Tired Of Having To Deal With The Attitude

[The Kids Folks]

Hi-

From some of my other posts, you probably know that we went against the doctors wishes for a biopsy for our 7yr DS, who had been having C issues since he was 2 or 3. (he had a neg blood test - however, I don't think that it was a full panel) Following the ped and pedGI orders or son landed in the ER. We decided enough already mama bear knows best and started a gluten free diet and watched all of the issues pretty much disappear!!

I asked the ped for a note to give to the school so that I could start working with the dietatician at school so that he could have hot lunch. I received a snippy note - not very professional IMO to give to the school after asking numerous times (it took 3 phone calls and about 6 weeks to get her to write the note). She even put in the note that he was scheduled for a biopsy and that "the parents decided to forego the tests and try the diet. She went on to say that they now have no way of knowing now if we are dealing with full blown celiacs or just an intolerance, so please don't give him gluten if possible!!

OMG - I cannot believe this! I can't believe that I now have to deal with the ped's attitude. I can't imagine telling her that we are now in the process of switching our 4 yr DD over to a gluten-free diet as well. She has gerd and has been on medication for at least 2 years. Her new med resolves her gerd but makes her sick to her stomach so that she doesn't want to eat - great huh?!

Anyway - wondering if anyone else is dealing with snotty ped's and if you know of any pediatrician's in the twin cities area that "get it".

[wsieving]

Well, I cannot help you find a ped because I am in the midwest, but I totally feel your pain. Around here it is hard to get away from the middle-eastern docs. My current ped was absolutely wonderful... at first. But he is one of those "doctors and tests are never wrong" kind of guys, and even though his caseload seems small for the area he never seems to remember us or why we are there. We just decided this past week to search for a new ped because he just gave my youngest son the second physical in 2 months. He was supposed to be there for a check to see if he still had fluid on his ears (he is six and still having ear infections frequently, AND recently found he has a bifid uvula which likely also means he has a submucous cleft of the soft palate). He still had fluid on his ears, but instead of referring us to a specialist like he said he would previously, he gave him a physical and said sometimes it is normal to have fluid on the ears. He also refused to write a note for the gluten-free diet for my oldest son who has ADHD because he was not tested for Celiac. He knew I was not suggesting that he had Celiac and that I just wanted to try it and see what effects the gluten-free diet had on my son's ADHD.... gggggrrrrrrrrrrrrrr

I miss my family doctor.

At any rate, there ARE good doctors out there. I hope you find one soon. I can imagine how difficult it must be in such a large area.

[kbtoyssni]

Not a pediatrician, but Dr Ronda Stellar at the Shoreview Medical Clinic is great with celiac. She routinely tests her female patients who have trouble conceiving for celiac. I have unfortunately moved houses and jobs to the other side of the city and can't see her anymore.

[mommida]

Can you contact your local Celiac support group for Celiac experienced Peds.?

[sugarsue]

You might try to locate a family doc or peditrician who is also a Dan! doctor. Since they deal with children on the autism spectrum, they are supporters of the gluten free diet even with no testing. Just a thought. Our doc sees children on and off the spectrum so we get the benefits of that "alternative" methodology.

Good luck!