Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Sibling With A Neg.

mmmSmores

By mmmSmores
in Coping with Celiac Disease

Recommended Posts

mmmSmores Apprentice
mmmSmores
Posted

I was diagnosed in mid-october this year. My brother was just tested (blood test) and his results were negative. does anyone know if this is common? for one to have it and the other to not have it? Also, can anyone tell me, should I consider being re-tested?

I had a biopsy for something totally different, and they said the results indicated that I should be tested for Celiac disease. I had a blood test which came back positive.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
I was diagnosed in mid-october this year. My brother was just tested (blood test) and his results were negative. does anyone know if this is common? for one to have it and the other to not have it? Also, can anyone tell me, should I consider being re-tested?

I had a biopsy for something totally different, and they said the results indicated that I should be tested for Celiac disease. I had a blood test which came back positive.

The latest stats I have indicates 1 of 22 first-degree relative tested positive for Celiac Disease.

The Celiac gene may be inherited making you predisposed to the illness. Although, there is no guarantee that you will develop Celiac.

jerseyangel Proficient
jerseyangel
Posted

I have 2 sisters, one has not been tested and the other came up negative. Unfortunately, the one who won't be tested is the one I suspect might be affected.

If both your biopsy and blood test came up positive, I see no reason for you to doubt your diagnosis. :)

kbtoyssni Contributor
kbtoyssni
Posted

My brother tested negative. He either doesn't have celiac or he doesn't have it yet. I'm sure he will get tested again if he ever starts feeling sick in any way. It's something for him to be aware of for the future.

lmvrbaby Newbie
lmvrbaby
Posted

Hi, I just thought I'd share that I had a biopsy for something unrelated and was told I was positive for Celiac and was followed up with a blood test. I have four boys, three of which have been tested and only one has been confirmed Celiac and he is also a juvenile diabetic. My fourth son was having stomache issues and we went to have him tested with a blood test and somehow the hospital lab didn't do that test, said it was unnecessary, how can they say that when the doctor orders it. I spoke my mind to the doctor's office and they are willing to redo this test at no charge, but why should my son go through having blood taken when it was not his fault? I have been thinking about changing his doctor, he has had this one since birth and the doc knows him well. it probably was Not sure what to do now. His stomache issues only lasted a couple of days and was probably only a virus. Well, I guess I voiced myself. Sorry for going off track. So I believe it can be possible for only sibling to have Celiac and not another.

SGWhiskers Collaborator
SGWhiskers
Posted

I don't remember where I read the article. It was a link from someone's post here. It had a lot of genetic information. One of the recommendations was that family members who test negative, can have their genes tested. If they test positive for the celiac genes, then they should have their blood retested every 3-5 years in order to catch the disease early. I'm glad your brother was negative. Mine got his testing done last week. I hope it comes back negative. (Then again, if it is positive, there would be an explaination for his tummy troubles).

Hope the diet is going smoothly for you.

SG Whiskers

luvs2eat Collaborator
luvs2eat
Posted

I was the first to be diagnosed in my family (at age 48). I seriously recommended my sister (who has suffered her whole life w/ allergies and eczema and asthma) and brother to be tested... I really thought my sister would come up positive. Neither she nor my bro did.

One of my 3 daughter had symptoms, was tested, and is now gluten-free. The other 2 won't get tested cause they have no symptoms and don't want to give up wheat, etc.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lauren-SAME Newbie
Lauren-SAME
Posted
"I was diagnosed in mid-october this year. My brother was just tested (blood test) and his results were negative. does anyone know if this is common? for one to have it and the other to not have it? Also, can anyone tell me, should I consider being re-tested?

I had a biopsy for something totally different, and they said the results indicated that I should be tested for Celiac disease. I had a blood test which came back positive."

About 5 days ago, I had a blood test and it showed positive. The doctor said that nothing else would trigger the blood test unless it was Celiac. And yesterday, I was diagnosed with Celiac.

I think most likely, it's accurate, but if you're having doubts, then you should be retested.

I was doing research, because I'm knew to the whole Celiac thing, it's not healthy to switch from a non-gluten diet to a gluten diet, not to mention, one site said that you can gain weight easily. So if you're going to switch, just make sure you know your stuff.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.