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Gluten Free For One Whole Year!

fedora

By fedora
in Coping with Celiac Disease

Recommended Posts

fedora Enthusiast
fedora
Posted

Yesterday was my one year anniversary of being 100% gluten free!!!!!!!!!!!!!!!!!!!!

I feel pretty good, so much better than I did for years. Even when I didn't eat wheat I still had bad symptoms at times. I wish I had gone gluten free years ago.

I don't feel poisoned

I don't have weird visual effects where everything would seem further than it really was

I don't get brain fog

I am not dizzy all the time

my blood pressure went up to normal

my skin doesn't itch constantly everywhere

I don't have a rash on my hands anymore(that had started to spread)

I don't have chronic constipation

I don't have hemoroid pain

I don't feel like vomiting when I have to go to the bathroom

my facial skin doesn't break out nearly as much

my hormones have stablized- I have a bigger libido and am far less moody, PMS is greatly diminished

I am less likely to get irratated and bitter

my blood sugar is stablized- I don't go from fine to starving in a second, I progress to hungry

When I am hungry, I don't feel like I will vomit

I can't believe how many facets of my life have been touched by this

sometimes I have a bad day, or a symptom, but it is not the norm for me anymore

I still use bananas as medicine, I would have died without them long ago

When people find out that I can't eat gluten and they say how that's too bad or say,

NO, what is too bad is that I was undiagnosed and sick for so many years, since I was a child. I have no problem not eating gluten because I never want to go back to how I was before

Good luck to everyone else

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maile Newbie
maile
Posted

Thanks for this post fedora :) , it gives a newbie like myself a great deal of hope as I share many of the same symptoms

ang1e0251 Contributor
ang1e0251
Posted

Congratulations on one year gluten free! It's a great feeling, isn't it?

happygirl Collaborator
happygirl
Posted

Congratulations, and its wonderful to hear you are doing so much better!

Lisa Mentor
Lisa
Posted
:D We persevere for a reason. Congratulations on your success!!!
mallard Newbie
mallard
Posted

Congratulations!! That is great, hoepfully this time next year I will be celebrating too. After reading all of the things it was doing to you is now making me take a closer look at what is going on with my body and the effects that gluten is having on me.

blueeyedmanda Community Regular
blueeyedmanda
Posted

Congrats!!!!! It is such an overpowering feeling to make it one year--I remember my one year mark and I look at how much I have learned and how much better the foods have gotten since then and even in the past 6 months....:)

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ravenwoodglass Mentor
ravenwoodglass
Posted

Happy Anniversary. I am glad things are going well.

flourgirl Apprentice
flourgirl
Posted

Congrats! I'm so glad that you are doing so well. Hopefully soon you will not have any symptoms at all :)

msmini14 Enthusiast
msmini14
Posted

Congrats! I am so happy for you =) I know it was hard at first but once you start to feel better you never want to eat wheat again.

fedora Enthusiast
fedora
Posted
  • Author

thank you everyone

I hope you have continued success and good health

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    • knitty kitty
      High DGP-A with normal IGA

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      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      High DGP-A with normal IGA

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      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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