Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cd Confused With Anorexia...

bored-girl

Recommended Posts

amber-rose Contributor
amber-rose
Posted
Well, actually you have to eat a lot of gluten every day for 3 months before the biopsy, and even that may not be enough to get you positive results on the biopsy. Did they run blood tests? Your positive dietary response should be enough reason to stay gluten-free.

Yes, I did have blood test done. One came back very high, and one came back negative. My gastrologist (sp?) said that I should just eat one slice of bread a day for a week before the bioposy, since i'm very very sensitive to gluten. So i'm going to pig out on gluten during Christmas. He said that should show up well enough for the bioposy. He also said he needed physical proof for me to be considered a true Celiac. I would've been happy with just eating gluten free with out the bioposy and making myself sick. But the doctor insisted. <_< The doctor did say though, that he wasnt sure what else it could be. :rolleyes:.

-amber

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eKatherine Apprentice
eKatherine
Posted

Your gastroenterologist is wrong. If you even had one positive on the blood test, you have celiac, and you need to be on the diet whether or not you ever have a positive biopsy. Three months on gluten is considered the minimum time it will take to produce atrophy reliably, and even then, it is something that many celiacs never have, regardless of how sick they become or how well they respond to the diet.

It is way behind the times to say that the only true celiac symptom is villi atrophy, and without it you don't have gluten intolerance. You need a new GI.

  • 2 weeks later...
kbtoyssni Contributor
kbtoyssni
Posted
Yes, I did have blood test done. One came back very high, and one came back negative. My gastrologist (sp?) said that I should just eat one slice of bread a day for a week before the bioposy, since i'm very very sensitive to gluten. So i'm going to pig out on gluten during Christmas. He said that should show up well enough for the bioposy. He also said he needed physical proof for me to be considered a true Celiac. I would've been happy with just eating gluten free with out the bioposy and making myself sick. But the doctor insisted. <_< The doctor did say though, that he wasnt sure what else it could be. :rolleyes:.

-amber

By the time your villi are worn away enough to get a positive biopsy, you have already done a lot of damage to your body. If you know you are gluten intolerant, I don't think it's worth it to do that kind of damage to your body just so you can have the official seal-of-approval from your doc. Have you talked to your parents about whether or not it is worth it to get a biopsy? If you are satisfied that you have celiac or at least gluten intolerance, do you need an official diagnosis? Another thing to consider is that there may be complications when you get older and have to find your own health insurance. It's not necessarily a bad thing to not have a diagnosis on your record... But talk to your parents about this.

  • 2 weeks later...
MandyCandy Rookie
MandyCandy
Posted

I know how you feel! I'm 21, 5'3 and weigh anywhere from 96 - 98. And I drop weight very quickly (if i'm sick for even a week and my eating patterns change I can go to the low 90's- 89. I recently started going gluten-free and now i'm worried i'll lose more weight. I Don't want to gain any either but i'm worried people will jump to the conclusion its an eating disorder causing the weight loss not celiacs.

  • 3 weeks later...
Sugar-free/ Gluten free Girl Newbie
Sugar-free/ Gluten free Girl
Posted

Hey Whitney!

I'll be 13 soon and i was just diagnosed with type 1 diabetes and celiac. When i was diagnosed i was only 63 pounds! Now about 2 months later i am about 73 pounds.

Anne Marie

ktscleary@sc.rr.com

sillyyak Enthusiast
sillyyak
Posted

My anorexia was actually a symptom of the sprue and not "true" anorexia. You might want to look into whether or not you have celiac.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    2. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    3. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    4. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
    5. Kirita
      - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748
    Dorfor
    Newest Member
    Dorfor
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
    • Kirita
      Recovery from gluten challenge

      By Kirita · Posted

      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.