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Coffee

cartierclare

By cartierclare
in Coping with Celiac Disease

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cartierclare Newbie
cartierclare
Posted

help ! i was diagnosed with coeliac 1 1/2 years ago. What a nuisance it is, anyway i have noticed recently that when i drink filter coffee it is giving me real stomach pains and making my stomach bloat. I was told from the dietician that coeliacs cannot drink instant coffee so i went and bought a filter machine but i am now suffering, please can anyone recommend a coffee that i can drink.

Also i have been diagnosed with gum disease which apparently is also a side effect of coeliac, is anyone else encountering this problem. So not only do i have problematic bowels and osteoporosis now my teeth could fall out and i am only 44 ! arent i going to look gorgeous

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ohsotired Enthusiast
ohsotired
Posted

When you say filter coffee, are you using a metal mesh filter or paper filters? What type of coffee are you brewing?

I know that many flavored coffees could be a problem, so if you are drinking something that is flavored that may be the culprit.

DarkIvy Explorer
DarkIvy
Posted

Could it be the caffeine? Do you notice this effect with other caffeinated drinks?

I for one cannot tolerate regular coffee anymore. It wrecks my stomach, too, and I notice similar feelings with other heavily caffeinated beverages. Even more than a cup of decaf or so gives me a lot of issues. I can have black teas once and a while, because the caffeine content is less than a cup of coffee, and I can have decaf black teas more regularly. (Caffeinated) Soda makes me want to vomit, which is unfortunate as I'm rather fond of Dr. Pepper.

I don't see why celiacs couldn't have instant coffee, unless a particular brand was not gluten free. That said, caffeine tends to be very rough on the body and digestive system, and my doctor always says that if I'm (or anyone) is sick with stomach viruses or nausea, caffeine will make the pain worse.

My personal (non professional) opinion is that celiacs already have crappy digestive systems that can't handle much abuse, even after we take steps to correct the problem, and since caffeine is already known to be something of an irritant, we may just notice it more. It could be the CAFFEINE that is hurting you, and not necessarily the coffee. Have you tried a decaf blend?

darlindeb25 Collaborator
darlindeb25
Posted
I was told from the dietician that coeliacs cannot drink instant coffee

Your dietician is wrong. If you liked your instant coffee, check to make sure it is 100% coffee, and enjoy.

It is also true that some people find they can't tolerate caffeine. I drink decaf for my health, and I do not miss caffeine in any way. Coffee has never bothered me, but for a while, I couldn't drink tea, now I can again.

Also i have been diagnosed with gum disease which apparently is also a side effect of coeliac, is anyone else encountering this problem. So not only do i have problematic bowels and osteoporosis now my teeth could fall out and i am only 44 ! arent i going to look gorgeous

I have problems with my teeth, neuropathy, arthritis, raynauds, and sleep apnea, and YES, you will look gorgeous...just be strong and keep working at healing.

ang1e0251 Contributor
ang1e0251
Posted

I too am having a problem with coffee and I'm planning to completely give it up this week. I'm OK with caffeine in tea so I guess it's not that. How do like that? I have a gourmet coffee bar in my flower shop and I can't have coffee! By the way I seem to remember that on another thread, someone mentioned they were having a reaction to the coffee filters, one of their problems was DH. I never read what it was in the filter that bothered them.

19scarlett Newbie
19scarlett
Posted

The problem could really be the "filter" coffee - if you adore coffee you could try turkish coffee thats the way my mum called it: that means you take a normal can make wather boil in it than you take it off the stove. You put in 3 big spoons of coffee and you press it in the wather. that you make it boil again very slowly 2 or three times - that is the best coffee ever and it is not as harmin for your heart!

spicenator3000 Apprentice
spicenator3000
Posted
help ! i was diagnosed with coeliac 1 1/2 years ago. What a nuisance it is, anyway i have noticed recently that when i drink filter coffee it is giving me real stomach pains and making my stomach bloat. I was told from the dietician that coeliacs cannot drink instant coffee so i went and bought a filter machine but i am now suffering, please can anyone recommend a coffee that i can drink.

Also i have been diagnosed with gum disease which apparently is also a side effect of coeliac, is anyone else encountering this problem. So not only do i have problematic bowels and osteoporosis now my teeth could fall out and i am only 44 ! arent i going to look gorgeous

Your best solution for this coffee thing from my experience with many kinds of coffee and the symptoms that I encountered...is to buy green un-roasted coffee beans, roast them yourself and grind and brew your own coffee. Green coffee beans last months to years in a sealed container. Roasting takes a super hot frying pay ready to go, green coffee beans and stirring fork, you only need to grind a cup a day or a larger batch in the oven and seal it for the week or next two weeks (length of time it'll still taste like fresh coffee if sealed properly). Get a little grinder, enough for one cup. I have a French press, it's a simple glass cup with a mesh metal screen that is dishwasher friendly, I let the hot water I cook up on the stove top soak into the grounds, press the press and vuwala fresh home made coffee.

heres the web site I've found that has many green coffee beans from all sorts of countries available: Open Original Shared Link

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JNBunnie1 Community Regular
JNBunnie1
Posted

I personally can no longer drink coffee period, not because of the caffeine, but because of the acid and oils in the coffee make tummy angry. I know it's not the caffeine because I can have as much tea as I like. Try decaf, if that still bothers you, try regular tea. If that doesn't bother you, you have your answer.

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

When I was first dx'd I could not drink coffee, even decaf. I've been gluten-free for about 6 months and have started drinking decaf again. I use Lactaid milk with it and so far so good. For me, I think things just needed to settle down a bit.

CMCM Rising Star
CMCM
Posted

I've kind of concluded that I also have trouble with coffee. I buy freshly roasted beans from a place in Seattle, I grind it myself and have a cappuccino machine. I never have more than one small cappuccino daily, but I think I read that coffee can have a laxative effect and I certainly see that with myself when I drink it. I've cut out my coffee for the last 10 days and I definitely see a positive difference. I can't say I'm happy about this, because I LOVE my cappuccino. I'll probably just have it on an occasional basis rather than daily.

kenlove Rising Star
kenlove
Posted

Many of the small growers here in Kona use hot air poppers for roasting coffee. Used to be $19. at Kmart.

Worked quicker than a frying pan.

Your best solution for this coffee thing from my experience with many kinds of coffee and the symptoms that I encountered...is to buy green un-roasted coffee beans, roast them yourself and grind and brew your own coffee. Green coffee beans last months to years in a sealed container. Roasting takes a super hot frying pay ready to go, green coffee beans and stirring fork, you only need to grind a cup a day or a larger batch in the oven and seal it for the week or next two weeks (length of time it'll still taste like fresh coffee if sealed properly). Get a little grinder, enough for one cup. I have a French press, it's a simple glass cup with a mesh metal screen that is dishwasher friendly, I let the hot water I cook up on the stove top soak into the grounds, press the press and vuwala fresh home made coffee.

heres the web site I've found that has many green coffee beans from all sorts of countries available: Open Original Shared Link

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      High DGP-A with normal IGA

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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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