Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Contribute Your Helpful Tips To Help Others!


Nutrifocus

Recommended Posts

Nutrifocus Newbie

Hello!

I am a dietitian and am updating a book I wrote on gluten free diets. I would like to include tips from people who have celiac disease into the book so that those tips can help others with the same medical condition. These can be any type of tip that helps you get through your day easier as someone on a gluten free diet. It can be cooking, favorite food products, eating out, etc... Anything that makes your life easier that you would like to share with others so that they might make their life easier as well. I will add your name to your tip in the book!

THanks so much!

Kim Tessmer, RD LD


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



purple Community Regular

Simple thing to do. Cook extra and freeze it in plastic bags then plastic containers. Label them with food item and the date. Take out of the freezer, cut the bag open and plop it into a glass dish to microwave. No mess and fast. Rephrase it however you need to.

mamaesq Rookie

I've only been gluten-free for 9 days, but I've noticed such an amazing difference in how I feel that whenever I want something like real pasta or a non gluten-free beer, or just one bite of the grilled cheese sandwich I made for my 2 year old, I just remind myself of how far I've come already and how big of a setback that one bite or sip would be. So far, that has kept me completely on track.

Not really a food related tip, per se, but a coping tip, I guess!

Stacy

mushroom Proficient

Likewise, not really a helpful tip, but I have convinced myself (and it actually is for me) that everything that contains gluten is a poison. My husband and I joke, look at that plate of cyanide or (arsenic). It has reached the point for me that I do not crave all the goodies I used to love, I find them revolting.

zero Newbie
Likewise, not really a helpful tip, but I have convinced myself (and it actually is for me) that everything that contains gluten is a poison. My husband and I joke, look at that plate of cyanide or (arsenic). It has reached the point for me that I do not crave all the goodies I used to love, I find them revolting.

I was in the check out of whole foods and the person behind me had a clear plastic bag of a dozen bagels. I was actually disgusted by the sight which amazed me as I loved bread before my diagnosis. I wonder how many gluten-free people have cravings now vs. those that are repulsed by the forbidden foods.

Treen Bean Apprentice

Even thought there are gluten free noodles, etc... readily available. There are naturally gluten free products that can easily be substituted. ie: Use a roll of prepared polenta in place of lasagna noodles. Simply cut it in 1/4 inch slices and layer like noodles.

Good gluten free brands include: Tinkyada Pasta Joy; Kinnikinnick; Pamela's baking mixes; Chebe bread mixes; Laura's Gluten Free Rolled Oats

Triumph Dining Cards are invaluable when it comes to eating out. These laminated cards clearly list foods containing gluten, questionable foods, and safe foods. Better yet, these cards are cuisine specific and multilingual. All cards are written in both English and the native language of the specific cuisine.

Restaurants with gluten free menus include: Outback Steakhouse, Maggiano's, PF Chang's; Carabba's; Legal Seafood... to name a few

Experimentation is the key to finding products that fit your specific needs and tastes. Trial and error and learning to laugh at your mistakes are essential.

zero Newbie

Forgot to add my tip that for a celiac who doesn't like to cook, having a rice cooker with a timer has been a life saver. I load it up in the morning and it is ready when I get home.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RoseTapper Newbie

It used to be a problem when co-workers would invite me to lunch because they would invariably choose to go to a Japanese restaurant = bad news for a celiac when you're also allergic to seafood. I now keep wheat-free Tamari sauce in the fridge at work and bring it along to use on the salad and meats. The restaurants never protest. Likewise, when my family wants to eat Mexican food, I bring my own corn tortillas and gluten-free beer.

henny Explorer

I am finding that often my savior is fruit.

If I'm stuck on the road or end up in a cafe, I can usually score a banana or apple. It seems like every gas station, Starbucks, and convenience store in my area has a few pieces of fruit for sale. It's something that I know is safe to eat, and it's good for me too :)

frec Contributor

In restaurants I usually order some sort of meat without the sauce or pasta or whatever. Restaurants are noisy and waiters are often young and in a hurry. The best way to really make it clear to them is to ask for BARE NAKED chicken, or BARE NAKED pork. Usually they are embarrassed or they giggle but they do get the idea. Tell them to cook it in a separate pan and specify what oil they can use, if any. And give good tips, so they are nice to the next allergic/celiac person who comes in.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,954
    • Most Online (within 30 mins)
      7,748

    apage
    Newest Member
    apage
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.