Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Don't I Miss It?

Amber M

By Amber M
in Coping with Celiac Disease

Recommended Posts

Amber M Explorer
Amber M
Posted

I had a friend ask me today, "Don't you miss it?" ( the gluten)

I have to say, most of the time I keep an upbeat attitude, but the other day while my husband sat and ate a chocolate, coconut covered donut from a local bakery, I did say, "I could just mow on that right now." And last I went shopping I, for a moment, thought, "oh the heck with it, I'm just going to buy it all and eat it." Of course, I thought better of it! But tonight, sitting on the toilet, the time when I seem to have the most profound thoughts, I realized, it would be like looking at a RATTLE SNAKE and saying "YUM." It would be like walking on water and expecting not to sink! It would be like asking for all the sick stomach and body pain, migraines, dental problems, neurological problems, etc, etc, etc. NO, I really don't miss it afterall! I guess the realization of it being poison to me has really set in.......Thanks for listening....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lizard00 Enthusiast
lizard00
Posted

And now, when you see it, it will LOOK like poison to you. Which is really helpful, especially if everyone around you is eating it.

It's great when you get to that point. Congratulations! :D

JNBunnie1 Community Regular
JNBunnie1
Posted
And now, when you see it, it will LOOK like poison to you. Which is really helpful, especially if everyone around you is eating it.

It's great when you get to that point. Congratulations! :D

I've gotten to where everyone is jealous of MY food because it's so awesome. And when I see them eat their food I don't miss it or pine for it, I just start constructing recipes in my head for how to make it for myself.

purple Community Regular
purple
Posted

Donuts are filled with poison for anyone to eat. Not worth it. A couple of years a go I saw them posted as #1 of the top 10 worst foods you should never eat.

TiredofTums Rookie
TiredofTums
Posted

Not fully 100 percent diagnosed yet but am waiting on results and one more test. At lunch time today I took out my usual can of soup but decided I wanted Cream of Tomato Soup. Looked at the ingredients and it had wheat flour! What??? My Cream of Tomato Soup. Darn! LOL! I too love donuts and cake this time of year. Hmmm! Am a beginner here but want to learn fast.

I too have had the neurological symptoms, the teeth problems, B-12 and Vitamin D problems, the horrible stomach pains and sleepless nights.

I also have asthma and for a few months before the Celiac got mentioned my Asthma Nebulizer machine has been sitting in my kitchen beside a bag of flour where I was making homemade fig bread! Flour got all over that machine and I am now wondering if my terrible asthma attacks might be related to the flour possibly contaminating that machine making me breathe in wheat flour and causing my asthma to be worse. I am going to have to brillow pad my whole kitchen and sanitize it good and may have to buy a new machine. Not cheap buying those machines either.

I will miss the food but being sick as long as I have. I think this is going to be great if I see myself finally getting well again. Even if it only 50 percent better is better than nothing at all! I hope this is my problem and not something that is not treatable!

Nice meeting you!

Linda

lizard00 Enthusiast
lizard00
Posted
I also have asthma and for a few months before the Celiac got mentioned my Asthma Nebulizer machine has been sitting in my kitchen beside a bag of flour where I was making homemade fig bread! Flour got all over that machine and I am now wondering if my terrible asthma attacks might be related to the flour possibly contaminating that machine making me breathe in wheat flour and causing my asthma to be worse.

Linda

My asthma this winter is sooo much better than it was last year. Last year, I was using Serevent daily, and using my albuterol way more than I should. I haven't had my inhaler refilled in probably a year because I haven't had to. I can't swear that the celiac made my asthma worse, and I still have attacks occasionally, but it's much better.

ksymonds84 Enthusiast
ksymonds84
Posted

Not fully 100 percent diagnosed yet but am waiting on results and one more test. At lunch time today I took out my usual can of soup but decided I wanted Cream of Tomato Soup. Looked at the ingredients and it had wheat flour! What??? My Cream of Tomato Soup. Darn! LOL! I too love donuts and cake this time of year. Hmmm! Am a beginner here but want to learn fast.}

Amy's has a tomato soup that is gluten free. You can add milk or a milk substitute to make it creamy :) Good detective work on the flour next to your nebulizer! Welcome and keep us posted on your results and progress.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted
I've gotten to where everyone is jealous of MY food because it's so awesome. And when I see them eat their food I don't miss it or pine for it, I just start constructing recipes in my head for how to make it for myself.

Exactly!!!!!! I guess I was lucky because from the first moment of diagnosis, I never looked back and never miss anything related to gluten. There has been very little food I have not been able to duplicate

in a gluten-free version and they taste batter than the gluten-free version also.

Gemini Experienced
Gemini
Posted
Exactly!!!!!! I guess I was lucky because from the first moment of diagnosis, I never looked back and never miss anything related to gluten. There has been very little food I have not been able to duplicate

in a gluten-free version and they taste batter than the gluten-free version also.

OOPS! I meant to say....."they taste better than the gluten filled version! :P This is why I need to wear my glasses all the time!

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

I definitely still miss eating gluten. I've been gluten free for about 8 months and have not cheated once. I'm not really tempted, I just miss it. It's usually when I'm eating out or when I'm in social situations. The trade off for not eating it is that I feel so much better. I was never good with diets, but I guess this is not really a diet after all. I would love to get to that point where I don't miss it.

Mother of Jibril Enthusiast
Mother of Jibril
Posted
But tonight, sitting on the toilet, the time when I seem to have the most profound thoughts, I realized, it would be like looking at a RATTLE SNAKE and saying "YUM."

I've started visualizing cockroaches on gluten foods. I HATE cockroaches. I can't dwell on the image for too long... it sure makes me lose my appetite!

JNBunnie1 Community Regular
JNBunnie1
Posted
I've started visualizing cockroaches on gluten foods. I HATE cockroaches. I can't dwell on the image for too long... it sure makes me lose my appetite!

HAHAHAHAHAHAHAHAHAHAHAAAAA!!!!!!!

ang1e0251 Contributor
ang1e0251
Posted

I think the poison and bug visualizations are excellant. I use poison ivy and say, "would you eat just a little bite of poison ivy?" You know those people who try to get you to poison yourself?

I miss the convenience but not the food. I don't have regrets because I really do feel 20 years younger!!

Ashley Enthusiast
Ashley
Posted
I miss the convenience but not the food.

Amen.

LuvMoosic4life Collaborator
LuvMoosic4life
Posted

the only thing I can truly say I miss is beer and pretzles. gluten-free beer doesnt do it for me.....but...ugh....a bud light and some preztles would be amazing....besides that.....GLUTEN can kiss my #%$ :D

Ms. Heather Newbie
Ms. Heather
Posted

Okay this is my first post, so I don't know what is going to happen or where it is going to go. I think the easiest thing for me to give up was beer, only because it was the one thing that made me really miserable, but I loved beer and so recently I tried the gluten free beer oh that was a mess! I had like a major reaction, sneezing, itchy throat, watery eyes it was not fun. So I guess the beer is not worth it. But I do miss it and brownies, oh my gosh I miss brownies, I have yet to find good gluten free brownies. But ya know beer and brownies are not good for you things anyways.

purple Community Regular
purple
Posted
Okay this is my first post, so I don't know what is going to happen or where it is going to go. I think the easiest thing for me to give up was beer, only because it was the one thing that made me really miserable, but I loved beer and so recently I tried the gluten free beer oh that was a mess! I had like a major reaction, sneezing, itchy throat, watery eyes it was not fun. So I guess the beer is not worth it. But I do miss it and brownies, oh my gosh I miss brownies, I have yet to find good gluten free brownies. But ya know beer and brownies are not good for you things anyways.

The best brownies I have tried:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    3. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,354
    • Most Online (within 30 mins)
      7,748
    Gracieruizzz
    Newest Member
    Gracieruizzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.  
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.