Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extremley Sleepy


Chrissyb

Recommended Posts

Chrissyb Enthusiast

Has this happened to anyone else. I am not sure if this is still a reaction to eating a braut that was a beer braut (hubby didn't read the package ). This was about 2 weeks ago and since then I have been extra careful not to eat anything with gluten and we have not eaten away from home. My stomach is still a mess but the biggest problem is I can't seem to stay awake. I wil be sitting and watching a tv show and the next thing I know the next program is on.

Now I do have other health issues and I have gone through all thoses and they are not causeing this. I don't have a fever or a cold. This is getting annoying I can't seem to get much done no matter how hard I try :angry:

This all wouldn't be so bad if I was Sleeping Beauty looking for my Prince Charming. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



neesee Apprentice

I'm completely the opposite. When my stomach is in pain, there is no sleeping. I never get sleepy from a random glutening.

neesee

healthiernow Newbie

I have no insight on helping you with the reaction, but are you still getting enough protein since that mean braut? That might help?

mm&j Apprentice
Has this happened to anyone else. I am not sure if this is still a reaction to eating a braut that was a beer braut (hubby didn't read the package ). This was about 2 weeks ago and since then I have been extra careful not to eat anything with gluten and we have not eaten away from home. My stomach is still a mess but the biggest problem is I can't seem to stay awake. I wil be sitting and watching a tv show and the next thing I know the next program is on.

Now I do have other health issues and I have gone through all thoses and they are not causeing this. I don't have a fever or a cold. This is getting annoying I can't seem to get much done no matter how hard I try :angry:

This all wouldn't be so bad if I was Sleeping Beauty looking for my Prince Charming. :D

mm&j Apprentice

I just wrote another post about being extremely discouraged and then I saw yours and wanted to say that yes from the beginning, extreme fatique and sleepiness have been some of my biggest issues. I feel like I have been drugged or perhaps had 5 margaritas and then am trying to function. It lasts long after I injest some gluten. I really don't know what to do anymore. I am so careful and then perhaps I get a crumb or some cross contamination and I am sick and TIRED for a month or more.

mm&j (Susie)

jerseyangel Proficient

I still get a lot of fatigue with being glutened. In the evenings I can hardly keep my eyes open, but will wake up several times during the night. I know the glutening is subsiding when I'm able to sleep through the night again :)

ShayFL Enthusiast

I had that constant sleepiness. gluten-free wasnt enough. But I noticed when I cut out all grains it went away. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Amyleigh0007 Enthusiast

Yes! Fatigue was one of my biggest symptoms! I would go to sleep around 8. I would also take naps as often as I could. It's totally different now. I have much more energy.

mftnchn Explorer

Yes, I have had the fatigue and sleepiness, and it is hard for me to trace the cause. It is one of my lyme symptoms too, plus the form of asthma I get makes me sleepy. I don't wheeze, just can't get a really deep breath and the sleepiness is from reduced oxygen.

However, I have had a big improvement the last several weeks on the SCD, especially after the first week when it was worse, probably from die off of bugs. So I'd agree about the grains, but maybe even more so, it might be carbohydrate related. Check out the winter 2003 edition of Scott's newsletter for the article on healing which talks about the enzyme problem for carb digestion. If your gluten-free carbs are going through undigested this could cause a lot of problems. A glutening might just be tipping the scale but not totally the cause of your symptoms.

I'd suggest checking to make sure your vitamin D levels are adequate. If you read on the chronic fatigue websites, they often mention various infections, and also even mention increasing D as a first step (and sometimes have herxes like with lyme disease). Celiac compromises our immune systems so I think getting these other things is more possible and harder to fight off. Vit D helps regulate immune system. My levels were very very low and getting them up also has helped a lot with fatigue.

GFinDC Veteran

Hypothyroidism can cause sleepiness also. It might be a good idea to get your thyroid levels checked sometime if it continues for a while after going gluten-free.

curlyfries Contributor

Before I knew I had gluten issues I used to be extremely drowsy in the mornings and after lunch. I have fibromyalgia, so I figured it was a symptom of that. I read that fibro's need high protein, low carb, so I stopped eating cereal for breakfast and sandwiches for lunch............huge improvement.

So was it gluten, or grains in general?.....or carbs?......I don't know.

Chrissyb Enthusiast

Wow you guys have a lot of great info. I know that my ms plays into this to and my neruo has mentioned my vit. D so maybe it is time to have it checked. As far as grains I don't think I have that many I think we have pasta once every other we and rice once a week. I don't even eat bread or anything like that anymore. I will start keeping a food diary and check my sysmptoms, I am bad about that I start and then I don't keep up on it . Thanks again for all your help.

SiouxsieKim Newbie

I would definitely recommend getting your thyoid checked. When I went ot the docs for help with my gastrointestinal problems and fatigue they found hypothyroidism which slows your whole body down. I could sleep for 14 hours and still be tired! There is a strong connection between this and Coeliacs. It says on the NHS website in the UK that Coeliacs can cause hypothyroidism. Instead of antibodies attacking gluten they attack your thyroid gland so it doesn't work properly. Apologies if you knew all this and have already had it checked. I find though that I still get really tired (like today I've been fighting heavy eyelids sat at work) and need to get my thyroid checked regularly. But I also accidently ate gluten the other day and since then I have felt tired and my stomach has been a mess. I understand its a very frustrating feeling :(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,134
    • Most Online (within 30 mins)
      7,748

    Driver
    Newest Member
    Driver
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.