Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Accidental Gluten= Fatigue And Oversleep For Most Coeliacs?

UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast
UnhappyCoeliac
Posted

I slept a rocking 13 hours last night admittedly I was up 18hrs the day before but still this is not normal. I accidentally got gluten from lollies I wasn't aware of yesterday and Im positive it is what made sleep longer.

The day before I was gluten free and slept 6hrs and felt a lil groggy but then refreshed. I notice i naturally simply wake up earlier and feel more refreshed when I am totally gluten free is this a usual occurrence for coeliacs out there?

Oversleeping causes me massive problems, parents b%$@#ing at me (dont understand coeliacs) and I have uni and work and commitments and if I miss something fun like going out with friends because I was sleeping I feel very depressed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MNBeth Explorer
MNBeth
Posted

For me, getting "glutened" definitely causes extreme fatigue. I rarely have the option of actually sleeping any longer than normal, but I drag through my days feeling desperate for sleep until I recover.

maile Newbie
maile
Posted

Fatigue yes, but I get a type of "buzzed fatigue" so I don't sleep well at all when glutened and end up dragging through the day :(

Treen Bean Apprentice
Treen Bean
Posted

YES!!! It's like night of the living dead for me. All I want to do when I get glutened is curl up in bed in a pitch black room and sleep forever. I also feel lethargic for the next day or two.

dilettantesteph Collaborator
dilettantesteph
Posted

Definitely, and even when I am up it takes me forever to accomplish anything. Hope you get better soon.

ang1e0251 Contributor
ang1e0251
Posted

I can get up but it's like the Zombie for me. The brain fog with the fatigue along with mood swings can be like a horror movie for those around me. I generally start with a fair warning and also a request, "please look out for me today. If I'm doing stupid things, stop me. If I'm falling all over myself, tell me to slow down,...uh..thanks."

julirama723 Contributor
julirama723
Posted

I'm a sleepy/fatigued gluten zombie, too. I've not been gluten-free for long, but man oh man, on the occasion that I accidentally ingest gluten, not only do I get the GI symptoms, I am EXHAUSTED. I can barely make it through work, I am incredibly lethargic, I have NO ENERGY to do anything remotely taxing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


UnhappyCoeliac Enthusiast
UnhappyCoeliac
Posted
  • Author

I pretty much fall asleep and dont wake up.

before I was diagnosed I had had a big night on the beer went to bed at 4am and woke up at my friends at 6pm...

my friends literally thought i was dead and were nice enough to draw funny faces of me too lol

  • 2 weeks later...
Kitt1027 Rookie
Kitt1027
Posted

Yes, yes, yes it is very normal to get like that. Before I found out I had a gluten-intolerance (not officially diagnosed Celiac...) I just thought that I would get extremely lethargic and have brain fog only after heavy meals. But, then it was happening almost everyday and now I know it's because even though I was eating very light meals, I was making wraps with wheat tortillas!! Everyday!! Geez...makes so much sense now. I would be sitting on my computer at work and literally feel like my head was a million pounds, my eyes wouldn't stay open and I felt like if I put my head down on my desk I would just pass out immediately. I would just go get some caffeine, but it never fully helped and the fogginess lasted all day.

I got glutened twice in the past 2 weeks and both times I was ready to pass out 30 minutes after eating. My boyfriend knows about my gluten problem and now he can tell exactly when I've been glutened because I become lethargic, unmotivated, snippy and don't feel well. Sometimes it feels like I'm drunk or something. It's so weird. And now I know that when I'm completely off of gluten, I am free to be the real me! I'm so much more energetic and want to go out and do things and I'm always peppy.

So, that's a very long-winded way of saying you are not alone my dear!! :-)

  • 2 weeks later...
teemaree Apprentice
teemaree
Posted

Gosh yes,,,,,

last night I got glutened.... I would normaly wake up at 7-30am when gluten-free, feel bright and sparky..

This morning was a whole other story... I awoke at 11am, with a headache, didn't want to move and get up, and could have gone back to bed. But I didn't, but for the rest of the day, I was wiped out..

feeling sick , couldn't eat, and ohh so lathargic and tired, and I just got home from work and I'm ready for bed. eyes are aching, and wanting to close.

Before finding out I was celiac and gluten-free, I had the opposite effect, I couldn't sleep , I would live on three hours sleep, I'd have headaches and feel yuck...but I just figured that was due to the lack of sleep, and being over active without sleep...

But since going gluten-free... my sleep is so much deeper and enjoyable, I awaken fresh and ready to take on the world, things don't stress me out like they use too...I awaken early!...

But accidental glutening, does knock me around badly,and I need to sleep, because I walk around around like a zombie,feeling sick and tired, and just want to curl up and sleep....

I honestly nearly fainted when I saw the time I had slept too, this morning. Thank goodness I had a late shift, because there is no way I could have functioned at work, the way I was feeling. And even with having the late shift it was very difficult to make it through.

  • 2 months later...
Leper Messiah Apprentice
Leper Messiah
Posted

Yeah I totally need more sleep, I figure it's my gut trying to repair. I'm a full time worker who needs to study after work so can understand this is a major problem for some folk but even if you have the time off it's not ideal spending half the day in bed! Sometimes I find it hard to sleep, if say I get glutened in my evening meal for example, anyone else get that? I'll put my head down and my heart beat will be going mad even if I'm uber-relaxed.

@ Kitt1027 - this pretty much exactly what I experience, it's so hard to explain to other people that you feel drunk after eating a meal! I'm just starting a gluten-free diet, a month or so but I've def been glutened a few times unintentionally in this time. How long did it take you to start feeling you again after going gluten-free? Also, if you don't mind me asking, how long til you feel you again after getting an accidental glutening?

  • 2 weeks later...
Voss Newbie
Voss
Posted

Yep, if I get glutened I stumble to a place to rest my head and not wake up for an hour of 12.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748
    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.