Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Llfestyle For Child


jzmom

Recommended Posts

jzmom Rookie

Just recently had my child tested for Celiac and the result came back negative. I had restricted his gluten prior to testing so I'm not sure if the results are accurate. My son has been vomiting for years. The Ped. Dr. was not concerned suggesting that he was just over indulging in high fat foods. After certain meals he would vomit, have unbelievable cramps, watery stool, leg cramps, itchy throat, head aches, tingly tongue and asthma attacks. Once everything was out of his system he would feel much better, although run down. Sometimes this would happen several hours after eating and that is why it was not as obvious as one would think. I decided to have him allergy tested (Blood). He is allergic to wheat, soy, eggs, nuts, chocolate, carrots, apples, peas, raw fruit and vegetables as well as some seasonal grass tree and pollen. I give him millet and rice which seems to be fine. I am having a hard time finding food that is without all of his allergies. I'm worried about all the vitamins he may be lacking. I started giving him wheat, soy, nut free digestive enzyme, extra Vitamin C, E, and Pro-Biotic. He said that he can't remember ever feeling as good as he does now and it's only been a couple of weeks. I'll need a second job to buy all the special foods he needs. Kids at school are teasing him because of the strange looking food he brings and Halloween was a sad day for him. If there are any helpful hints or suggestions on vitamins an dsupplements I would appreciate.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Welcome to the group!

I'm sorry you're having such a tough time finding new foods for your son to eat!! My son is younger (eight months), but he's really sensitive to casein and gags on just about everything. So far I've only found a few things that he'll open his mouth for after the first bite: rice cereal, "summer vegetables," chicken (mixed with the vegetables) and home-cooked squash. Usually kids like carrots, apples, etc... Not my son. I have a few thoughts for you...

- I wonder if your son has the DQ7 gene. I do and I'm pretty that's the one my son got from me. It's rare for it to cause celiac disease, but it is associated with gluten intolerance, cow's milk intolerance, grass and pollen allergies, lupus, thyroid disorders, and something called "Oral Allergy Syndrome." If you have OAS, a lot of raw fruits and vegetables upset your upper digestive system... tingly tongue, itchy throat, sensitive stomach. Cooking is supposed to help a lot. The good thing is that this is not a life-threatening allergic reaction. Your son might even tolerate some of those foods again once his digestive system heals.

- I think it's a great idea to keep him off wheat (dairy might help too) and give him probiotics. The SCD diet could help a lot... you can go to pecanbread.com to get a sense of what it's like. If you want to give it a try I would get a copy of "Breaking the Vicious Cycle." It's kind of a complicated diet, but it's designed to be very healing for the digestive system... it doesn't matter if you have celiac, IBS, leaky gut, etc... It also gives you some recipes that could be really helpful.

I checked out the vitamins my daughter takes ("Animal Parade" by Nature's Gate), but they have carrots and apples in the ingredients. I've been buying some of my supplements at naturalhealthshoppe.com... you might find something there since they have quite a few brands of multivitamins for kids.

jzmom Rookie
Welcome to the group!

I'm sorry you're having such a tough time finding new foods for your son to eat!! My son is younger (eight months), but he's really sensitive to casein and gags on just about everything. So far I've only found a few things that he'll open his mouth for after the first bite: rice cereal, "summer vegetables," chicken (mixed with the vegetables) and home-cooked squash. Usually kids like carrots, apples, etc... Not my son. I have a few thoughts for you...

- I wonder if your son has the DQ7 gene. I do and I'm pretty that's the one my son got from me. It's rare for it to cause celiac disease, but it is associated with gluten intolerance, cow's milk intolerance, grass and pollen allergies, lupus, thyroid disorders, and something called "Oral Allergy Syndrome." If you have OAS, a lot of raw fruits and vegetables upset your upper digestive system... tingly tongue, itchy throat, sensitive stomach. Cooking is supposed to help a lot. The good thing is that this is not a life-threatening allergic reaction. Your son might even tolerate some of those foods again once his digestive system heals.

- I think it's a great idea to keep him off wheat (dairy might help too) and give him probiotics. The SCD diet could help a lot... you can go to pecanbread.com to get a sense of what it's like. If you want to give it a try I would get a copy of "Breaking the Vicious Cycle." It's kind of a complicated diet, but it's designed to be very healing for the digestive system... it doesn't matter if you have celiac, IBS, leaky gut, etc... It also gives you some recipes that could be really helpful.

I checked out the vitamins my daughter takes ("Animal Parade" by Nature's Gate), but they have carrots and apples in the ingredients. I've been buying some of my supplements at naturalhealthshoppe.com... you might find something there since they have quite a few brands of multivitamins for kids.

Thank you. What is the SCD diet?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,199
    • Most Online (within 30 mins)
      7,748

    Stacy M
    Newest Member
    Stacy M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...