Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accidental Gluten= Fatigue And Oversleep For Most Coeliacs?


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

I slept a rocking 13 hours last night admittedly I was up 18hrs the day before but still this is not normal. I accidentally got gluten from lollies I wasn't aware of yesterday and Im positive it is what made sleep longer.

The day before I was gluten free and slept 6hrs and felt a lil groggy but then refreshed. I notice i naturally simply wake up earlier and feel more refreshed when I am totally gluten free is this a usual occurrence for coeliacs out there?

Oversleeping causes me massive problems, parents b%$@#ing at me (dont understand coeliacs) and I have uni and work and commitments and if I miss something fun like going out with friends because I was sleeping I feel very depressed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MNBeth Explorer

For me, getting "glutened" definitely causes extreme fatigue. I rarely have the option of actually sleeping any longer than normal, but I drag through my days feeling desperate for sleep until I recover.

maile Newbie

Fatigue yes, but I get a type of "buzzed fatigue" so I don't sleep well at all when glutened and end up dragging through the day :(

Treen Bean Apprentice

YES!!! It's like night of the living dead for me. All I want to do when I get glutened is curl up in bed in a pitch black room and sleep forever. I also feel lethargic for the next day or two.

dilettantesteph Collaborator

Definitely, and even when I am up it takes me forever to accomplish anything. Hope you get better soon.

ang1e0251 Contributor

I can get up but it's like the Zombie for me. The brain fog with the fatigue along with mood swings can be like a horror movie for those around me. I generally start with a fair warning and also a request, "please look out for me today. If I'm doing stupid things, stop me. If I'm falling all over myself, tell me to slow down,...uh..thanks."

julirama723 Contributor

I'm a sleepy/fatigued gluten zombie, too. I've not been gluten-free for long, but man oh man, on the occasion that I accidentally ingest gluten, not only do I get the GI symptoms, I am EXHAUSTED. I can barely make it through work, I am incredibly lethargic, I have NO ENERGY to do anything remotely taxing.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



UnhappyCoeliac Enthusiast

I pretty much fall asleep and dont wake up.

before I was diagnosed I had had a big night on the beer went to bed at 4am and woke up at my friends at 6pm...

my friends literally thought i was dead and were nice enough to draw funny faces of me too lol

  • 2 weeks later...
Kitt1027 Rookie

Yes, yes, yes it is very normal to get like that. Before I found out I had a gluten-intolerance (not officially diagnosed Celiac...) I just thought that I would get extremely lethargic and have brain fog only after heavy meals. But, then it was happening almost everyday and now I know it's because even though I was eating very light meals, I was making wraps with wheat tortillas!! Everyday!! Geez...makes so much sense now. I would be sitting on my computer at work and literally feel like my head was a million pounds, my eyes wouldn't stay open and I felt like if I put my head down on my desk I would just pass out immediately. I would just go get some caffeine, but it never fully helped and the fogginess lasted all day.

I got glutened twice in the past 2 weeks and both times I was ready to pass out 30 minutes after eating. My boyfriend knows about my gluten problem and now he can tell exactly when I've been glutened because I become lethargic, unmotivated, snippy and don't feel well. Sometimes it feels like I'm drunk or something. It's so weird. And now I know that when I'm completely off of gluten, I am free to be the real me! I'm so much more energetic and want to go out and do things and I'm always peppy.

So, that's a very long-winded way of saying you are not alone my dear!! :-)

  • 2 weeks later...
teemaree Apprentice

Gosh yes,,,,,

last night I got glutened.... I would normaly wake up at 7-30am when gluten-free, feel bright and sparky..

This morning was a whole other story... I awoke at 11am, with a headache, didn't want to move and get up, and could have gone back to bed. But I didn't, but for the rest of the day, I was wiped out..

feeling sick , couldn't eat, and ohh so lathargic and tired, and I just got home from work and I'm ready for bed. eyes are aching, and wanting to close.

Before finding out I was celiac and gluten-free, I had the opposite effect, I couldn't sleep , I would live on three hours sleep, I'd have headaches and feel yuck...but I just figured that was due to the lack of sleep, and being over active without sleep...

But since going gluten-free... my sleep is so much deeper and enjoyable, I awaken fresh and ready to take on the world, things don't stress me out like they use too...I awaken early!...

But accidental glutening, does knock me around badly,and I need to sleep, because I walk around around like a zombie,feeling sick and tired, and just want to curl up and sleep....

I honestly nearly fainted when I saw the time I had slept too, this morning. Thank goodness I had a late shift, because there is no way I could have functioned at work, the way I was feeling. And even with having the late shift it was very difficult to make it through.

  • 2 months later...
Leper Messiah Apprentice

Yeah I totally need more sleep, I figure it's my gut trying to repair. I'm a full time worker who needs to study after work so can understand this is a major problem for some folk but even if you have the time off it's not ideal spending half the day in bed! Sometimes I find it hard to sleep, if say I get glutened in my evening meal for example, anyone else get that? I'll put my head down and my heart beat will be going mad even if I'm uber-relaxed.

@ Kitt1027 - this pretty much exactly what I experience, it's so hard to explain to other people that you feel drunk after eating a meal! I'm just starting a gluten-free diet, a month or so but I've def been glutened a few times unintentionally in this time. How long did it take you to start feeling you again after going gluten-free? Also, if you don't mind me asking, how long til you feel you again after getting an accidental glutening?

  • 2 weeks later...
Voss Newbie

Yep, if I get glutened I stumble to a place to rest my head and not wake up for an hour of 12.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    2. - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

    3. - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

    4. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

    5. - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748

    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.