Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Sibling With A Neg.

mmmSmores

By mmmSmores
in Coping with Celiac Disease

Recommended Posts

mmmSmores Apprentice
mmmSmores
Posted

I was diagnosed in mid-october this year. My brother was just tested (blood test) and his results were negative. does anyone know if this is common? for one to have it and the other to not have it? Also, can anyone tell me, should I consider being re-tested?

I had a biopsy for something totally different, and they said the results indicated that I should be tested for Celiac disease. I had a blood test which came back positive.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
I was diagnosed in mid-october this year. My brother was just tested (blood test) and his results were negative. does anyone know if this is common? for one to have it and the other to not have it? Also, can anyone tell me, should I consider being re-tested?

I had a biopsy for something totally different, and they said the results indicated that I should be tested for Celiac disease. I had a blood test which came back positive.

The latest stats I have indicates 1 of 22 first-degree relative tested positive for Celiac Disease.

The Celiac gene may be inherited making you predisposed to the illness. Although, there is no guarantee that you will develop Celiac.

jerseyangel Proficient
jerseyangel
Posted

I have 2 sisters, one has not been tested and the other came up negative. Unfortunately, the one who won't be tested is the one I suspect might be affected.

If both your biopsy and blood test came up positive, I see no reason for you to doubt your diagnosis. :)

kbtoyssni Contributor
kbtoyssni
Posted

My brother tested negative. He either doesn't have celiac or he doesn't have it yet. I'm sure he will get tested again if he ever starts feeling sick in any way. It's something for him to be aware of for the future.

lmvrbaby Newbie
lmvrbaby
Posted

Hi, I just thought I'd share that I had a biopsy for something unrelated and was told I was positive for Celiac and was followed up with a blood test. I have four boys, three of which have been tested and only one has been confirmed Celiac and he is also a juvenile diabetic. My fourth son was having stomache issues and we went to have him tested with a blood test and somehow the hospital lab didn't do that test, said it was unnecessary, how can they say that when the doctor orders it. I spoke my mind to the doctor's office and they are willing to redo this test at no charge, but why should my son go through having blood taken when it was not his fault? I have been thinking about changing his doctor, he has had this one since birth and the doc knows him well. it probably was Not sure what to do now. His stomache issues only lasted a couple of days and was probably only a virus. Well, I guess I voiced myself. Sorry for going off track. So I believe it can be possible for only sibling to have Celiac and not another.

SGWhiskers Collaborator
SGWhiskers
Posted

I don't remember where I read the article. It was a link from someone's post here. It had a lot of genetic information. One of the recommendations was that family members who test negative, can have their genes tested. If they test positive for the celiac genes, then they should have their blood retested every 3-5 years in order to catch the disease early. I'm glad your brother was negative. Mine got his testing done last week. I hope it comes back negative. (Then again, if it is positive, there would be an explaination for his tummy troubles).

Hope the diet is going smoothly for you.

SG Whiskers

luvs2eat Collaborator
luvs2eat
Posted

I was the first to be diagnosed in my family (at age 48). I seriously recommended my sister (who has suffered her whole life w/ allergies and eczema and asthma) and brother to be tested... I really thought my sister would come up positive. Neither she nor my bro did.

One of my 3 daughter had symptoms, was tested, and is now gluten-free. The other 2 won't get tested cause they have no symptoms and don't want to give up wheat, etc.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lauren-SAME Newbie
Lauren-SAME
Posted
"I was diagnosed in mid-october this year. My brother was just tested (blood test) and his results were negative. does anyone know if this is common? for one to have it and the other to not have it? Also, can anyone tell me, should I consider being re-tested?

I had a biopsy for something totally different, and they said the results indicated that I should be tested for Celiac disease. I had a blood test which came back positive."

About 5 days ago, I had a blood test and it showed positive. The doctor said that nothing else would trigger the blood test unless it was Celiac. And yesterday, I was diagnosed with Celiac.

I think most likely, it's accurate, but if you're having doubts, then you should be retested.

I was doing research, because I'm knew to the whole Celiac thing, it's not healthy to switch from a non-gluten diet to a gluten diet, not to mention, one site said that you can gain weight easily. So if you're going to switch, just make sure you know your stuff.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,027
    • Most Online (within 30 mins)
      7,748
    EmmaGraceeee
    Newest Member
    EmmaGraceeee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.