Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

To All The Type One Diabetics Out There


KristaleeJane

Recommended Posts

KristaleeJane Contributor

Hello Everyone.....

My younger sister who is 20 and a type one diabetic since the the age of 11, decided to get tested for celiac after I convinced her that it can be hereditary (I got dx 6mths ago).

Even though she has absolutly NO symptoms (lucky girl) she went ahead and got her doc to do the blood work, her Iga or ttg not sure which one she had done, came back 86. Mine was 96, so more than likely she has celiac, next will be the biopsy I am assuming to confirm this dx. My question is she has always had issues with her blood sugars being out of wack, and also has polycystic ovary syndrome.

Could the celiac be affecting her sugar levels????

and be contributing to her constant high blood pressure & kidney problems.

Any advice appreciated

thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



~alex~ Explorer

Hi,

Celiac disease definitely could have been effecting your sister's blood sugars. I was diagnosed with type I after celiac so I don't have much experience with undiagnosed celiac affecting blood sugars but whenever I am glutened my blood sugar gets pretty erratic. I would bet that once she has been on the gluten-free diet for awhile and her villi heal there will be a good chance her blood sugars will become more manageable and predictable. Also the gluten-free and diabetic diets are pretty complimentary so that should help her too. I'm not sure about the polycystic ovary syndrome or the kidney problems so hopeful someone else can speak to that.

elye Community Regular

I have been type one diabetic for 35 years, and a diagnosed celiac for three. I have had tight blood sugar control for a number of years now, so I don't think that the celiac disease affected my blood sugars in the past....but NOW, when I am glutened, my blood sugar shoots up. It gives me added incentive to stay gluten-free, for sure!

As Alex has said, the diabetic diet goes very well with the gluten-free way of life...this is likely because there tends to be a limiting of carbohydrate while gluten-free (at least for me), which keeps blood sugars steady.

I'll bet your sister finds a new life of GREAT control once gluten-free..... :)

2kids4me Contributor

My son was diagnosed Type one at age 9 (2003) and celiac the following year. Erratic blood sugars were occuring for about 4 months prior to diagnosis ... his sister was diagnosed celiac first, then they tested Matt immediately - and confirmed by biopsy. His outward symptoms were not as pronounced as his sisters - yet he had way more damage to his villi on biopsy.

Going gluten free will likely help those erratcic readings.

The damaged villi are inflammed so the body is in a constant state fo trying to repair the damage.

Carbohydrates are absorbed in an "uneven fashion".....sometimes they are not absorbed well or the opposite effect "carb dumping" as they are absorbed too quickly...this is what can cause unexpected highs and lows in a diabetic.

Hope this helps.

RiceGuy Collaborator
Hello Everyone.....

My younger sister who is 20 and a type one diabetic since the the age of 11, decided to get tested for celiac after I convinced her that it can be hereditary (I got dx 6mths ago).

Even though she has absolutly NO symptoms...

My question is she has always had issues with her blood sugars being out of wack, and also has polycystic ovary syndrome.

Could the celiac be affecting her sugar levels????

and be contributing to her constant high blood pressure & kidney problems.

Any advice appreciated

thanks

Well, I'd say she most definitely DOES have symptoms. Just not the ones we might expect as typical. Diabetes, infertility, kidney disease, and many other things are associated with Celiac Disease. Many don't get the classic weight loss and D.

Just take a look at this list of associated diseases and disorders:

https://www.celiac.com/categories/Celiac-Di...-and-Disorders/

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.