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SAHM2one

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SAHM2one Contributor
SAHM2one
Posted

My doctors nurse just called and said that my celiac panel is negative but my IgA came back low. What does this mean? I went gluten free today and feel great, now stomach pains, no headaches, no joint pain.

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ravenwoodglass Mentor
ravenwoodglass
Posted

It means that because your IGA levels are low you may have a false negative.

The truest test is the diet and if your improving on it and you do not plan on having an endoscopy for diagnosis then there is no reason not to continue. Do be aware though that if you are gluten free and then later decide to challenge for a biopsy you will need to challenge for at least 3 months for any chance for the biopsy to be positive. And that challenge may make you much more ill than you were before you went on the diet.

Welcome to the board and ask any questions you may need.

lizard00 Enthusiast
lizard00
Posted
My doctors nurse just called and said that my celiac panel is negative but my IgA came back low. What does this mean? I went gluten free today and feel great, now stomach pains, no headaches, no joint pain.

Welcome to the board!!! I am IgA deficient, too. Assuming that you just went gluten-free today, if you want to be retested, do it NOW and ask them to run the IgG versions of the Celiac panel. I wish I would have known that back in Dec 07 to have been retested myself. I ended up being genetically tested in May of this year, and thankfully ended up with a wonderful GI who knew what was up.

Anyway, most GP's (if that's who you went through) know relatively little about Celiac, and chances are that they didn't run the IgG tests. It will require another blood draw, but if you are anything like me, you won't stop until you know for sure what's going on.

Otherwise, I'm glad that you already feel better. I had stomach pains and nasty headaches. Living with those everyday was absolutely horrible. I stuck with the gluten-free diet, even though I had negative blood work simply because my headaches went away.

Wish you the best!!!

SAHM2one Contributor
SAHM2one
Posted
  • Author

If they didn't do an IgG then I will go and get one today! Being gluten free yesterday and today shouldn't effect that test should it?

ShayFL Enthusiast
ShayFL
Posted

Hopefully not. But get it done ASAP!

Again, the diet is the only true diagnosis. And you are feeling better. Yeah!!

happygirl Collaborator
happygirl
Posted

Take this in with you if your doctor considers you IgA deficient.

Open Original Shared Link See "One more thing" on page 2

SAHM2one Contributor
SAHM2one
Posted
  • Author

Thanks again. I am feeling better! Still have some symptoms but I can't expect them to go away over night. I am eating without feeling sick afterwards now though! I am waiting to hear back from my doctor, I called this morning. I am not think he is going to be that helpful though, he has already said he doesn't know what is wrong with me and sent me to another specialist who blamed everything on my gastric bypass. I have a feeling I am going to have to do this on the diet alone. If it keeps working I will just have to go with it.

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SAHM2one Contributor
SAHM2one
Posted
  • Author

I don't know what to do. My doctor called back and they didn't run an IgG and he said he won't order it. I can call my GP and see if he will do it but he probably won't since his friend, they work for the same practice, said no. Instead they want to send me to UNC.

Thankfully I have a great Gastro doc up there so I called him and am waiting to hear what he says. Hopefully someone can help me out. If this isn't celiac disease then someone needs to come up with some ideas!

Jestgar Rising Star
Jestgar
Posted

You may never get a positive diagnosis for Celiac. Many people don't. Fortunately the choice of what to put in your mouth is yours. If you feel better without eating gluten, then don't eat it. Yes, the change-over is difficult, but once you've gotten used to it, it's just like any other carefully controlled diet.

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