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New Llfestyle For Child


jzmom

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jzmom Rookie

Just recently had my child tested for Celiac and the result came back negative. I had restricted his gluten prior to testing so I'm not sure if the results are accurate. My son has been vomiting for years. The Ped. Dr. was not concerned suggesting that he was just over indulging in high fat foods. After certain meals he would vomit, have unbelievable cramps, watery stool, leg cramps, itchy throat, head aches, tingly tongue and asthma attacks. Once everything was out of his system he would feel much better, although run down. Sometimes this would happen several hours after eating and that is why it was not as obvious as one would think. I decided to have him allergy tested (Blood). He is allergic to wheat, soy, eggs, nuts, chocolate, carrots, apples, peas, raw fruit and vegetables as well as some seasonal grass tree and pollen. I give him millet and rice which seems to be fine. I am having a hard time finding food that is without all of his allergies. I'm worried about all the vitamins he may be lacking. I started giving him wheat, soy, nut free digestive enzyme, extra Vitamin C, E, and Pro-Biotic. He said that he can't remember ever feeling as good as he does now and it's only been a couple of weeks. I'll need a second job to buy all the special foods he needs. Kids at school are teasing him because of the strange looking food he brings and Halloween was a sad day for him. If there are any helpful hints or suggestions on vitamins an dsupplements I would appreciate.


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Mother of Jibril Enthusiast

Welcome to the group!

I'm sorry you're having such a tough time finding new foods for your son to eat!! My son is younger (eight months), but he's really sensitive to casein and gags on just about everything. So far I've only found a few things that he'll open his mouth for after the first bite: rice cereal, "summer vegetables," chicken (mixed with the vegetables) and home-cooked squash. Usually kids like carrots, apples, etc... Not my son. I have a few thoughts for you...

- I wonder if your son has the DQ7 gene. I do and I'm pretty that's the one my son got from me. It's rare for it to cause celiac disease, but it is associated with gluten intolerance, cow's milk intolerance, grass and pollen allergies, lupus, thyroid disorders, and something called "Oral Allergy Syndrome." If you have OAS, a lot of raw fruits and vegetables upset your upper digestive system... tingly tongue, itchy throat, sensitive stomach. Cooking is supposed to help a lot. The good thing is that this is not a life-threatening allergic reaction. Your son might even tolerate some of those foods again once his digestive system heals.

- I think it's a great idea to keep him off wheat (dairy might help too) and give him probiotics. The SCD diet could help a lot... you can go to pecanbread.com to get a sense of what it's like. If you want to give it a try I would get a copy of "Breaking the Vicious Cycle." It's kind of a complicated diet, but it's designed to be very healing for the digestive system... it doesn't matter if you have celiac, IBS, leaky gut, etc... It also gives you some recipes that could be really helpful.

I checked out the vitamins my daughter takes ("Animal Parade" by Nature's Gate), but they have carrots and apples in the ingredients. I've been buying some of my supplements at naturalhealthshoppe.com... you might find something there since they have quite a few brands of multivitamins for kids.

jzmom Rookie
  Mother of Jibril said:
Welcome to the group!

I'm sorry you're having such a tough time finding new foods for your son to eat!! My son is younger (eight months), but he's really sensitive to casein and gags on just about everything. So far I've only found a few things that he'll open his mouth for after the first bite: rice cereal, "summer vegetables," chicken (mixed with the vegetables) and home-cooked squash. Usually kids like carrots, apples, etc... Not my son. I have a few thoughts for you...

- I wonder if your son has the DQ7 gene. I do and I'm pretty that's the one my son got from me. It's rare for it to cause celiac disease, but it is associated with gluten intolerance, cow's milk intolerance, grass and pollen allergies, lupus, thyroid disorders, and something called "Oral Allergy Syndrome." If you have OAS, a lot of raw fruits and vegetables upset your upper digestive system... tingly tongue, itchy throat, sensitive stomach. Cooking is supposed to help a lot. The good thing is that this is not a life-threatening allergic reaction. Your son might even tolerate some of those foods again once his digestive system heals.

- I think it's a great idea to keep him off wheat (dairy might help too) and give him probiotics. The SCD diet could help a lot... you can go to pecanbread.com to get a sense of what it's like. If you want to give it a try I would get a copy of "Breaking the Vicious Cycle." It's kind of a complicated diet, but it's designed to be very healing for the digestive system... it doesn't matter if you have celiac, IBS, leaky gut, etc... It also gives you some recipes that could be really helpful.

I checked out the vitamins my daughter takes ("Animal Parade" by Nature's Gate), but they have carrots and apples in the ingredients. I've been buying some of my supplements at naturalhealthshoppe.com... you might find something there since they have quite a few brands of multivitamins for kids.

Thank you. What is the SCD diet?

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    • trents
      @N00dnutt, been there, done that! Cheers!
    • N00dnutt
      @trents You're right, thanks for pointing that out. On @somethinglikeolivia comment regarding potential ingesting or cross contamination; there is a product marketed in Australia as "GluteGuard" which is designed for just this scenario. It is not a defence for and is not recommended for use by full-blown celiac disease but, it helps those with GI. I'll be reading slower in future so I don't skim over the subject matter. Cheers.
    • N00dnutt
      @Knitty_Kitty Noted with appreciation.
    • trents
      @N00dnutt, as OP explained earlier, she had a gastroscopy done earlier while she had been eating plenty of gluten for months. It was negative despite strong positive antibody scores.
    • N00dnutt
      The best way to determine positively is to undergo a Gastroscope. Your Endocrinologist will assess the condition of your "Villi". These tenticles are what extract the nutrient from what we ingest. The Protein in Gluten is like acid to these tenticles.
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