Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free One Month And Have Questions

robomet

Recommended Posts

robomet Newbie
robomet
Posted

I was diagnosed one month ago and have not yet been glutened, at least not that I am aware of. I was pretty asymptomatic, severe anemia was my indicator which led to biopsy/endoscopy, tested positive.

I have gained twenty pounds over the last two years and can't take it off, wonder if it will eventually happen. I exercise five days a week and have a very healthy diet.

What I have noticed is I can not tolerate foods I used to eat prior to going gluten-free. I bloat after drinking soy milk and have developed an extremely gassy stomach after eating virtually any meal, has anyone experienced this? Thanks for your input, just TRYING to figure it out!

I don't feel this is too difficult to live with as I adore cooking and am versed enough to question any chef in a restaurant. I could go crazy if I start to NOT trust restaurants, I simply speak with the manager, waiter and chef in detail and hope for the best!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kdaley Newbie
kdaley
Posted

Google Small Intestine Bacterial Overgrowth. Sounds very much like your symptoms, and is very common for people with Celiacs. I am recovering from it now - good luck!

Kelly

Amber M Explorer
Amber M
Posted
I was diagnosed one month ago and have not yet been glutened, at least not that I am aware of. I was pretty asymptomatic, severe anemia was my indicator which led to biopsy/endoscopy, tested positive.

I have gained twenty pounds over the last two years and can't take it off, wonder if it will eventually happen. I exercise five days a week and have a very healthy diet.

What I have noticed is I can not tolerate foods I used to eat prior to going gluten-free. I bloat after drinking soy milk and have developed an extremely gassy stomach after eating virtually any meal, has anyone experienced this? Thanks for your input, just TRYING to figure it out!

I don't feel this is too difficult to live with as I adore cooking and am versed enough to question any chef in a restaurant. I could go crazy if I start to NOT trust restaurants, I simply speak with the manager, waiter and chef in detail and hope for the best!

Welcome. I, for one, do not feel safe at resturants. I'm too afraid of cross contamination. If your only a month, I am not surprised you are having other intolerances. I have had many in my 5 months. I was allergic to soy for years anyway, but many celiacs have to give up other things during the healing process. All grains except rice are usually hard to digest for awhile at least. Dairy for alot of people too. I suspect you are having a problem with soy too.

I had to start taking digestive enzymes because I had the same problems as you. I take "Digest" by "Enzymedica" I can not take the fruit enzymes yet, but the digest is food enzymes that your system is not able to produce right now. It's harmless and may help. Check it out. Everything on this site that is suggested I researched myself before making decisions. This would be my advice to you. But my system digests much better although I still can not eat certain grains yet. Read around, you will learn alot that will help you. I do not know what I would do without this group!

  • 2 weeks later...
wschmucks Contributor
wschmucks
Posted

Hello! I have similar symptoms. I gained weight for about 2 years (now i yo, yo) and still am bloated after every single meal and feel gassy (only 2 months gluten-free). Did the Dr do a stool sample on you? Have them run a stool sample to check your flora levels and to see if you have any bacterial infections. Also have them do a blood test for any food intolerance, that way you know for sure and can attack this in the proper way. I would STOP eating out-- 100%. There is nooooo way you arent being cross contaminated at restaurants, even if you question them (I personally would not enter a restaurant for about 6 months, if ever). I take probiotics daily (your stool sample will let you know if there is one that youre deficient in), digestive enzyme (make sure its gluten-free) and i just started taking Fennel for the bloating...not sure if its helping or not. Give it time, its suppose to take about 6-12 months for those symptoms to go away, but the eating out is just going to prolong that time period. I also drink TONS of peppermint tea, it just makes me feel less bloated. Good luck!

fran641 Contributor
fran641
Posted

have developed an extremely gassy stomach after eating virtually any meal, has anyone experienced this? Thanks for your input, just TRYING to figure it out!

These were the symptoms I had prior to going gluten-free 2 1/2 weeks ago. I was so surprised the first time I ate and was not in pain from gas and bloating. I haven't wanted to go to restaurants so I could see how I feel with my environment controlled. I would have something to go by if my symptoms returned after eating out.

ang1e0251 Contributor
ang1e0251
Posted

If you're still bloating after every meal, you may be eating hidden gluten or be reacting to another allergen like dairy. Keeping a food diary w/symptoms can be helpful nailing it down.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,033
    • Most Online (within 30 mins)
      7,748
    davidvibezb
    Newest Member
    davidvibezb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.