Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ate Something Baaaddd This Weekend...

givenupgluten

By givenupgluten
in Coping with Celiac Disease

Recommended Posts

givenupgluten Explorer
givenupgluten
Posted

I must have had something to eat on Friday that threw my stomach off..although I'm not sure what it was. Anyway, i'm pretty darn careful when it comes to eating gluten free and rarely eat things that I don't cook myself (out of convenience more than anything else.) However, I do get bloated alot still...and most of the times it goes away eventually. However this weekend, after what I'm assuming was a bad food episode, I was gassy and disgusting all weekend. It hurt to sit up straight and I was so scared to leave the house the few times it did ease up, that I was homebound most of the weekend. In the past, before going gluten free I had ALOT of anxiety surrounding taking the train to work, or being in any place/position where a restroom wasn't near by. Some of this has carred over into my new gluten free existence, simply out of habit...although I'm trying hard to break it. I guess my question is, is there anything for the bloat that works? I've used gas x which doesnt even begin to touch it. Is there anything else? This doesnt happen alot...but it still happens - especially after eating certain foods (of which i havent' pinpointed yet) and everytime I travel. It's very embarrassing to be so bloated you can go out when you travel. I'm so sick of this...Will this be something I just have to live with?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted
This doesnt happen alot...but it still happens - especially after eating certain foods (of which i havent' pinpointed yet) and everytime I travel. It's very embarrassing to be so bloated you can go out when you travel. I'm so sick of this...Will this be something I just have to live with?

I still had some gas, bloating, and abdominal pain after I stopped eating dairy and gluten. When I stopped eating corn it disappeared. Wow! I never would have guessed. :lol:

Is there anything you started eating a lot more of when you went gluten-free? Corn was my substitute. Maybe I always had a corn problem, but I didn't notice because I wasn't eating such large quantities. Or maybe it was just too irritating for my overworked digestive system... and I'll eventually be able to eat corn again. Keeping a diary of your diet and symptoms could really help you pinpoint the culprit.

Also... how diligent have you been about gluten? I had to stop eating Clif bars after I realized they have brown rice syrup and they were making my symptoms worse. Have you checked your medications and supplements?

YoloGx Rookie
YoloGx
Posted

Apart from herbal suggestions to help heal your intestines and liver from undigested food proteins (marshmallow root, yellow dock and dandelion root) I suggest taking a teaspoon or two of baking soda in a glass of water and then chase with another glass of water. It works miracles!

I also suggest taking bromelain/papain caps with your meals to help digest them--and pancreatin if you eat any meat or other heavy protein. Milk digesting enzymes could be important too... And for some they need HCL if they don't have enough stomach acid.

Bea

jerseyangel Proficient
jerseyangel
Posted
Is there anything you started eating a lot more of when you went gluten-free?

This is a very good point. I began to have food intolerances a few months after going gluten-free. A huge source of symptoms for me (gas, bloating, eczema, cramping) were legumes. Other things to consider are corn, as was suggested, soy, dairy and eggs. I also have problems with tapioca which I never would have known about except that it's in so many gluten-free baked goods and mixes.

If you use artificial sweeteners, they can cause gas, bloating and D--even Splenda in some people (me).

My GI suggested Phazyme for gas--the softgels are gluten-free. (the chewable is not) Once I figured out that the legumes were the culprit, I didn't need to take it anymore :)

givenupgluten Explorer
givenupgluten
Posted
  • Author

Wow, great advice from everyone! Thank you so much...

I have started to eat more corn (in the form of tortillas and chips) since going gluten free. I'm a vegetarian, basically vegan, so I eat very little cheese/dairy and no meat products. However, I do drink soy milk once in awhile. I try to eat very little processed food and avoid 'fake meats' like the plague. I do feel I'm pretty deligent about avoiding gluten, but it seems like almost anything will set off the bloating. I have noticed a little trouble after eating corn tortillas. It doesnt happen every time I eat them, so I'm not quite sure whether that's the culprit or not. Seems like corn is a big issue for alot of people, so that's very possible. When I started having the MAJOR bloat this past weekend, it was after eating falafel (homeade, gluten free) with rice. I made a large batch and had been eating it for dinner all week. It's quite spicy though, so perhaps the spice was the problem? I guess I need to keep a very specific food journal in order to get to the bottom of it.

I do have some bromelain at home -I bought it awhile back as an herbal anti-inflammatory of sorts, but I had no idea it was good for digestion too! I'm going to start taking it..it's been sitting on my shelf just going to waste!

Also, is the Phazme your dr. recommended something you can get over the counter? I have never heard of it, but would be interested in having it around for really bad situations like I experienced recently..

Thanks again for everyone's help!

jerseyangel Proficient
jerseyangel
Posted

I think a food diary is an excellent idea--that should help you detect a pattern.

Yes, Phazyme is over the counter. :)

missy'smom Collaborator
missy'smom
Posted

If it was me, I would check all the ingredients in the falaffals and make sure there was no chance for cross-contamination, in the flours, spices etc. That would be enough to give me symptoms. I have had problems with spices purchased in bulk at an Indian market because they were processed on shared equipment. If there's a little, I might react right away but especially if I ate the same thing several days in a row. I've run into this with products that were labeled gluten-free and tested to be less than 5PPM. I figured it out because that was the only new thing I'd had and I called the company to get info.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.