Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cd Confused With Anorexia...

bored-girl

Recommended Posts

amber-rose Contributor
amber-rose
Posted
Well, actually you have to eat a lot of gluten every day for 3 months before the biopsy, and even that may not be enough to get you positive results on the biopsy. Did they run blood tests? Your positive dietary response should be enough reason to stay gluten-free.

Yes, I did have blood test done. One came back very high, and one came back negative. My gastrologist (sp?) said that I should just eat one slice of bread a day for a week before the bioposy, since i'm very very sensitive to gluten. So i'm going to pig out on gluten during Christmas. He said that should show up well enough for the bioposy. He also said he needed physical proof for me to be considered a true Celiac. I would've been happy with just eating gluten free with out the bioposy and making myself sick. But the doctor insisted. <_< The doctor did say though, that he wasnt sure what else it could be. :rolleyes:.

-amber

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eKatherine Apprentice
eKatherine
Posted

Your gastroenterologist is wrong. If you even had one positive on the blood test, you have celiac, and you need to be on the diet whether or not you ever have a positive biopsy. Three months on gluten is considered the minimum time it will take to produce atrophy reliably, and even then, it is something that many celiacs never have, regardless of how sick they become or how well they respond to the diet.

It is way behind the times to say that the only true celiac symptom is villi atrophy, and without it you don't have gluten intolerance. You need a new GI.

  • 2 weeks later...
kbtoyssni Contributor
kbtoyssni
Posted
Yes, I did have blood test done. One came back very high, and one came back negative. My gastrologist (sp?) said that I should just eat one slice of bread a day for a week before the bioposy, since i'm very very sensitive to gluten. So i'm going to pig out on gluten during Christmas. He said that should show up well enough for the bioposy. He also said he needed physical proof for me to be considered a true Celiac. I would've been happy with just eating gluten free with out the bioposy and making myself sick. But the doctor insisted. <_< The doctor did say though, that he wasnt sure what else it could be. :rolleyes:.

-amber

By the time your villi are worn away enough to get a positive biopsy, you have already done a lot of damage to your body. If you know you are gluten intolerant, I don't think it's worth it to do that kind of damage to your body just so you can have the official seal-of-approval from your doc. Have you talked to your parents about whether or not it is worth it to get a biopsy? If you are satisfied that you have celiac or at least gluten intolerance, do you need an official diagnosis? Another thing to consider is that there may be complications when you get older and have to find your own health insurance. It's not necessarily a bad thing to not have a diagnosis on your record... But talk to your parents about this.

  • 2 weeks later...
MandyCandy Rookie
MandyCandy
Posted

I know how you feel! I'm 21, 5'3 and weigh anywhere from 96 - 98. And I drop weight very quickly (if i'm sick for even a week and my eating patterns change I can go to the low 90's- 89. I recently started going gluten-free and now i'm worried i'll lose more weight. I Don't want to gain any either but i'm worried people will jump to the conclusion its an eating disorder causing the weight loss not celiacs.

  • 3 weeks later...
Sugar-free/ Gluten free Girl Newbie
Sugar-free/ Gluten free Girl
Posted

Hey Whitney!

I'll be 13 soon and i was just diagnosed with type 1 diabetes and celiac. When i was diagnosed i was only 63 pounds! Now about 2 months later i am about 73 pounds.

Anne Marie

ktscleary@sc.rr.com

sillyyak Enthusiast
sillyyak
Posted

My anorexia was actually a symptom of the sprue and not "true" anorexia. You might want to look into whether or not you have celiac.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to heart390's topic in Introduce Yourself / Share Stuff
      3

      Why now?

      Yes, other health challenges and even severe prolonged emotional distress are thought to be potential triggers for the latent celiac genes. Let me encourage you to get tested for celiac disease as soon as possible so that you can get on with eliminating gluten from your diet, which itself will involve a considerable learning curve in order to become consistent...
    2. ainsleydale1700
      - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Confused about HLA-DQ Celiac gene test result

      Thank you! I have the classic symptoms while eating gluten-constipation, diarrhea, weight loss, loss of appetite, etc. My main problems right now are elsewhere in my body. Dental issues...my teeth started breaking. I had two teeth break in the past month. My dentist looked at my teeth with a camera and said I have no enamel left. Im really struggling...
    3. heart390
      - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      3

      Why now?

      THANK YOU Trents!!! No, I have not been tested - but have several autoimmune diseases ( MS over 50 yrs.) MAJOR GAS & fatigue are my most severe problems. Possibility STRESS helped kick it off? It's a sad additional problem to add to the latter part of my life!
    4. Scott Adams
      - Scott Adams replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Collecting all possibly related lab work?

      It’s absolutely worth bringing all of this to your GI appointment. The 2013 CT note about thickening in the second and third portions of the duodenum is especially important, since that area is directly involved in celiac disease and other inflammatory conditions, even if it wasn’t followed up at the time. The weak positive HLA-B27, joint pain, stiffness, nu...
    5. Known1
      - Known1 commented on Scott Adams's article in Gluten-Free Foods & Beverages
      2

      Safe Gluten-Free Spices and Brands: A Celiac Disease Guide

      Thanks for this article. I gave a bunch of my old spices to my single mom neighbor after being diagnosed this past month. She was thrilled to find chili powder and used it that same evening. After reading several reviews on Amazon, I purchased a 28oz container of Badia Complete Seasoning for under $7.00. It is super rare to find anything on Amazon...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,436
    • Most Online (within 30 mins)
      7,748
    Thomasine
    Newest Member
    Thomasine
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Why now?

      By trents · Posted

      Yes, other health challenges and even severe prolonged emotional distress are thought to be potential triggers for the latent celiac genes. Let me encourage you to get tested for celiac disease as soon as possible so that you can get on with eliminating gluten from your diet, which itself will involve a considerable learning curve in order to become consistent at it. Even pills and meds can contain gluten because wheat starch can be used as a filler. It's important to know if you have celiac disease for two reasons. First, it damages the lining of the small bowel and, over time, wears down those billions of little fingers that make up the lining and produce a huge surface area for absorbing nutrients from the food we eat. The small bowel is essentially the place where all of our nutrition is absorbed. Long term undiagnosed/ignored celiac disease therefore results in nutritional deficiencies even when we are eating well. You don't need that with the other health issues you are dealing with.  Second, many or most people find it difficult to be consistent with the gluten free diet if they don't have a formal diagnosis of celiac disease. It is just too inconvenient and limiting and they begin to rationalize that, "Well, maybe my problems are due to something else." Human nature has a remarkable capacity to rationalize. It can be argued that you can cheat a little bit on the gluten free diet with NCGS because it only creates a little discomfort and distress but not damage. That doesn't work with celiac disease. So, I feel it is important to know which you are dealing with, especially in the case where you have not yet begun the gluten free diet and you are a good candidate for beginning testing. Many people make the mistake of experimenting with the gluten free diet before they get tested for celiac disease and then they have to go back on gluten for weeks or months, the so-called "gluten challenge", in order to achieve valid test results. By the way, autoimmune diseases tend to cluster. When you get one, it is very common to develop others in time. 
    • ainsleydale1700
      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

      Thank you!  I have the classic symptoms while eating gluten-constipation, diarrhea, weight loss, loss of appetite, etc.  My main problems right now are elsewhere in my body.  Dental issues...my teeth started breaking.  I had two teeth break in the past month.  My dentist looked at my teeth with a camera and said I have no enamel left.  Im really struggling with neuropathy, and gynecological conditions.  My periods stopped 6 years ago and Im not in perimenopause or menopause.  When I consume gluten, my resting HR goes up about 30 points, and takes a week or so to normalize.  The list goes on, its very overwhelming Ongoing vitamin D deficiency, magnesium, iron, blood creatinine is always low, dont know if thats relevant. Below is from the Celiac panel, otherwise the results were normal.  Not crazy high, but I wasnt aware the Celiac panel was included in the bloodwork.  So I didnt prepare for it in advance, and Ive been on a gluten-free diet for the past 4 years High t-Transglutaminase (tTG) IgG: 7, Reference Interval: 0-5, Unit: U/mL This test detects IgG antibodies to tTG (tissue transglutaminase), and was performed because your IgA level is below normal. The immune response that occurs in celiac disease often leads to IgG antibodies against tTG.   I know I have a bad reaction to gluten.  But with the low likelihood of Celiac, any guidance on other paths to explore would be greatly appreciated!  Ive been trying to figure this out for years now, and more issues keep coming up.  It has been so overwhelming.  Thanks again.
    • heart390
      Why now?

      By heart390 · Posted

      THANK YOU Trents!!!  No, I have not been tested - but have several autoimmune diseases ( MS over 50 yrs.) MAJOR GAS  & fatigue are my most severe problems.  Possibility STRESS helped kick it off?  It's a sad additional problem to add to the latter part of my life!
    • Scott Adams
      Collecting all possibly related lab work?

      By Scott Adams · Posted

      It’s absolutely worth bringing all of this to your GI appointment. The 2013 CT note about thickening in the second and third portions of the duodenum is especially important, since that area is directly involved in celiac disease and other inflammatory conditions, even if it wasn’t followed up at the time. The weak positive HLA-B27, joint pain, stiffness, numbness, and burning sensations could suggest an autoimmune or inflammatory process, which sometimes overlaps with celiac disease or other gut-related immune conditions. Your periods of neurological symptoms (balance issues, numbness, confusion), low vitamin D, and fluctuating levels despite supplementation are also relevant, as malabsorption can contribute to deficiencies and neurologic complaints. Even “normal” labs are helpful for pattern recognition over time. I’d suggest organizing your records into categories—GI imaging, autoimmune labs, vitamin/mineral levels, neurological evaluations, and symptom timelines—so your GI doctor can see the bigger picture. This kind of long-term pattern can be very useful in connecting dots.
    • trents
      Why now?

      By trents · Posted

      Welcome to the celiac.com community @heart390! Genes connected with the development of celiac disease remain latent until triggered or activated by some biological stressor. The stressor can be many things and our knowledge in this area is incomplete. Suspects include viral infections, antibiotics, pesticides, preservatives and other harmful chemicals in the environment. The onset of celiac disease can happen at any stage in life. It is a long outdated misconception that gluten intolerance is a childhood phenomenon that you eventually outgrow. You use the term "gluten problems". What do you mean by that? Have you been formally diagnosed with celiac disease (aka, "gluten intolerance")? There is also NCGS (Non Celiac Gluten Sensitivity or "gluten sensitivity") for which there is not yet any testing available. It shares many of the same symptoms with celiac disease but is not autoimmune in nature and does not damage the lining of the small bowel. A diagnosis of NCGS depends on first ruling out celiac disease for which we do have tests. If you would seek testing for celiac disease, you must not begin the gluten free diet until all testing is done with or you will have invalidated the testing. There are two stages to the testing. The first stage involves a simple blood draw to check for certain antibodies produced by celiac disease. If the antibody testing is positive, doctors normally order an endoscopy with biopsy of the small bowel lining which checks for damaged caused by the inflammation associated with the autoimmune response. That is the second stage of diagnostic testing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.