Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Llfestyle For Child


jzmom

Recommended Posts

jzmom Rookie

Just recently had my child tested for Celiac and the result came back negative. I had restricted his gluten prior to testing so I'm not sure if the results are accurate. My son has been vomiting for years. The Ped. Dr. was not concerned suggesting that he was just over indulging in high fat foods. After certain meals he would vomit, have unbelievable cramps, watery stool, leg cramps, itchy throat, head aches, tingly tongue and asthma attacks. Once everything was out of his system he would feel much better, although run down. Sometimes this would happen several hours after eating and that is why it was not as obvious as one would think. I decided to have him allergy tested (Blood). He is allergic to wheat, soy, eggs, nuts, chocolate, carrots, apples, peas, raw fruit and vegetables as well as some seasonal grass tree and pollen. I give him millet and rice which seems to be fine. I am having a hard time finding food that is without all of his allergies. I'm worried about all the vitamins he may be lacking. I started giving him wheat, soy, nut free digestive enzyme, extra Vitamin C, E, and Pro-Biotic. He said that he can't remember ever feeling as good as he does now and it's only been a couple of weeks. I'll need a second job to buy all the special foods he needs. Kids at school are teasing him because of the strange looking food he brings and Halloween was a sad day for him. If there are any helpful hints or suggestions on vitamins an dsupplements I would appreciate.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Welcome to the group!

I'm sorry you're having such a tough time finding new foods for your son to eat!! My son is younger (eight months), but he's really sensitive to casein and gags on just about everything. So far I've only found a few things that he'll open his mouth for after the first bite: rice cereal, "summer vegetables," chicken (mixed with the vegetables) and home-cooked squash. Usually kids like carrots, apples, etc... Not my son. I have a few thoughts for you...

- I wonder if your son has the DQ7 gene. I do and I'm pretty that's the one my son got from me. It's rare for it to cause celiac disease, but it is associated with gluten intolerance, cow's milk intolerance, grass and pollen allergies, lupus, thyroid disorders, and something called "Oral Allergy Syndrome." If you have OAS, a lot of raw fruits and vegetables upset your upper digestive system... tingly tongue, itchy throat, sensitive stomach. Cooking is supposed to help a lot. The good thing is that this is not a life-threatening allergic reaction. Your son might even tolerate some of those foods again once his digestive system heals.

- I think it's a great idea to keep him off wheat (dairy might help too) and give him probiotics. The SCD diet could help a lot... you can go to pecanbread.com to get a sense of what it's like. If you want to give it a try I would get a copy of "Breaking the Vicious Cycle." It's kind of a complicated diet, but it's designed to be very healing for the digestive system... it doesn't matter if you have celiac, IBS, leaky gut, etc... It also gives you some recipes that could be really helpful.

I checked out the vitamins my daughter takes ("Animal Parade" by Nature's Gate), but they have carrots and apples in the ingredients. I've been buying some of my supplements at naturalhealthshoppe.com... you might find something there since they have quite a few brands of multivitamins for kids.

jzmom Rookie
Welcome to the group!

I'm sorry you're having such a tough time finding new foods for your son to eat!! My son is younger (eight months), but he's really sensitive to casein and gags on just about everything. So far I've only found a few things that he'll open his mouth for after the first bite: rice cereal, "summer vegetables," chicken (mixed with the vegetables) and home-cooked squash. Usually kids like carrots, apples, etc... Not my son. I have a few thoughts for you...

- I wonder if your son has the DQ7 gene. I do and I'm pretty that's the one my son got from me. It's rare for it to cause celiac disease, but it is associated with gluten intolerance, cow's milk intolerance, grass and pollen allergies, lupus, thyroid disorders, and something called "Oral Allergy Syndrome." If you have OAS, a lot of raw fruits and vegetables upset your upper digestive system... tingly tongue, itchy throat, sensitive stomach. Cooking is supposed to help a lot. The good thing is that this is not a life-threatening allergic reaction. Your son might even tolerate some of those foods again once his digestive system heals.

- I think it's a great idea to keep him off wheat (dairy might help too) and give him probiotics. The SCD diet could help a lot... you can go to pecanbread.com to get a sense of what it's like. If you want to give it a try I would get a copy of "Breaking the Vicious Cycle." It's kind of a complicated diet, but it's designed to be very healing for the digestive system... it doesn't matter if you have celiac, IBS, leaky gut, etc... It also gives you some recipes that could be really helpful.

I checked out the vitamins my daughter takes ("Animal Parade" by Nature's Gate), but they have carrots and apples in the ingredients. I've been buying some of my supplements at naturalhealthshoppe.com... you might find something there since they have quite a few brands of multivitamins for kids.

Thank you. What is the SCD diet?

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,360
    • Most Online (within 30 mins)
      7,748

    Known1
    Newest Member
    Known1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Try adding some Thiamine Hydrochloride (thiamine HCl) and see if there's any difference.  Thiamine HCl uses special thiamine transporters to get inside cells.  I take it myself.   Tryptophan will help heal the intestines.  Tryptophan is that amino acid in turkey that makes you sleepy after Thanksgiving dinner.  I take mine with magnesium before bedtime.
    • Known1
      I live in the upper mid-west and was just diagnosed with marsh 3c celiac less than a month ago.  As a 51 year old male, I now take a couple of different gluten free vitamins.  I have not noticed any reaction to either of these items.  Both were purchased from Amazon. 1.  Nature Made Multivitamin For Him with No Iron 2.  Gade Nutrition Organic Quercetin with Bromelain Vitamin C and Zinc Between those two, I am ingesting 2000 IU of vitamin D per day. Best of luck, Known1
    • SilkieFairy
      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.