Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten In Crystal Light!


kellylynn

Recommended Posts

kellylynn Rookie

I've felt awful the last day and a half. I've been gluten free for a month and a half and felt much better at first and was starting to be a little skeptical as to how strict I needed to be, but now I know!

The only thing I had yesterday that I hadn't read every ingredient on was a packet of Crystal Light. So went I went back to look at it, I had two boxes. One box clearly labeled gluten-free and the other (the one I drank yesterday) was not labeled gluten-free and maltodextrin was the only ingredient difference between the two boxes.

I just can't believe this! For one, that I feel this bad (bloated intestines, exhausted, twitching eye, etc.) and, two, that there is gluten in crystal light!

Just thought I'd put the warning out there!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Maltodextrin is gluten free:

Open Original Shared Link

https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html

MaryJones2 Enthusiast

Kraft clearly labels any gluten so if the maltodextrin had gluten it would be listed. It might be worth contacting the company though and clarifying the label differences.

Open Original Shared Link

ravenwoodglass Mentor

For some of us the gluten reaction is delayed. Look at not just what you had right before you got ill but also for the 3 days before. It can sometimes be very hard to figure out what 'got' us especially early on.

elonwy Enthusiast

Also keep in mind that artificial sweeteners can cause issues for people with GI problems. I know that they give me terrible stomach cramps and D.

kellylynn Rookie

A representative from Kraft called to assure me that they disclose all sources of gluten and require their suppliers to do the same. I thanked her for their commitment to taking gluten seriously.

I'm still not sure what made me sick....

  • 2 years later...
Okie Kei Bug Newbie

I had an reaction to crystal light. Arthritis in my Hands started aching after drinking it 2 days in a roll. I know, I know Kraft labels "Crystal Light" Gluten Free. Fooled me once, fooled me twice, Not a Third time...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I had an reaction to crystal light. Arthritis in my Hands started aching after drinking it 2 days in a roll. I know, I know Kraft labels "Crystal Light" Gluten Free. Fooled me once, fooled me twice, Not a Third time...

Just because you react to a product does not mean the company is lying about gluten. There are plenty of things to disagree with you artificial sugar, colors, flavors, etc. I have a son who does not have Celiac but Crystal LIght gives him stomach pain & bloating. We suspect the sweetener.

mbrookes Community Regular

Kareng makes a good point. Once we identify gluten as the culprit, many of us blame everything on gluten. Sometimes other things I eat or drink "disagree" with me. That certainly does not mean they contain gluten.

  • 5 years later...
Susie Rogowski Newbie

Hi! I'm Susie, and I just joined - although I've been a lurker since 2004. I do not have Celiac's, but I am intolerant to gluten. So, with the warm weather upon us, I started back to drinking my Crystal Light lemonade, mixed with Lipton's decaf lemon iced tea mix. About two weeks ago I started to notice a heaviness/fullness in my stomach in the afternoon. It got to the point that it progressed to lasting16+ hours before I got a clue. I thought it was from the huge amounts of watermelon that I can put away. So, for two days, I didn't eat the watermelon, but had my Crystal Light/Lipton's mix.  I admit, I got lazy. If I had read that both mixes had maltodextrin in them, I never would have purchased them because I always thought that it contained gluten. For years. I never had a problem with these mixes. So my problem could be the artificial sweetener, or the guar gum, because I am allergic to some gums. All I know is that I can't let my guard down.

Ennis-TX Grand Master
32 minutes ago, Susie Rogowski said:

Hi! I'm Susie, and I just joined - although I've been a lurker since 2004. I do not have Celiac's, but I am intolerant to gluten. So, with the warm weather upon us, I started back to drinking my Crystal Light lemonade, mixed with Lipton's decaf lemon iced tea mix. About two weeks ago I started to notice a heaviness/fullness in my stomach in the afternoon. It got to the point that it progressed to lasting16+ hours before I got a clue. I thought it was from the huge amounts of watermelon that I can put away. So, for two days, I didn't eat the watermelon, but had my Crystal Light/Lipton's mix.  I admit, I got lazy. If I had read that both mixes had maltodextrin in them, I never would have purchased them because I always thought that it contained gluten. For years. I never had a problem with these mixes. So my problem could be the artificial sweetener, or the guar gum, because I am allergic to some gums. All I know is that I can't let my guard down.

I react to the Aspartame, and Acesulfame Potassium in them. I turn into Mr. Hyde with them. Something in them makes me super aggressive and angery all the time snapping at people. Very similar to how gluten used to effect me. As a alternative try using lemon juice, and a sweetener that is not known to have mental effects on people, I love Sweet Drops stevia flavors, and I constantly use Monk Fruit Sweetener in stuff, along with the sugar free simple syrups from NuNaturals. I somethings use that liquid splenda in the little squirt bottles seems to work alright with no issues.

rehh05 Apprentice

I used to drink Crystal Light all the time too. And I couldn't figure out why I was sooo achy and tired and sore all the time. It said gluten free so I wasn't worried about gluten too much, but then I started having constant head aches... and thought about the sweetener. So I stopped everything with aspartame... the only artificial sweetener I allow now is a small amount of Stevia.  Guess what.. aches and soreness and headaches are muuuuuuch better. Much more energy too. Seems I can't tolerate artificial sweeteners... so no more soda or diet soda for me... I did find a Stevia sweetened lemonade that I use once in a while but not often. 

Ennis-TX Grand Master
7 minutes ago, rehh05 said:

I used to drink Crystal Light all the time too. And I couldn't figure out why I was sooo achy and tired and sore all the time. It said gluten free so I wasn't worried about gluten too much, but then I started having constant head aches... and thought about the sweetener. So I stopped everything with aspartame... the only artificial sweetener I allow now is a small amount of Stevia.  Guess what.. aches and soreness and headaches are muuuuuuch better. Much more energy too. Seems I can't tolerate artificial sweeteners... so no more soda or diet soda for me... I did find a Stevia sweetened lemonade that I use once in a while but not often. 

Make your own soda with SweetDrops and sparkling mineral water, or they make one called Zevia which is a soda free of all coloring, and artificial sweeteners they sweeten it with steiva.

Open Original Shared Link

Open Original Shared Link

Victoria1234 Experienced

Aspartame makes me angry and nasty towards others. I feel very uncomfortable in my own skin. Haven't touched it on purpose in years. Accidentally had some in a yogurt I grabbed at the grocery store on sale a few months ago. Tasted a bit off but it was my last yogurt and had nothing else to eat.  Didn't realize it had aspartame till I pulled it out of recycling, and I was out of sorts for a full day.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,990
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.