How Much Weight Did You Lose?

[1morething]

I'm newly diagnosed, got my biopsy done yesterday so today I start the diet for the rest of my life . I'm down about 10lbs since September, and the Dr. yesterday said I would continue to lose for a bit until it stabalizes. Did you lose weight, how much?

Rachael

[Green Eyes]

I didn't lose weight at all. I have to work at keeping my weight down. You may need to watch specific foods like dairy while you are healing, but hopefully this is a process for you where you are going to feel much better.

Jennifer

[Lisa]

I am 5'8" and I was 119 at my lowest. Three years later, I have gained 20 pounds back. Ok, ok...25! But don't tell anybody!

Eat well with food of good nutrition, no junk and exercise those muscles that never got fed and you body will find it's own level.

[fedora]

Before giving up all gluten( I did not eat wheat) I had to watch out for gaining weight easily.

After giving up all gluten I lost 6 pounds but now I have gained 4 back.

[Treen Bean]

I was down from 105 to 79 lbs! I looked like death! Now, two years later, I am back up to 105-107. Hagen-Daz ice cream and baking my own gluten free goodies is what helped me gain my weight back. Don't worry, it will happen. I'm not saying you won't break down in tears some days because it feels like it is taking forever. But, it WILL happen.

[ShayFL]

When I first started having major problems I weighed 138 and I am just shy of 5'4. I have always been curvy and big up top (Double D back then) so I looked pretty balanced. I got down to 113 over the years and my boobs deflated. I am now back up to 120 - 122. And I dont eat junk food. I gained healthy weight by eating healthy fats and foods.

[DarkIvy]

I'm 5'5, and I think at my lowest I was down to about 105 lbs. Everyone thought I had an eating disorder, and I looked horrible because of how sick I was. I had dark circles under my eyes, I was tired, depressed, etc. I kinda did look like I had some sort of disordered eating. It was AWFUL. I had people pull me aside often and ask if I was "alright" or if was loosing weight on purpose or if I "needed help". Yeah, the help of a good doctor to tell me not to eat gluten. YEESH!

Now I'm back up to about 125. Well, I say "back up", but this is actually the most I've ever weighed. I was very underweight as a child. It's a good healthy weight and I'm still thin, so now people's favorite question is "so, how much weight did you loose when you stopped eating 'carbs'?" They get so annoyed when I tell them I GAINED so much weight. The reaction is really pretty funny, I think they start to realize that this is a serious disease and not a freakin' fad diet. They start to reason that I must have been pretty darn sick if I'm thin now and still weighed 20 pounds less.

Even now when I eat gluten in even miniscule amounts or get sick with the flu or something, I lose weight. I've been sick all week with the cold that might as well be the bubonic plague, and everyone at work has been commenting on how much thinner I look. Gaining weight has been such an issue for me, and I think ideally I'd like to get up to 130 pounds, so in case I do get sick or eat gluten, I've got a margin or error.

It does take some time to gain back weight on the diet. I first went gluten-free two summers ago, and I noticed a little bit of weight gain within the first few months. That summer I ended up going up another bra size, and then another one the following fall. Since then I've stayed around 120-125, but spring semester last year was a total health disaster and it's taken me some time to recover ever since. This semester has also been a big transition (work and school full time + extra curriculars = no time to eat right and depression and general food carelessness/getting glutened) so I really haven't ever gotten back to where I need to be health OR weight wise. I've made the decision to drop out of school temporarily and focus on work (I support myself completely, otherwise it'd be the other way around!) and my health. I figure with one less major thing going on in my life, I'll be able to focus on eating the right things and getting and STAYING healthy.

Don't worry if you don't see major improvement right away. It really does take some time! I know I felt very impatient and frustrated to get healthy (still do!) but this is a major lifestyle change. It will take you time to get used to eating new foods and there's a learning curve: you probably will make mistakes in the beginning, which might make it harder to gain weight. It'll take time for your body to adjust and and heal, too.

It's good that you got diagnosed though, many people don't. At least now you know how to fix it and you won't need to take any prescriptions, either

[luvs2eat]

Ugh!! I know it's not funny when you can't keep weight on, but people ask me all the time what the symptoms of Celiac are and I say, Well... one of the first seems to be unexplained weight loss..." Then I look down at myself and say, "I didn't GET that one."

I was diagnosed very quickly... only 2 months after developing obvious symptoms (unrelenting diarrhea)... and spent the next year filling up on all the foods I COULD have to ease the emotional pain of those I could NO LONGER have... 40 lbs. later, I'll be stuggling w/ my weight forever, I'm sure!!

[Hummingbird4]

I didn't lose any weight. I've actually gained 5 lbs. that I didn't need.

[GlutenWrangler]

I lost a total of 88 pounds when I was at my worst...

I'm 5'10", and when Celiac Disease first hit me, I weighed about 193. It was an unnatural weight for me, as I was underweight my entire life. I blame the weight gain on the early onset symptoms of the disease. But when it really hit me, I started dropping weight rapidly. I lost 12 pounds in the first week, and the weight kept coming off. It stabilized for a short time after being diagnosed when I went on the gluten-free diet 8 months later. But then it started dropping again a few months later, when I became sensitive to just about everything I ate. I dropped all the way down to 105 pounds, and was finally hospitalized. Since then I've been on IV nutrition to keep me healthy, because I don't eat at all. It has helped me gain back about 55 pounds, so I now weigh about 160. Needless to say it has been a long journey.

Anyway hopefully your weight will stabilize soon. Take care,

-Brian

[sickchick]

Well I am 5'2

I weighed 120 (a healthy 120, I exercise every day)

but losing dairy from my diet I am holding steady @ 110

I have to make sure I eat extra proteins to make up for it or my family starts to complain

I love almonds and pistachios, it helps!

be well

[Welda Johnson]

Hi,

It's so great that you've gotten onto the Celiac diet. I wish you the best! I am five feet tall and weigh 100 pounds, and I'm happy as a clam. I now eat all fruits first thing in the morning, and never eat any after starting starches, veggies or protein. It's made a world of difference in my digestive processes. I also walk 3-5 miles a day on the treadmill, and those endorphins pumping also make a world of difference. I eat only meats, fruits and vegetables, and make sure not to get glutened, which really helps, but I've had years and years of practice, so I hope that you find what works for you. It takes awhile to find out what works for you, so be patient with yourself. Best wishes. Welda

[*lee-lee*]

after about 4 months, i've only dropped 13 lbs. (ideally, i'd like to lose at least 25 more.) the weight i have lost so far is due to a change in diet. initially after i was diagnosed, i was gobbling up all the replacement food i could find (breads, pastas, baked goodies) but it was just making me feel bloated and icky so since getting away from all those carbs, i've felt better and the pounds have started to come off a little easier.

i know i could lose the weight quicker if i exercised...but i can't seem to get motivated and i don't have a better excuse other than laziness (and the fact that i cannot afford to join a gym right now).

[mushroom]

From my heaviest gluten-bloatedness I have lost 42 lbs in a year. I must say I seldom feel hungry, sometimes have to force myself to eat when my stomach complains, but then again I never ate as much as anyone else even while gaining all that weight. I never used to be able to figure it out, but now it's clear it was the gluten what done it!