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Maybe Apple Ceo Steve Jobs Has celiac disease?


Bill in MD

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Bill in MD Rookie

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This sounds a lot like *my* personal experience and diagnosis. Whatever it is, good luck to him.


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tarnalberry Community Regular

If he does, describing it as a "hormone imbalance" is ... a little o_O.

celiac-mommy Collaborator

Maybe that's why my iphone is about the only phone on the planet nowadays that can't send a picture text..... :blink::blink:

powerbraid Rookie
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This sounds a lot like *my* personal experience and diagnosis. Whatever it is, good luck to him.

Wow. I just read this story and totally agree. It was my first reaction. I doubt anyone can just "email" Steve Jobs, but I'm highly suspicious he has Celiac. :(

disneyfan Apprentice

I can't believe these responses...that is EXACTLY what I thought when I read the article this morning. You would think someone like him with internet access at his fingertips could research a little on his own....Unbelievable that doctors still can't figure this out!

rumbles Newbie

I think he has pancreatitis, - causing his pancreas to not

make the enzymes to digest protein (protease), and possibly

not making the enzymes to digest fat (lipase) and starch/carbs

(amylase), through it's normal hormone synthesis. He says that

he has a hormone imbalance that is robbing him of protein and

was confirmed through bloodwork - which almost matches pancreatitis

(the pancreas endocrine function makes hormones [insulin and

glucagon] and it's exocrine function makes enzymes, - it wouldn't

actually be a hormone imbalance, but I could see where someone

might call it that). His history of pancreatic cancer probably puts

him at risk for pancreatitis. Enzyme supplements will manage the

imbalance, which would eventually allow him to regain the weight.

(It's not uncommon for people with celiac disease to also have

pancreatic enzyme deficiencies.)

happygirl Collaborator
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jcford33 Rookie

I was diagnosed as having a pancreatic enzyme deficiency due to pancreatic atrophy that was found in the testing prior to my Celiac diagnosis. I was placed on an enzyme replacement for about 4 months before the Celiac was diagnosed. I looked a lot like Steve Jobs now when I was at my lowest point (had gone from 205lbs to 148 lbs in about 8 months). I think Celiac affects so many functions in the body that the symptoms are often diagnosed as the cause.

neesee Apprentice

He has pancreatic cancer. He had this type of surgery. Open Original Shared Link

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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    • Churley
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