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Vomiting With Celiac

astid929

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astid929 Newbie
astid929
Posted

I was just curious if anyone out there had vomiting as a major symptom of their celiac. I've read and understand that the symptoms are widespread (which is frustrating), but I've only seen one or two places that say vomiting sometimes occurs in children. I originally had an endoscopy b/c I was having "attacks" of V&D about once a week. They diagnosed with me Celiac - Marsh stage 3, yet my vitamin levels were sufficient and blood work was negative. I'm just not convinced and had no other symptoms. It's been 10 months since I've gone gluten-free and though I'm not vomiting anymore, I don't feel any other positive effects from the diet. Still tired, draggy and quite often bloated. I could go for a 2nd endoscopy, but I'm on the diet so that's not feasible. Colonoscopy came back clear. Thoughts?

Thanks!

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happygirl Collaborator
happygirl
Posted

You could go back for an endoscopy - to see if your villi damage has healed. If you had Marsh 3 damage, its pretty certain you have Celiac.

I think it would be well worth it to seek another opinion, in order to determine the cause of your symptoms. It could be something else going on.

Lisa Mentor
Lisa
Posted

Welcome!

Are you certain that you are 100% gluten free. Gluten can be very tricky and hide in the most unusual places. Could you getting bits of gluten from a used toaster, shampoos, lotions, lip balms, meds, vitamins...

Yes, vomiting was a part of my symptoms.

kenlove Rising Star
kenlove
Posted

I threw up daily for 6 months before being diagnosed a few years ago. That was the first a primary symptom before I started to get DH. Sure dont miss it all. I'f i get gluten by accident I have other troubles now but since going gluten-free i've not thrown up again.

Ken

I was just curious if anyone out there had vomiting as a major symptom of their celiac. I've read and understand that the symptoms are widespread (which is frustrating), but I've only seen one or two places that say vomiting sometimes occurs in children. I originally had an endoscopy b/c I was having "attacks" of V&D about once a week. They diagnosed with me Celiac - Marsh stage 3, yet my vitamin levels were sufficient and blood work was negative. I'm just not convinced and had no other symptoms. It's been 10 months since I've gone gluten-free and though I'm not vomiting anymore, I don't feel any other positive effects from the diet. Still tired, draggy and quite often bloated. I could go for a 2nd endoscopy, but I'm on the diet so that's not feasible. Colonoscopy came back clear. Thoughts?

Thanks!

TracyB Apprentice
TracyB
Posted
I was just curious if anyone out there had vomiting as a major symptom of their celiac. I've read and understand that the symptoms are widespread (which is frustrating), but I've only seen one or two places that say vomiting sometimes occurs in children. I originally had an endoscopy b/c I was having "attacks" of V&D about once a week. They diagnosed with me Celiac - Marsh stage 3, yet my vitamin levels were sufficient and blood work was negative. I'm just not convinced and had no other symptoms. It's been 10 months since I've gone gluten-free and though I'm not vomiting anymore, I don't feel any other positive effects from the diet. Still tired, draggy and quite often bloated. I could go for a 2nd endoscopy, but I'm on the diet so that's not feasible. Colonoscopy came back clear. Thoughts?

Thanks!

Just curious - you said your bloodwork was negative - do you mind me asking what range you were in - I think the tTg (TtG?) range is 0.0 - 20.0. My bloodwork was negative too but I'd like to have a biopsy to know for sure. It will likely be a very long time before that happens since my bloodwork is negative -but my symptoms have been lifelong, so who knows what it will show. It's hard to get in with a specialist here in Canada - can take a long time.

TracyB

dilettantesteph Collaborator
dilettantesteph
Posted

My guess is that you aren't vomiting any more because you have eliminated most gluten from your diet, but aren't 100% because you are still getting small amounts. I have been at this 11 months now and still keep getting small amounts. Lots of things that are supposed to be gluten free still have small amounts which make me sick. At our local support group the GI specialist speaker said that as small as 50 micrograms (not milli) can cause a reaction. That is a very tiny amount.

astid929 Newbie
astid929
Posted
  • Author

Thanks - I know the Marsh 3 is pretty definite but it confused me b/c all my blood work for vitamin levels, etc came back just fine. I had no weight loss despite the vomiting - so it's all a bit fishy to me.

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astid929 Newbie
astid929
Posted
  • Author

Thanks for the response - I should double check. I've been pretty religious about the gluten (new toaster, hardly eat out at all, take my food everywhere). I haven't checked all of my makeup though. How frustrating....

astid929 Newbie
astid929
Posted
  • Author

TracyB - I'll have to get back with you. I can't remember my range and will need to dig up paperwork! I do know that negative bloodwork doesn't necessarily mean anything. And - especially if you have a history in your family..

My doc said that bloodwork is totally questionable and that the only true test is the biopsy.

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