Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Know?


HeyItsA

Recommended Posts

HeyItsA Apprentice

Good morning!

I started the gluten-free diet about 2 weeks ago and trying to be as careful as possible, I still get bad back pains and the occasional slight stomach bloat.

I have read about cutting other foods out of your diet, but how do you know where to start? How long do you give it to rule it out either that it is bad for you or causing no problems?

I know that everyone is different but is there a "general"way to start?

Also, does the gluten linger in your system?

Thanks

Amanda :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Many people have great success in eliminating ALL dairy with the gluten. And them many can add dairy back in once the intestines heal. Give it a good 2-3 months before trying dairy again. Soy is another big troublemaker for a lot of people in here. But try cutting out one thing at a time so you are not overwhelmed and so you can pinpoint the culprit. If you eliminate 5 things and feel better, you wont know which one it was.

This order is a good start:

Gluten

Dairy

Soy

Corn

Eggs

Just keep in mind ANY food can be a problem. But if you take it one step at a time, it isnt so overwhelming.

happygirl Collaborator

Not everyone with Celiac or who has a gluten intolerance has problems with other foods. If you have only been gluten free for two weeks, the damage done by Celiac has probably not healed, and it may take a bit longer to feel better (if gluten is your only problem).

ravenwoodglass Mentor

You are new to the diet and it does take some time to heal. I do agree with eliminating dairy now. The same villi that are damaged by celiac also are used in the formation of the enzyme that helps us digest the sugar in dairy. It will greatly speed your healing to stop the dairy until you have been feeling better for a while. Then you can challenge it by adding it back in slowly. Start with yogurt and hard cheeses, they are kind of 'predigested' and easier to tolerate. If those sit well then add in milk on cereal and in recipes. There are some good nondairy milks but you should IMHO avoid soy milk for now.

In the beginning it can be very helpful to start out with mostly unprocessed foods. Fresh fruits and veggies, meats, nuts etc. The less ingredients the better in the begining.

Do give yourself a good 2 months or so GFDF and then if you are still having issues you can start eliminating other suspect items.

Also be sure to check shampoos, conditioners, lotions, art supplies, pet food and any processed item you buy for a gluten statis before you use.

I hope you heal quickly, it is a real hassle at first but things do get easier.

HeyItsA Apprentice

Thanks! I appreciate your responses. I will try the dairy and see what happens. The further along I get, the better I feel for longer periods of time. I know it has only been 2 weeks.

I have tried *fingers crossed* to keep out as much processed foods as I can. They must dont even taste good and having the thought constantly running through my head of the consequences, it hasnt been that hard LOL.

Thanks again - and bye bye for now to dairy :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,661
    • Most Online (within 30 mins)
      7,748

    CarlaP
    Newest Member
    CarlaP
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
    • Julie 911
      I finally got rhe answer and Tylenol is ok. Thanks everyone 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.