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Any Celiac(s) From Canada


Gerri

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chrisv Newbie

Hi folks. I'm in Hamilton, Ontario. Thanks for being here.


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  • Replies 133
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sophie2020 Newbie

Hi All,

I've been gluten-free for 5 years, diagnosed in Oz, now living in Ottawa. It took me a couple of years to really feel better - but I did have some improvements almost immediately. So hang in there :o)

Susan:

It must be so tough for kids to not be allowed gluten. It's hard enough for adults! There are lots of really yummy products around, but also a lot that taste strangely akin to sawdust mixed with mud ... not that I've tried sawdust mixed with mud but you get the idea :o)

Sick Kids Hospital in Toronto sells gluten-free food, and also has a really nice recipe section. The choc chip cookies are exactly like Mom used to make, and none of my non-gluten-free friends could stop eating them!

I haven't posted here for a long time, and not sure if it's OK to set a link, but if this one disappears, feel free to PM me and I'll send it to you.

Open Original Shared Link

cheers,

Maggie

sinfield Newbie

Hi folks. I'm in Hamilton, Ontario. Thanks for being here.

I'm from Hamilton too!!! Any good restaurants or bakery that you have found in this area?

adab8ca Enthusiast

oh i am from Burlington ontario!

there is a bakery/cafe on john street in burlington i mean to try out

www.kindfood.com (i am not affiliated with them in any way, hope putting their website here isn\t a problem!)

  • 2 weeks later...
sinfield Newbie

oh i am from Burlington ontario!

there is a bakery/cafe on john street in burlington i mean to try out

www.kindfood.com (i am not affiliated with them in any way, hope putting their website here isn\t a problem!)

I will have to try that place out!!! I'm always looking for new places to go too!

Also on Plains road east, theres this bakery that is going to open soon; Its www.turtledovesbakery.ca

It sounds like they are going to have some good stuff there :D

mommyto3 Contributor

Hello to all my fellow Cannucks!!!!

Want to give a shout out from Mississauga, Ontario.

And for anyone in the area, there's an awesome gluten free bakery in Oakville (on Lakeshore) called Voila Gluten Free Bakery. Their stuff is awesome!

Looking forward to sharing with you all :D

lukester Newbie

Hello to all my fellow Cannucks!!!!

Speaking of Canucks, I am from Vancouver myself. There are a few bakeries here that sell gluten free goods.


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Deb H Newbie

Hello Everyone!!

I am so excited to find other Canadians to relate to, especially product wise.. I have not met anyone else with Celiac or DH.. So frustrating.. I was just diagnosed this year.. It is very hard to manover in this new world. There is really not alot of info or support here in Oshawa Ontario..

I have met alot of great and helpful people on some online support groups including on here but all are in USA and other countries and not many conversations relate to me other than the actual disease.. I would be so nice to know people I can relate to about stores and restuarants..

PM me anytime..

Huggss Deb

Gerri Explorer

I still am not sure, for sure if I am celiac.... Going glutten free (or relatively) has allowed me to get off the drugs, ... I am back on the diet now,(just started a few days ago) and want to insist to my doctor that I get a proper diagnosis. Long story.... I need some support here. Just to stick to the diet, and re-think 20 years of psychobabble.

If your feeling better off gluten, why go back on it. My doctor gave a note stating I must follow the Celiac, diet, for rest of my life. For many years I was following the Gluten free diet (at the time about 50%), and my labs showed low celiac, most doctors would not have gave a positive diagnosis. Also I was told to do a gluten challenge, which landed me in the hospital 3 times during the challenge, this was enough, with the low celiac lab to get my doctor's note.

I am learning to cook gluten free. I don't have regular flour in my home.

My severe sleep apnea, has improved greatly. Now I am mild sleep apnea. I have other health issue some have improved - others worsening. They say once you have one autoimmune, others will following. I am hoping the statement is wrong - the way my health is going I don't think so.

Hope your feeling better

Hugs

Gerri

HSM Newbie

LONDON ONTARIO, GLUTEN FREE 1 YEAR 2 MONTHS SO FAR

  • 3 months later...
kerrig Rookie

We had brownies from www.turtledovesbakery.ca bakery and my celiac son who is 10 said they were the best brownies he has ever had....gluten free or not!

punkinrice Rookie

Hi There! I am in St. John's,Newfoundland, and also newly diagnosed. I have had trouble since childhood, and have been quite symptomatic for the past 13 years...surprise surprise also diagnosed with IBS before they finally figured it out. I tried the gluten free diet a few years ago, and was much better, but didn't really realize how to read the labels, so didn't get 100% better. I found that without the diagnosis I caved to constant criticism, and had "just one piece of pizza" here or there, or "just one slice of birthday cake". I was quite sick by the time I'd had enough and asked for a biopsy...which came back positive. I find this forum to be so incredibly helpful and supportive! Knowing you're not alone and have a world full of friends to ask questions of...who have been there and don't criticize, but sympathize and support. You're in the right place :)

  • 4 weeks later...
Kemmanuel Newbie

Im am from Vancouver Island. There are a few gluten free bakeries and health food stores around that provide gluten-free foods, but I have yet to find a local support group.

  • 4 weeks later...
ewandelm Newbie

Check out Mex-I-Can on James st.

Really really good Mexican food, resonably priced (usually 12.99 for a plate), and most items on the menu are labelled gluten free. The atmosphere is not that great, and the service is slow, but it is VERY VERY worth the wait.

luckymac Newbie

Hello from Montreal, male 37 years old, just diagnosed last november! uff :P

sandiz Apprentice

Im am from Vancouver Island. There are a few gluten free bakeries and health food stores around that provide gluten-free foods, but I have yet to find a local support group.

I agree with you,I too am from Vancouver Island. Emailed the chapter in Nanaimo and no response.

Twinklebug Newbie

Hi,

I'm from Regina, Sask. and new to the site as well.

Now that I've found it, I couldn't live without it. So much helpful info.

over50 Rookie

I agree with you,I too am from Vancouver Island. Emailed the chapter in Nanaimo and no response.

over50

I am from Victoria and find the Vic chapter very helpful. Also you can access the Celiac Assoc newsletter online,which gives great info and also tells what bakeries, restaurants in Nanaimo are available. I was diagnosed June 2010 and am still struggling with the cursed ailment and not really feeling better, in fact some days I think that I feel worse than before I was diagnosed.

Hope you can contact the Nanaimo chapter, they are very active.

Good luck

  • 2 months later...
CeliacGirl487 Newbie

12 from Ontario... diagnosed with Celiac in about October 2008... new to Celiac.com.. I find it extremely useful in my everyday life! :lol:

etta694 Explorer

Hi from

Southwest prairies..wheat :( and oil. Gluten free for 9ish months. Discovering other food issues now.. like soy and dairy. (but feeling a thousand times better than before)

hockeymomofceliacchild Rookie

I'm from Newfoundland, Haha.

My brother is heading to Newfoudland sometime this summer for about 12weeks to work. Any suggestions on gluten free eating in NF. I'm sure he would appreciate it :)

hockeymomofceliacchild Rookie

We are from the little town of Elmvale :) North of Barrie, Ont. My son was diagnosed earlier this year and the only reason he was tested was because I insisted knowing my older brother has DH/celiac for about 10 years. I wouldn't have had a clue otherwise thinking he just had echema...little did I know all the OTHER symptoms that were from celiac. Thanks to this group I have learned A LOT! lol

Welcome fellow Canadians! :)

  • 4 weeks later...
milkmommy Apprentice

Hi fellow Canadians

Im excited to see other from Hamilton Ontario!!!!!!! Definitely going to check out the food places recommended. I've only been diagnosed for 1 week.

Poppi Enthusiast

Hi, I'm Sara. I'm in Nanaimo. I'm not formally diagnosed but have been gluten free for 4 weeks now and am feeling great. The couple little slip ups and the horrible results have convinced me not to make myself ill for official testing.

collgwg Contributor

hi i am from nova scotia

i am a 42 years old and i went for testing yesterday for celiac

i am trying to go gluten free but its just in so many foods that i did not even think when i bought these sauages for a gluten-free meal, that one of the ingredients is toasted wheat crumbs and i got sick after the meal, im still learning

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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