. I still wasn't allowed to eat or drink anything. The cuts weren't as bad as the throat pain...I had morphine to control any pain I had, but I stopped using it when I was told it could slow up bowel progress--I didn't want to sit there for days waiting. They moved the tube about an inch higher since it was a little low in my stomach--really painful. I sat in a chair for a half hour Tuesday, but it made me nauseous and dizzy. Oh, and I started walking Wednesday since that would also help me to recover and get things moving--with a stand of all the drips and pain meds.

Thursday -- I walked a tremendous amount (for post-operation)--49 laps around the floor, which consisted of four long hallways--with my stand of meds again :). Still the tubes down my throat, but they were, to my relief, removed late in the day--due mostly to my walking-- and they let me eat a lemon ice (gluten-free) and a little chicken broth--hot water with an unopened package of "Herb Ox" powdery stuff to put in it--also gluten-free, of course.

Friday -- The doctors told me that I could start eating solid foods without any restriction--though I made sure to eat slowly and walk after eating to keep things moving so I wouldn't aggravate anything and need the tube put down again. 1st BM....lol....I'm not sparing any details. I did a lot more sitting in the chair--actually, Thursday I spent most of the day walking, second most in a chair, then the least time in my bed and Friday I was a little tired, but I sat in a chair again for most of the day. They disconnected the drip from the IV in my hand and reconnected it later to give me something else. I was extremely surprised when the doctors came in around 5:30 and said I could go home if I wanted to, since on Wed./Thurs. had been predicting Saturday--maybe late afternoon--and only that soon because I was so diligent about walking and sitting up and trying to recover.

Carriefaith Enthusiast
Carriefaith
Posted

That tube thingy sounds painful :(

I'm really glad that you are home and doing well though :D

I wish you a great recovery and hopefully you will be symptom free forever B)

Best wishes

angel-jd1 Community Regular
angel-jd1
Posted

Welcome back kiddo!! Now get off the computer and GO REST!!!! You just had surgery silly. Take care of yourself.

-Jessica :rolleyes:

stargirl Apprentice
stargirl
Posted

Feel better quickly celiac3270!

mela14 Enthusiast
mela14
Posted

glad you're back! You will get better and stronger each day. Just give it time and rest a lot. Your body need it. You've been through a lot!

I've had 7 surgeries for abdominal adhesions and it takes evrything out of you but you WILL recover.

Hang in there and keep us posted!

celiac3270 Collaborator
celiac3270
Posted

Thank you ;)

P.S. What was really cool was that one of the nurses--she added the medications to my drip and stuff on--Wednesday, I think--was celiac herself! Had never heard of celiac.com, checked for celiac sites on the internet, or known that there were gluten-free restaurants in NYC. She asked if I could e-mail later, which I will--and visited the message board while I was in the hospital

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Wow, good to see you back and on the way to recovery :D . Interesting story, that with the tube indeed does sound very painful :( . That with the nurse, that she had celiac, that's just one proof, that there are more and more patients with celiac out there :lol: . I don't wish it to them, but our world gets much better through that though. I'm glad to hear, everything went well at the end. Keep us posted about your recovery :D .

Hugs, Stef

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Hello, celiac3270!

mommida Enthusiast
mommida
Posted

Glad to hear everything went well.

My family wishes you a speedy recovery.

Laura

Canadian Karen Community Regular
Canadian Karen
Posted
  • Author

Well, Mister Readingracer!!!!

I sure is a relief to hear from you!!!!

I am glad you are home safely and it sounds like it's wasn't exactly a walk in the park, eh? Oh well, it will all be worth it once you start feeling so much better than you have in years!! God was watching out for you in regards to the doctors telling you that you were very lucky that some much more serious didn't happen.

Now make sure you get some rest and recoup your strength....

Hugs,

Karen

celiac3270 Collaborator
celiac3270
Posted

I was back at the hospital a little sooner than expected: about 2:30 (Eastern time). This morning I had some swelling....I'm pretty open about things, but I won't go into a tremendous amount of detail here--just the scrotum becoming very enlarged and they told me to come in. It's some sort of infection with the epidydimus (sp?) ...antibiotics for 10 days....released around 6:30, though and hoping I won't be leaving home again for a little while.

Maggie1956 Rookie
Maggie1956
Posted

So glad you're on the mend celiac3270. :D It sounds like you've been through quite an ordeal, so take it easy for a while, ok?

Please keep us posted. We're looking forward to hearing about your progress toward total good health. ;)

lbsteenwyk Explorer
lbsteenwyk
Posted

Welcome back, celiac3270. I'm so glad your surgery went well. You've been in my thoughts these past few days. As someone else said, it does take time to recover from surgery, so take it easy!

cdford Contributor
cdford
Posted

Been praying for you. Glad you are better and home again. Those tubes are awful. What was even worse for me was not being able to communicate well. Maybe that is the last time you will ever have to experience it.

Twister2 Contributor
Twister2
Posted

Hi celiac3270! Glad to hear you are recovering well, what an ordeal! I hope you feel better soon and hope the surgery works well for you in the long run.

Keep us posted!!

Hugs,

Twister

plantime Contributor
plantime
Posted

{{{Hugs}}}!! Rest and recover. Give yourself time. Take care of yourself! I'm glad you were able to reach out to that nurse, maybe now she doesn't feel so alone with celiac.

mela14 Enthusiast
mela14
Posted

boy...it's always something. don't get discouraged. take the antibiotics and rest. you'll be be on your feet soon enough. don't foget to take probiotics with the anitbiotics!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to yellowstone's topic in Coping with Celiac Disease
      3

      Has someone experienced discrimination because of their illness?

      Regarding the discrimination you asked about, it is a lot more easy now to discriminate when you're supposed to answer whether or not you have celiac disease on job applications, and from what I've seen, MANY companies now include this question on their applications:
    2. Scott Adams
      - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      2

      When Home Isn't Safe: Celiac Disease, Cross-Contamination, and the Right to a Gluten-Free Space

      It's too bad relationships end because of this disease, but I suppose that being healthy may be more important than being married or living with someone who isn't on board with the gluten-free diet.
    3. Flash1970
      - Flash1970 commented on Scott Adams's article in Spring 2026 Issue
      2

      When Home Isn't Safe: Celiac Disease, Cross-Contamination, and the Right to a Gluten-Free Space

      This is a huge topic. My ex husband didn't care. Even though I had my own area where his food wasn't allowed, I'd find crumbs. I was always constantly cleaning. I threw a lot of food away because I wouldn't be sure if he had contaminated it. It really showed what a narcissistic person he was and is. Now I'm in my own home. Much better. I do have dogs...
    4. Russ H
      - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

      People with coeliac disease have an altered gut biome compared with those who do not, which may be associated with gut inflammation. Although the gut biome recovers on a gluten-free diet, there are still significant differences at 2 years. In a mouse model of coeliac disease, supplementation with the soluble dietary fibre, inulin, increased the number...
    5. suek54
      - suek54 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      46

      Shaking/Tremors and Off Balance

      Hi Ginger38 Well done you for pushing through the pain barrier of eating gluten, when you know each mouthful is making you poorly. I went through the same thing not long ago, my biopsy was for dermatitis herpetiformis. Result positive, so 95% certain I have gut coeliacs too. But my bloods were negative, so very pleased I went for the gluten challenge...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,941
    • Most Online (within 30 mins)
      10,442
    Sensible
    Newest Member
    Sensible
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Has someone experienced discrimination because of their illness?

      By Scott Adams · Posted

      Regarding the discrimination you asked about, it is a lot more easy now to discriminate when you're supposed to answer whether or not you have celiac disease on job applications, and from what I've seen, MANY companies now include this question on their applications:  
    • Russ H
      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

      By Russ H · Posted

      People with coeliac disease have an altered gut biome compared with those who do not, which may be associated with gut inflammation. Although the gut biome recovers on a gluten-free diet, there are still significant differences at 2 years. In a mouse model of coeliac disease, supplementation with the soluble dietary fibre, inulin, increased the number of beneficial microbes and reduced gut inflammation. Inulin is used by some plants as carbohydrate store, it is a complex polymer of fructose in the same way that starch is a complex polymer of glucose. Inulin cannot be digested by humans but serves as food source for some gut bacteria. Inulin is present in many vegetables but the richest sources are (g/100g): chicory root 41.6 Jerusalem artichoke 18.0 dandelion greens 13.5 garlic 12.5 leeks 6.5 onions 4.3 The Scientist: Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease    
    • suek54
      Shaking/Tremors and Off Balance

      By suek54 · Posted

      Hi Ginger38 Well done you for pushing through the pain barrier of eating gluten, when you know each mouthful is making you poorly.  I went through the same thing not long ago, my biopsy was for dermatitis herpetiformis. Result positive, so 95% certain I have gut coeliacs too. But my bloods were negative, so very pleased I went for the gluten challenge and biopsy.  Hang on in there. Sue
    • Scott Adams
      Has someone experienced discrimination because of their illness?

      By Scott Adams · Posted

      When symptoms like fatigue, brain fog, or low energy change how we interact, others sometimes misinterpret that as disinterest, rudeness, or negativity—especially if they don’t understand the underlying condition. That doesn’t make their behavior okay, though. You don’t deserve to be treated poorly for something outside your control. Often, it reflects a lack of awareness or empathy on their part, not a fault in you. It can help to explain your condition to people you trust, but it’s also completely valid to set boundaries and distance yourself from those who respond with hostility. Your experience—and your reaction to it—makes sense. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      HLA-DQ2 POSITIVE it's nothing

      By Scott Adams · Posted

      Being HLA-DQ2 positive doesn’t diagnose celiac disease by itself, but it does mean he has the genetic potential for it, so it absolutely deserves careful follow-up if symptoms or concerns are present. You’re right that celiac is often downplayed, but it’s a serious autoimmune condition—not an allergy—and it can affect the brain, nervous system, and overall health if untreated. Given everything your son has been through, you’re doing the right thing by advocating and asking questions. I would strongly recommend getting a full copy of his records, and if possible, consulting a gastroenterologist who understands celiac disease well so you can get clear answers and, if needed, proper testing and monitoring.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.